Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Sensitivity?

hojo70

Recommended Posts

hojo70 Newbie
hojo70
Posted

Hi folks. I've had problems with anxiety and random nerve pain throughout my body for 9-10 years. The pain is not constant, but is worse some days than others. I was tested for celiac by a gastroenterologist maybe 6-7 years ago but the result was negative. I was wondering how likely you think gluten sensitivity may be? Can it affect (only) the nervous system this way? Has anyone else had the same experience, or heard of someone who has?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


next2normal Newbie
next2normal
Posted

Hi folks. I've had problems with anxiety and random nerve pain throughout my body for 9-10 years. The pain is not constant, but is worse some days than others. I was tested for celiac by a gastroenterologist maybe 6-7 years ago but the result was negative. I was wondering how likely you think gluten sensitivity may be? Can it affect (only) the nervous system this way? Has anyone else had the same experience, or heard of someone who has?

yep for sure, a test for celiac is omly one isse of the 200+ issues.i wont rant what i think of doctors and this issue,

anyway ask for a anti gliadin IGG and IGA test

its a soft tissue issue, which means a lot to everything

Lisa Mentor
Lisa
Posted

Hi folks. I've had problems with anxiety and random nerve pain throughout my body for 9-10 years. The pain is not constant, but is worse some days than others. I was tested for celiac by a gastroenterologist maybe 6-7 years ago but the result was negative. I was wondering how likely you think gluten sensitivity may be? Can it affect (only) the nervous system this way? Has anyone else had the same experience, or heard of someone who has?

Well, testing has advance in recent years. I would consider retesting. And after that, try the full diet and see if you have symptom relief.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Well, testing has advance in recent years. I would consider retesting. And after that, try the full diet and see if you have symptom relief.

I agree. Even though you were negative 6 yrs ago you could show up positive now. I would get new tests and make sure they do a full panel before going gluten-free. All the tests listed here: Open Original Shared Link

AVR1962 Collaborator
AVR1962
Posted

Yes, nerve issues a very much a part of it. This is what first appeared to me as bothersome symptoms. It doesn't hurt to retest. If tests are still negative then maybe try a gluten-free diet anyway. I had to do alot of supplementing. My body was pretty damaged, so the point of bone loss and I was not absorbing the proper nutrients from foods alone. I have been gluten-free for 6 months, vit supplementing for 3 months. For me, it was the extra vits that have made a difference in my recovery. The process is slow.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,140
    • Most Online (within 30 mins)
      7,748
    KP009
    Newest Member
    KP009
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.