Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Intolerance - Has It Ever Improved For You?


The Horticulturalist

Recommended Posts

The Horticulturalist Apprentice

Have been gluten and dairy free for a year or so, tried lactose free but the GI symptoms were just the same.

Having been unable to find anything online about this I thought I'd ask here if anyone who was once casein intolerant in the past is now able to eat it, and how long did this take?

I can leave the gluten behind, but I'd love to think that I'd be able to enjoy cheese again in the future.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

Hi horticulturist,

I was able to tolerate casein about 18 months after eliminating it. (I may have been able to reintroduce it earlier, but I was reluctant because of the side effects.)

Once I wasn't having problems with it, I went a little overboard.

Had so many cheeses, ice cream, milk, half-n-half, all of that, risotto.

This week I'm having a rough time. It could maybe be the chick pea flour I used in flat bread (with some cheese). So for right now they're both on hold... to be tried again after I give my system some time to repair.

Skylark Collaborator

I started intolerant to cows milk. Sheep and goat were OK but I would react to even the small amounts of cow casein in butter or non-dairy creamer. It took about a year until I could eat cow casein again. I discovered it by accident, when I ate something cooked in butter by mistake.

kwylee Apprentice

I did my first casein challenge a couple weeks ago after being 15 months gluten-free/DF/SF. It was only about 1/4 cup of mozzarella cheese on gluten free pizza. Prior to going gluten-free/DF/SF, that amount of casein would make the room spin within minutes and I'd be brain foggy for days. And while I can't say I wasn't without reaction - about 10 minutes after eating I felt just a bit "weird" in the head, and had a minor tummy pinching in the hours afterward - I'm still encouraged. I didn't have any other intestinal trouble as a result, although I've never really reacted that way in the past.

I plan to wait a few more months and try again.

  • 3 months later...
JWSJ Newbie

My daughter and I have been gluten and dairy free for >6 months. Previously, any amount of either would throw us for a loop.

Last night, we tried a gluten free pizza with mozzarela from Mellow Mushroom. I read the dairy issue may lessen when your GI heals from the gluten damage.

The pizza caused no problems for either of us. Maybe, we can have some from time to time.

This is great news for us!

Anyone have similar experiences?

JWSJ

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

    2. - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

    3. - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Healthy Gluten Free Foods low sugar that you found?

    5. - trents replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,253
    • Most Online (within 30 mins)
      7,748

    catnapt
    Newest Member
    catnapt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.