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Any Non-Celiac Gluten Intolerant People Without Symptoms?

Katrala

By Katrala
in Coping with Celiac Disease

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Katrala Contributor
Katrala
Posted

This is probably a silly question, but I'm curious if there are any of you out there with non-celiac gluten intolerance who only have very mild symptoms.

Of course, I'm assuming that the whole reason someone discovers their gluten intolerance is because of the symptoms. With celiac, I know there are people who have very mild, if any, outward symptoms immediately after eating gluten.

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Lisa Mentor
Lisa
Posted

This is probably a silly question, but I'm curious if there are any of you out there with non-celiac gluten intolerance who only have very mild symptoms.

Of course, I'm assuming that the whole reason someone discovers their gluten intolerance is because of the symptoms. With celiac, I know there are people who have very mild, if any, outward symptoms immediately after eating gluten.

No, no...not a silly question at all.

Many people here have been diagnosed with Celiac as a secondary issue. Although gluten can not be attributed to all our issues, it can play a part - large or small. That part varies widely amongst us.

But, to answer your question, I have a minimal reaction to exposure after six years of being gluten free, 24 hours later.

kdonov2 Contributor
kdonov2
Posted

I don't know if my case counts, but I am gluten intolerant and experience fewer obvious symptoms the more often I eat gluten. If I have avoided gluten for a long time and accidentally consume it, I get gastrointestinal problems, bloating, fatigue, headaches, aches, depression, acne, inability to feel satiation from food, increased tolerance to alcohol, frequent hunger and probably other symptoms. When I accidentally get glutened by something several times, I only experience bloating, malabsorption (causes frequent hunger and higher alcohol tolerance) and acne. Before I realized I had the intolerance, I thought the bloating was actually fat, felt like I was simply a hungry girl who could handle her alcohol, and assumed my hormones caused the acne. So those symptoms wouldn't really be apparent as a reaction to a food sensitivity. Those are symptoms a ton of unsuspecting people have.

BethM55 Enthusiast
BethM55
Posted

This is probably a silly question, but I'm curious if there are any of you out there with non-celiac gluten intolerance who only have very mild symptoms.

Of course, I'm assuming that the whole reason someone discovers their gluten intolerance is because of the symptoms. With celiac, I know there are people who have very mild, if any, outward symptoms immediately after eating gluten.

I agree, this is not at all a silly question.

I am gluten intolerant, self diagnosed, never been tested except by eliminating gluten from my diet. My symptoms vary from uncomfortable to miserable, and don't start for 12 to 24 hours later, which can make figuring what the heck I ate, very difficult. Eating gluten triggers reflux and my fibromyalgia symptoms, which is something I try hard to avoid. Since going gluten free, I also get the big "D" after being glutened, although that symptom only started in the past 6 months or so. I've been gluten free for about 3 years.

The fibro is not completely 'cured' by being gluten free, but it certainly is much more manageable.

Katrala Contributor
Katrala
Posted
  • Author

[quote name='Lisa' timestamp='1318206095' post='737439'

Many people here have been diagnosed with Celiac as a secondary issue.

domesticactivist Collaborator
domesticactivist
Posted

I completely agree (including about celiac causing so many other issues as well.)

However - I'm interested in non-celiac gluten intolerant. It's just out of pure curiosity, really. I occasionally see people who are celiac mention that they have only mild (immediate) symptoms, but I've never heard people who haven't been officially diagnosed as celiac described their reactions as "mild."

I didn't think I was gluten-intolerant at all and only went gluten-free because of my son's extreme reactions to gluten. Now I realize that I do have symptoms from gluten. I would classify them as mild. When we first went gluten-free my reactions to being gluten-free were extreme. That was a clue to me that it was probably a problem. When I got glutened early on, I could feel it with brain fog and some D.

But we've changed our diet so much since then and we're so careful about gluten that I honestly don't know what my reaction would be now. I keep thinking maybe I should try it just to find out. I think my biggest improvements in overall health & neuro issues are not so much about gluten as about having gotten my blood sugar under control with GAPS.

wheeleezdryver Community Regular
wheeleezdryver
Posted

I am self- diagnosed, so don't know if i have celiac or NCGI.

The obvious outward sypmtoms I had were, well, not so obvious-- at least until i figured out my gluten issues! they were: cold sores, non itchy rash on arms & hands, constipation, minor ataxia. All but the ataxia can be attributed to other things, as far as I know. And I just thought all of them were normal for me.

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anabananakins Explorer
anabananakins
Posted

I completely agree (including about celiac causing so many other issues as well.)

However - I'm interested in non-celiac gluten intolerant. It's just out of pure curiosity, really. I occasionally see people who are celiac mention that they have only mild (immediate) symptoms, but I've never heard people who haven't been officially diagnosed as celiac described their reactions as "mild."

I guess mine are pretty mild. I'm non-celiac gluten intolerant. I'm sensitive to tiny amounts of gluten, but if it's a one off glutening, then my symptoms arrive almost exactly 2 hours later and don't last long (basically, really bad stomach ache and D). Nothing like the days or weeks other people seem to get.

If I get glutened over and over, then the neuro stuff kicks in and that's nasty. I see the benefits in being gluten free over the longer term.

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