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- itsdunerie replied to Ben98's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Potential celiac need advice
Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again... -
- itsdunerie replied to Ben98's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Potential celiac need advice
Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu -
- itsdunerie replied to Ben98's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Potential celiac need advice
15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y -
- Hopeful1950 commented on Scott Adams's article in Autumn 2025 Issue1Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
Great information in this article. Chicory root and inulin are the absolute worst! One Kind Bar will put me in misery for sure. Xanthan gum and maltitol also not good. I have been strictly gluten free for a very long time, but still cannot tolerate these ingredients.- additives
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By itsdunerie · Posted
Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again. Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. -
By itsdunerie · Posted
Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu -
By itsdunerie · Posted
15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y -
By Scott Adams · Posted
It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist. More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider. -
By Wheatwacked · Posted
Yes. Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again? You have identified a direct connection between gluten and pain. Gluten is your hammer. Now you have to decide if you need a medical diagnosis. Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity both cause multiple vitamin and mineral deficiency. Dealing with that should help your recovery, even while eating gluten. Phosphatidyl Choline supplements can help your gut if digesting fats is a problem, Consider that any medications you take could be causing some of the symptoms, aside from gluten.
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