Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Supportive Spouses?


Mjohnson73

Recommended Posts

Mjohnson73 Apprentice

Thanks everyone for your input...

I think for now I will continue to have gluten in the house for him, my daughter and my son (verdict is still out on him)... I just got my blood test results back and they came back negative for Celiac but my Rheumatologist said I should stay gluten-free since it is helping and that the tests are not 100% accurate so he is not ruling it out that I have it...

so I think what i will do is have a shelf for my stuff and a shelf for everyone else's stuff...

I might ask him if he would mind doing Gluten Free at dinner just cause it is easier to make one dish than to cook twice...

but the rest of the time he can eat as much as he wants.....

--Maya


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

Maya-

I'm neg for celiac disease as well, but was dx with endometriosis last year after a year+ of horrifying pain. All my pain went away the first month gluten free. I stayed gluten-free for four months then went back to gluten since ALL my pain was gone. I was good for about 2 months when all of a sudden the pain came back full force. I read the book Dangerous Grains and considered the quality of my life and decided to go gluten free. Pain disappeared again. So, I support your drs recommendation to remove gluten from your diet to see if it helps your other problem. It may not be as quick a solution as I found mine to be.... but hang in there for a few months and give it time to work. For me it was easy, no accidental glutenings because I've had years of experience to go on having done this with my son for years now. Good luck.

ianm Apprentice
As one of the few HUSBANDS that read threads like this, I am always tempted to scream at ppl that say stuff so harshly about men....

<{POST_SNAPBACK}>

Eloquently put.

Divorce is pretty extreme but in my case I realized that my brain fog was keeping me from seeing all of the other problems in my marriage. When I went gluten-free and the brain fog lifted I could clearly see that our marriage was by for and about her and only her. Jerks come in all shapes, sizes, ethnicities AND genders. When something like celiac disease happens you find out who your freinds are and who you can trust real quick.

cgilsing Enthusiast

To the men reading this:

I hope you guys don't really think that the women on this board are unhappy with their men or consider them to be jerks incapable of caring or support. My husband is the best support I have. He has been a partner for me in this disease. He knows just as much about it as I do and watches out for my diet on an equal level. He reads the labels on everything. When I'm too shy to ask the hostess about the ingredients in a dish he is already doing it for me. On top of it all he loved me enough to marry me before I was diagnosed, when I was bloated, loosing my hair, and sleeping 14 hours a day. No, I don't consider him an incapable jerk at all. I'm not sure I could be as caring as he is. Let's face it, it's not always easy being married to someone with celiac disease. But here's to the husbands (and wives) that support us in sickness and in health.

pixiegirl Enthusiast

My boyfriend is similar.... he starts talking to restaurants before I do. This weekend we are leaving on a week trip to upstate new york and he has already mapped out where the gluten-free places (chains and places that we found by writing to the various celiac groups in the area. He also mapped out health food stores and called them to see if they have gluten-free food. I've said to him a million times leading up to this trip that I'm afraid I'm going to be glutened and he has assured me I won't be. I actually believe him, with all the research and work he's done for this trip, I'll be as safe as I can be while traveling.

I often travel but its usually to larger cities where I can get to chain gluten-free restaurants or very high end places and this is going to be a trip to a very rural area with smaller mom and pop places. But we are also going to picnic a lot, so we'll see how it goes!

Susan

Pegster Apprentice

I praise of supportive spouses: My husband is a wonderful cook. He has been great about converting our favorite recipes just for me. I am the only one with celiac disease at my house, but our main dishes at dinner are always gluten-free. I stopped making two batches of pasta about a year ago. Sometimes the others have bread that I can't have, but I can have my own bread or eat my special crackers. I would NEVER make them eat gluten-free bread--that would be cruel.

emeraldskies Rookie
Instead of appealing to your husband the way you understand it, aproach it like its a game, or a challenge. Go to him with a PROBLEM, that he can FIX. Most men love to FIX things for thier wives. So present "gluten-free" as a issue that needs fixing. Istead of stuff like "Honey YOU CANT DO THATT! AKLSJFLKSA!! DONT YOU CARE???" , try stuff like "Honey, we need to find a way to keep the butter from getting crumbs in it, what do you think we should do?" Once he sees it as a problem that needs his fixing, most of the time most men will love to "fix" it. Thats actually the main way most men show how much love they have.

<{POST_SNAPBACK}>

My husband is definitely the way you describe. He feels best if he can constantly help me or fix my life somehow. The arrangement is working out for both of us. Also, he doesn't have any problems doing any traditional female-type activities to help me out, such as buying me feminine products or doing housework.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WLJOHNSON Newbie

Maya, Ianm and Jnkmnky,

Yay!!! Finally, a message board where people are real. It was so refreshing to read all the posts you put in, and I had to laugh, which really felt GOOD, so please keep up the dialogue, and Maya, please keep posting.

Ianm I applaud you for your forthrightness and courage in taking care of yourself. I, too, recently asked my spouse to leave, and life is so much better now. Jnkmnky I think your openness is great.

Life with Celiac is a challenge, an adventure, and a quest which leads us to always be exploring, searching for new and better foods as we attempt to be healthy, happy, and satisfied human beings.

I really enjoyed all your posts. Thanks! Welda Lou (Celiac since age 8, now 60, with 2 year old grandson, 61 year old sister, and 55 year old cousin recently diagnosed Celiac as well)

luvs2eat Collaborator

Make him come into the bathroom with you after you've been glutenized! That'd make a supportive person out of anyone who was with ME!! haha

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.