Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Endometriosis Symptoms Get Worse Eating Gluten?


carecare

Recommended Posts

carecare Enthusiast

Meaning...if you were once eating gluten and then found out you were celiac or gluten intolerant did your endo pain get better when starting a gluten free diet? Reason I ask is I recently found out the pain I've been having is probably endometriosis. I thought it was an ovarian cyst that wasn't resolving itself for 5 months but when I got my ultrasound there was no cyst. Because of the symptoms and when the pain occurs my doctor handed me a pamphlet for endomitriosis and sent me on my way basically. After reading it I actually think I've been dealing with this for many years...I thought the pain was from ovarian cysts but now I believe it's been the endomitriosis. I had my tubes tied 10 yrs ago after my 4th child. I believe I have scar tissue and adhesions there from the endometriosis. Lately the pain the first few days of my cycle has been horrible...it's on my right side and I feel like it's my tubes being pulled and pinched...and my ovaries aching. I was gluten free since the beginning of August and went back to eating gluten with the boys since they are getting an endoscopy in December so we reintroduced gluten. I decided I might as well get tested myself come december. Well, I was on gluten for a week then started my cycle and the pain in my lower right side was worse than ever...and last much longer too. Usually it's just the first couple of days but this time it started for 2 days..had one good day and then started back up for another 2 days. It was not fun. I'm wondering if it's because I added gluten back into my diet. I know I am sensitive to gluten...if off of it for some time and I have something with gluten I get a stomach ache and sometimes D. It's been a week and a half with gluten back in and I've had a few headaches...a couple bouts of D and extremely painful cycle. Anyone have endometriosis that got better once on a gluten free diet. I don't know if I should wait to go back to the gyno dr or do it soon because I really would rather them do something about this than wait....however if going gluten free helps woman with endometriosis then I'm willing to wait until I have the testing and see how it helps it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bny06 Apprentice

Hello!! Actually you are probably correct!!! Years ago, (i had no idea I had any gluten/celiac issues) I was having fertility problems.. they found a huge endometrioma (endometriosis cyst) on ultrasound and then did surgery to remove it.. they said I had one of the worst cases of endometriosis they had ever seen.. however I had never had any pain or symptoms (besides an occasional cramp that once a year i'd take an advil for) anyhow in efforts to do any and everything to help out for fertility sake I did a lot of research on endometriosis etc... turns out that they think not only endometriosis pains, but also the inflammation caused by the endometriosis itself is worsened by gluten.. since endometriosis is also an autoimmune disorder (they believe) .. SO i immediately went gluten free.. this is actually when We first got pregnant! So i couldn't tell if my pains changed or not, since I never really had any.. it was either coincidence or it did decrease the inflammation and help us get pregnant... there are a few studies out there showing how it helps! :) Now fast forward 4 years.. turns out i have a gluten issue! Shoulda figured that out then I guess!!! Good luck! :)

NCM Newbie

I've been wondering this myself. I have had endometriosis for 17 years and only found out 3 months ago that I have Celiac Disease. I've only been gluten free for 3 months but so far the endometriosis has been much better but I think I need a longer time period to know for sure if it's made a difference because some months it would be worse than others.

mash Newbie

There is a very definite link between Celiac and Endometriosis - see this study: Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Brain fog

    2. - Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Gluten free nuts

    3. - RMJ replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Going for upper endoscopy today

    4. - Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
      13

      Top Brands of Gluten-Free Canned Chili

    5. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Going for upper endoscopy today


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,272
    • Most Online (within 30 mins)
      7,748

    SLowe
    Newest Member
    SLowe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
    • RMJ
      I’m glad you have a clear answer.  Some endoscopes have enough magnification for the doctor to see the damage during the procedure.
    • Scott Adams
      Welcome to the club!😉 This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      I could not find the thread, but I recall at least one user who was drinking regular gluten beer daily but getting celiac blood tests done often (I think it was monthly) and doing a biopsy each year and all celiac disease tests were always negative. Everyone is different, but in general regular beer would be considered low gluten (not gluten-free!). I have no issues with Daura Damm, but those who are super sensitive might.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.