Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety Or Heart Issues


pondy

Recommended Posts

pondy Contributor

Hey Folks,

Since September I've had a change in condition - not sure if it is anxiety or heart related. Here's the lowdown:

- episodes of sudden & extreme fatigue

- shortness of breath

- lump in the throat & choking feeling (sometimes - not every episode)

- racing, pounding heart which I can feel way down in my descending aorta.

- sometimes weak pulse (almost non-palpable), sometimes hummingbird fast pulse

- feeling lightheaded

All or some of the above can happen up to 4 times per day. Typically they last 20 minutes to maybe an hour. Some days I have no symptoms at all.

Heart problems are prevalent in my family, so is depression & anxiety. I'm being treated for generalized anxiety disorder with a very small dose of benzodiazapines (for like past 8 years - same dose). FYI, the Alprazolam (Activas Labs) is gluten free but they can't guarantee no cc, per my Pharmacist.

Stress test (in 2007) was normal. Holter monitor test last week result was "nothing significant". Potassium & Sodium labs normal. No anemia. Thyroid functions normal. My diastolic blood pressure has been high (for me, 85-90 is high). Vitamin D level on the low-normal side as of a few months ago. I take B12 daily.

Still... these episodes are so alarming. They are starting to interfere with my job performance. I ended up in the ER in early Sept. & the hospital staff concluded nothing.

I feel like a nutcase - like I'm obsessing over it & making it worse. Wish I could shut up & forget about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Have you had an EKG in the ER during one of these episodes? They could be atrial fibrillation, which I get from eating certain foods (or, nowadays, sometimes just get. Period.)

pricklypear1971 Community Regular

Have you had your thyroid checked? I can't see your signature, I'm on my phone.

Some people have some of these symptoms from hyperthyroidism.

pondy Contributor

Have you had your thyroid checked? I can't see your signature, I'm on my phone.

Some people have some of these symptoms from hyperthyroidism.

Yes, I had it checked a couple months ago (August maybe?) - all they said was that my thyroid function is in the normal range.

pondy Contributor

Have you had an EKG in the ER during one of these episodes? They could be atrial fibrillation, which I get from eating certain foods (or, nowadays, sometimes just get. Period.)

I've had several EKG's since 1997 or so...

My last two were abnormally normal for me. Meaning, the one I had in 2007 was abnormal - that prompted the stress test. The one that the hospital did was pretty much the same as the one from 4 years earlier (both abnormal, but no sig. change).

I was told that I "may have" some heart tissue damage in the ventricular septum - which "might" cause some misfiring or some such thing...

Ugh! The ambiguity! Note to self: be a better advocate for myself.

mushroom Proficient

I've had several EKG's since 1997 or so...

My last two were abnormally normal for me. Meaning, the one I had in 2007 was abnormal - that prompted the stress test. The one that the hospital did was pretty much the same as the one from 4 years earlier (both abnormal, but no sig. change).

I was told that I "may have" some heart tissue damage in the ventricular septum - which "might" cause some misfiring or some such thing...

Ugh! The ambiguity! Note to self: be a better advocate for myself.

Did you have one of your episodes while you were wearing the Holter monitor? I wore a Holter monitor too, and had no episode while wearing it :( It took forever for me to find out that it was atrial fibrillation I was experiencing. I have a normal heart otherwise, on stress test and ECG, but when it fires off my EKG is all over the place :blink:

pondy Contributor

Did you have one of your episodes while you were wearing the Holter monitor? I wore a Holter monitor too, and had no episode while wearing it :( It took forever for me to find out that it was atrial fibrillation I was experiencing. I have a normal heart otherwise, on stress test and ECG, but when it fires off my EKG is all over the place :blink:

Of course not - isn't that the way it works? I only wore it for 24 hours because the symptoms were so frequent.

My mom has A-Fib & yes, it is hard to catch sometimes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



captaincrab55 Collaborator

Of course not - isn't that the way it works? I only wore it for 24 hours because the symptoms were so frequent.

My mom has A-Fib & yes, it is hard to catch sometimes.

You may need to do another Stress Test... I just had one 2 weeks ago and it only showed up when they injected some drung in me... I'm now taking half the BP meds that I was taking a month ago... I'm now taking the right med for the problem... I saw the Doc yesterday and I don't go back for 6 months... This is the best I felt in several years...

rosetapper23 Explorer

You say that you're taking B12--is it sublingual? Are you taking enough? I would suggest testing your level, because your symptoms are dead-on for a B12 deficiency. I get all of those symptoms when my level is low...and although I used to get B12 injections, I now prefer chewing on sublingual B12 three times a day. A nice benefit is that my lifelong acne cleared up as a result.

If you end up getting tested for B12, you might ask them to check your other B vitamins, as well.

pondy Contributor

You say that you're taking B12--is it sublingual? Are you taking enough? I would suggest testing your level, because your symptoms are dead-on for a B12 deficiency. I get all of those symptoms when my level is low...and although I used to get B12 injections, I now prefer chewing on sublingual B12 three times a day. A nice benefit is that my lifelong acne cleared up as a result.

If you end up getting tested for B12, you might ask them to check your other B vitamins, as well.

Wow, ok. I will ask for some B level labs ASAP - that and perhaps another stress test.

Right now I take just 1000mcg of B12 in the morning - the tablets.

Thanks very much for the insight - these symptoms are incredibly frightening.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.