Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be A Gluten Reaction?

birdie22

Recommended Posts

birdie22 Enthusiast
birdie22
Posted

If you've followed any of my other posts, I'm ttg iga neg and trialing an elim diet. I've been gluten-free for a few weeks (or at least trying my very best). I have a follow up with my GP in 2wks and want further testing (gliadin on your recommendations) so I'm reintro'ing gluten. For a snack today I had a few pieces of ak-mak sesame cracker and w/in a about 20 mins my heartburn was back pretty strongly (hasn't gone away completely on gluten-free but was much improved), and I started feeling lightheaded-ish/dizzy-ish. I wouldn't call it foggy brain because I can think clearly, but felt a weird tired and dizzy feeling behind my eyes, almost like a flurry of activity going on in my brain. Like I wanted to put my head down on my desk for a while and rest. My body however felt fine. My heart also felt like it was racing. No bloating (which has been my major symptom I'm trying to ID the cause of). Gluten reaction? The ak-mak is just wheat, honey, sesame oil, yeast, and salt.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


birdie22 Enthusiast
birdie22
Posted
  • Author

I've continued my gluten reintro and notice each time the dizzy feeling. I've come to realize it feels similar to the buzz I get when drinking alcohol. Not drunk, still thinking clearly, but almost hyperactive like my brain is racing.

carecare Enthusiast
carecare
Posted

interesting...my son is back on gluten so he can get an endoscopy in December. His original symptoms came back (muscle pain and canker sores) but now he's complaining of feeling dizzy. I figured it was from the gluten issues. Sucks.

birdie22 Enthusiast
birdie22
Posted
  • Author

interesting...my son is back on gluten so he can get an endoscopy in December. His original symptoms came back (muscle pain and canker sores) but now he's complaining of feeling dizzy. I figured it was from the gluten issues. Sucks.

Sorry to hear that. The dizzy feeling is so hard to explain. It's almost like a noise or activity that I just want to turn off. The only good part thus far is that it seems to only last about an hour after eating gluten and then quiets back down.

AVR1962 Collaborator
AVR1962
Posted

I've continued my gluten reintro and notice each time the dizzy feeling. I've come to realize it feels similar to the buzz I get when drinking alcohol. Not drunk, still thinking clearly, but almost hyperactive like my brain is racing.

Yes, this is what I get but I will normally get the dizziness about 24 hours after I have consumed gluten and then it last for 3 weeks. It does feel like I have been drinking as far as the balance is concerned. I had terrible burning in my stomach from gluten. Doc put me on Nexium which helped alot. The burning is acid in the stomach so you will need to protect your stomach or it can do a great deal of damage.

Roda Rising Star
Roda
Posted

It could be a gluten reaction. There are a lot on here that get neuro issues. For me I don't get those kinds of reactions, but I am moody as heck for a good week or more after a gluten exposure. My husband relates it to Dr. Jekyll/Mr. Hyde. :P I definatly think you are on the right track in discovering that you have a gluten issue.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...
    3. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    5. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748
    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.