Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Intolerance - Has It Ever Improved For You?

The Horticulturalist

Recommended Posts

The Horticulturalist Apprentice
The Horticulturalist
Posted

Have been gluten and dairy free for a year or so, tried lactose free but the GI symptoms were just the same.

Having been unable to find anything online about this I thought I'd ask here if anyone who was once casein intolerant in the past is now able to eat it, and how long did this take?

I can leave the gluten behind, but I'd love to think that I'd be able to enjoy cheese again in the future.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted

Hi horticulturist,

I was able to tolerate casein about 18 months after eliminating it. (I may have been able to reintroduce it earlier, but I was reluctant because of the side effects.)

Once I wasn't having problems with it, I went a little overboard.

Had so many cheeses, ice cream, milk, half-n-half, all of that, risotto.

This week I'm having a rough time. It could maybe be the chick pea flour I used in flat bread (with some cheese). So for right now they're both on hold... to be tried again after I give my system some time to repair.

Skylark Collaborator
Skylark
Posted

I started intolerant to cows milk. Sheep and goat were OK but I would react to even the small amounts of cow casein in butter or non-dairy creamer. It took about a year until I could eat cow casein again. I discovered it by accident, when I ate something cooked in butter by mistake.

kwylee Apprentice
kwylee
Posted

I did my first casein challenge a couple weeks ago after being 15 months gluten-free/DF/SF. It was only about 1/4 cup of mozzarella cheese on gluten free pizza. Prior to going gluten-free/DF/SF, that amount of casein would make the room spin within minutes and I'd be brain foggy for days. And while I can't say I wasn't without reaction - about 10 minutes after eating I felt just a bit "weird" in the head, and had a minor tummy pinching in the hours afterward - I'm still encouraged. I didn't have any other intestinal trouble as a result, although I've never really reacted that way in the past.

I plan to wait a few more months and try again.

  • 3 months later...
JWSJ Newbie
JWSJ
Posted

My daughter and I have been gluten and dairy free for >6 months. Previously, any amount of either would throw us for a loop.

Last night, we tried a gluten free pizza with mozzarela from Mellow Mushroom. I read the dairy issue may lessen when your GI heals from the gluten damage.

The pizza caused no problems for either of us. Maybe, we can have some from time to time.

This is great news for us!

Anyone have similar experiences?

JWSJ

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ? I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet. Rebound muscle pain so intense ...
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon. I did no't have any bread It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right...
    3. dixonpete
      0

      Inoculation and video development

    4. Juliane
      - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    5. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,843
    • Most Online (within 30 mins)
      7,748
    K M
    Newest Member
    K M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Oh my goodness medication causing pain !!!!

      By Colleen H · Posted

      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Stomach burning and neuropathy

      By Juliane · Posted

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.