Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused

ChickieD

By ChickieD
in Coping with Celiac Disease

Recommended Posts

ChickieD Newbie
ChickieD
Posted

Hi everyone,

I came to this forum hoping for answers. I do not have celiac disease but I have tested as mildly reactive to gliadin, which I now understand is the main issue with those who have celiac disease. My confusion, however, is with the fact that I am not reactive to gluten and I'm just not understanding the relationship of the two. So, it appears that my diet will need to essentially be that of one with celiac disease...?

What foods contain gluten but not gliadin? Or, vise versa? Big question, I know.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fairy Dancer Contributor
Fairy Dancer
Posted

Gliadin is a type of gluten. Gluten is a collective name for certain proteins found in grains. Gliadin is wheat gluten, secalin is rye gluten and hordein is Barley gluten, as far as I am aware.

Skylark Collaborator
Skylark
Posted

Gluten is a generic word for the protein part of a grain (as opposed to the starchy part), which is a mixture of a few specific proteins including glutelin and gliadins. Wheat gluten is mostly gliadin. People with celiac disease react to a particular gluten protein called alpha-gliadin. If you react to gliadin you actually do react to gluten since "gluten" is the broader word. For the purpose of finding foods, you need a celiac diet.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

What test did you have done? Gliadin is one of the proteins that makes up gluten in certain grains--wheat, barley, and rye (and sometimes oats are included although the protein is a slightly different one). We would probably use gluten and gliadin interchangablely here. Not sure how you could be intolerant of gliadin and not gluten unless you are thinking of food science use of gltuen which can include corn and rice (but corn and rice do NOT have gliadin and are not considered to be gluten by celiacs/gluten intolerant people). Here's an article that may help you understand gliadin better: https://www.celiac.com/articles/8/1/What-is-gluten-What-is-gliadin/Page1.html

ChickieD Newbie
ChickieD
Posted
  • Author

Thanks, Skylark. I guess I was beginning to figure that out. I haven't been as diligent as I'm beginning to realize I will need to be in eliminating gluten from my diet. Thankfully my symptoms are not that bad.

One other question. My daughter has been fighting extreme fatigue for about 6 years. As I've come to understand gliadin intolerance and be genetic. She was recently tested for gluten intolerance and it came back negative. As I understand it was a basic test in a panel of many others. Should she be tested further? And,if so, what test should be done?

ChickieD Newbie
ChickieD
Posted
  • Author

GlutenFreeMana - My doc (naturopath) had a 200 food sensitivity panel done via (Company Name Removed - They Spammed This Forum and are Banned). I tested out "mildly intolerant" to wheat (among 35 other foods), corn being the only other grain. I'm guessing wheat is the gliadin connection, right?

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

GlutenFreeMana - My doc (naturopath) had a 200 food sensitivity panel done via (Company Name Removed - They Spammed This Forum and are Banned). I tested out "mildly intolerant" to wheat (among 35 other foods), corn being the only other grain. I'm guessing wheat is the gliadin connection, right?

Yes wheat is one of the grains with gliaden as a protein. Just so you know, food intolerance testing is not very accurate. The best test for a food intolerance is your own body's reactions when removing that food for a set time (usually a month or more) and then trying a little to see how your react. The tests for celiac are much more accurate (especially when you get a positive) than a food intolerance test. If you would like to be tested for celiac (or have your daughter tested) however you need to keep on consuming gluten (wheat, barley, rye) until the testing is done. Here's a link that explains the testing: Open Original Shared Link You may want to print that out and take it to your dr if you want testing so that he/she does all the tests listed instead of just one or two of them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

One other question. My daughter has been fighting extreme fatigue for about 6 years. As I've come to understand gliadin intolerance and be genetic. She was recently tested for gluten intolerance and it came back negative. As I understand it was a basic test in a panel of many others. Should she be tested further? And,if so, what test should be done?

I'm not sure what sort of test your daughter had, but there is no reliable test for gluten intolerance other than trying the diet for a few months. If she has finished celiac testing (requires a full gluten diet), she should go ahead and give the diet a good, strict try.

Skylark Collaborator
Skylark
Posted

GlutenFreeMana - My doc (naturopath) had a 200 food sensitivity panel done via (Company Name Removed - They Spammed This Forum and are Banned). I tested out "mildly intolerant" to wheat (among 35 other foods), corn being the only other grain. I'm guessing wheat is the gliadin connection, right?

Hard to know. Most food intolerance testing is unreliable because the food is not directly exposed to your bloodstream or skin. You need to eliminate the 35 positive foods for a few weeks and reintroduce them one at a time to see if you react when you eat them.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.