Celiac Panel For My 2 Year Old Daughter

[MamaGigi]

Hi... I am sort of new here. I was misdiagnosed several years ago and used to be apart of this board... until a doctor last year told me that my celiac panel never came back positive and the DR that diagnosed me was wrong. I went back to gluten... and here I am now with two children that are having issues... not to mention, I don't feel the best either.

My daughter is a petite two year old. Her doctor did a Celiac Panel on her and when the results came he said they were a little high and just told us since she is growing she is fine (although growing slowly...). I finally got a copy of these tests and two of them are positive. I need help understanding.

Her Gliadin IgA is 12 and her Gliadin IgG is 100. Her pediatician said this is not her area of expertise and wants me to take her to a specialist. And I am, however it won't be for several months. Can anyone give any insight? I am currently adhereing to a gluten-free diet, but do not want to put my daughter on one if she will need a biopsy, and if it's not necessary. Any input is greatly appreciated. OH, her doctor has also ordered a bone scan of her wrist. I have never heard of this, any of you?

Thank you!

[stanleymonkey]

our doc said growth isnt always a good indicator of celiac, even though our daughter put on a pound and grew 3 cm in a month he still oredered a full celiac panel as he said not all kids are the stereotypical pot belly and stick limbs

we were always told maybe our daughter was going to be petite but her 8 month old sister is the same size she was at 13 months so they looked further

her calcium level was off so that was enough for them

high is high growth means nothing

push to see if you can get your appointment moved up

the bone scan will be to see if she is losing calcium, there are lots of bones in the wrist so i guess it will be easier to see

[MamaGigi]

Thank you, I pushed to even see these results. Our ped is from Italy and his English is not so great. He told my husband he wasn;t overly concerned, but our other ped was- and this is where we are now. I guess if she was losing calcium then that would be a marker as well? Ugh. I feel like that test is too high to be taken lightly. I appreciate your response.

[frieze]

the scan of the wrist is probably for "bone age".

[MamaGigi]

the scan of the wrist is probably for "bone age".

what does that mean?! See... nothing has been explained, it was very rushed. I am so confused!

[lemontree1]

There are growth plates in the wrist, so it may be that is what they are looking at. They may be able to tell her percentage of growth? I am also curious.

[semily]

The wrist x-ray is to check his bone growth age. My son, now 27 months, had his 2 year pediatrician visit this summer and the doctor was concerned about his lack of growth so he ordered a bone growth x-ray of his hand and wrist. It was reviewed by a pediatric endocrinologist who ultimately determined that 2 years old is too young for the test to be conclusive - the age of the bones in his hand and wrist ranged from 15-24 months, which they said can be common at that age. My ped said ultimately he had constitutional growth delay and would catch up later. The whole thing got me worried there was something else going on (and I was annoyed we went through the x-ray process for nothing) so we switched doctors.

I was glad I did, because 6 weeks later my son got extremely ill in September, lost 10% of his already meager weight and was getting sicker by the minute. Our new pediatrician ordered a celiac panel and the TTG IgA number came back greater than 100 and TTG IgG was 16.3. He's been gluten free for a month now and has already gained 2 pounds (going from 21 to 23 pounds). He was 20.5 pounds a full year ago, so this is a huge gain!

I think you're right to take those results seriously. I would call and see if you can get the appt moved up. Whether or not to put her on a gluten free diet now is a really good question. We decided to go gluten-free immediately because our son was just too sick to keep him on it another second longer. We did get an emergency appt with a gastro that wanted to do a biopsy, but she was awful and we just weren't comfortable with her doing the procudure. We have an appt in two weeks with another specialist but we're keeping him gluten free for now.

[Roda]

A bone age x-ray is an x-ray of the hand and wrist. The radiologist can get an estimate "bone age" from the development of the wrist and hand bones.

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