Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Till %100


Gfresh404

Recommended Posts

LOWNskater52 Apprentice

Current Age: 24

Self- diagnosed Celiac and DH Age: 24

Time Gluten-Soy-caesin free: 3 weeks exactly

Amount Recovered: 30%

A lot of gastro issues have healed up (indigestion, bloating) but I still have some gas (both ends). My main issues are/were anxiety, shortness of breath, weird new allergies, and inability to stand exercise. I suspect thyroid problems which can take atleast three months to heal.

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



woodnewt Rookie

I don't know if 100% is ever possible

Diagnosed around age 25ish

It wasn't ever explained to me what celiac disease meant,

or what gluten-free was other than avoiding bread/pasta (no concept of cross contamination),

so didn't go "truly" gluten free until I became deathly ill and had to do the research myself,

about 2.5 years ago

95%+ recovery, as long I stay on this specific "diet" I'm on (it's way beyond gluten-free)

  • 2 weeks later...
Jamie15 Newbie

Age diagnosed: 27 through Enterolab<br style="color: rgb(44, 54, 68); line-height: 19px; background-color: rgb(243, 249, 246); ">Period of time gluten-free: 2.5 years<br style="color: rgb(44, 54, 68); line-height: 19px; background-color: rgb(243, 249, 246); ">Estimated % of Full Recovery: 75%

I've had ups and downs but a lot of my neurological symptoms have reduced making everything else easier to tolerate. I spend a lot of time tracking down the ingredient making me sick when I have set backs but so far I've been mostly correct once I find it. I've also cut out dairy and taken an (Company Name Removed - They Spammed This Forum and are Banned) test to see if I can get closer to 100%.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.