Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going On Vacation Wednesday...


love2travel

Recommended Posts

love2travel Mentor

After cancelling our trip due to my intense ongoing pain we have rescheduled and are leaving Wednesday. We are flying to Italy then renting a car to drive to our house in Croatia for three lovely weeks. So, now we are doing about 392 last-minute things. However, I am still in much pain - I always am - so could you use your prayers. The flights are brutally long and excruciating but I am still doing it. I bought a portable TENS machine and have as many prescription drugs as I can take together. One of my sisters is coming with us this time and I absolutely cannot wait to live this trip through her eyes as she has never been to Europe before. We will be spending our last three nights in Venice so she can experience it. I have been playing tons of wonderful Croatian klapa music lately as I am trying to learn the language.

The thought of the gluten-free airplane food makes me nauseous but I am organizing lots of yummy snacks. Once we are in Italy and Croatia it will be fine - I just must plan for delays, layovers and so on. I am thankful that other countries are more advanced than ours when it comes to celiac disease knowledge. :)

So, I may be posting the odd time for the next couple of days but then we are so OUTTA HERE! It is wonderful to go from winter to paradise! :D Take care of yourselves, all!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I'm so glad you were able to go! Have a safe trip, and I hope it's not too difficult for you. Enjoy!

jswog Contributor

What wonderful news!!! Can you adopt me as a sister and take me along? My husband has traveled Europe extensively, having lived in Germany for 6 years, but I have never been. We're truly hoping that his job will take us to Germany or Italy soon. Have a GREAT trip!

BabsV Enthusiast

I'm so glad to see you finally get to take your trip. Enjoy! I hope it all goes smoothly and you have lots of sun and good times. We are headed to Athens, Greece in less than a week and while I am also dealing with pain issues and at times the thought of travel terrifies me (this is my first trip since diagnosis) I REFUSE to cancel this trip and let Celiac 'win'!

kareng Grand Master

Have a great trip!

Bubba's Mom Enthusiast

I'm happy to see that you can go after all! Have a great trip. :)

wheeleezdryver Community Regular

Enjoy your trip, and be sure to tell us about all your great gluten- free finds when you get back!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

What wonderful news!!! Can you adopt me as a sister and take me along? My husband has traveled Europe extensively, having lived in Germany for 6 years, but I have never been. We're truly hoping that his job will take us to Germany or Italy soon. Have a GREAT trip!

Germany is so wonderful - more of my family lives in Germany than here in Canada. It was so interesting to go and trace my roots. I went to a cemetary where many of my relatives were buried, six or more people deep. :o I also went to my ancient ancestral home - it was a huge mansion built many hundreds of years ago. My family still lives in it but it is about 1/4 the size as the rest was lost in a big fire.

Oh, I hope you get to go to Germany and Italy! I love them both but would pick Croatia as my favourite country on earth as it is far less commercialized than much of Italy. You are not charged for every tiny little thing such as toilets. It is too amazing for words. :)

love2travel Mentor

I'm so glad to see you finally get to take your trip. Enjoy! I hope it all goes smoothly and you have lots of sun and good times. We are headed to Athens, Greece in less than a week and while I am also dealing with pain issues and at times the thought of travel terrifies me (this is my first trip since diagnosis) I REFUSE to cancel this trip and let Celiac 'win'!

Thanks so much! The weather forecast looks pretty perfect. We have not yet been to Athens but really want to. Where else are you headed? I honestly think that Celiac is pretty much a non-issue for travel. It is not even on my radar because it was so easy last trip. But then we have a house there so purchase groceries to cook at home. However, we did go out often, too, and were so impressed with their awareness. So, you have nothing to worry about celiac wise EXCEPT I would highly recommend taking lots of snacks with you as gluten-free airplane food is absolutely deplorable in my opinion. Makes me gag.

Pain can truly be debilitating - not only physically but mentally so I know how you feel. I am absolutely fearful of this trip knowing how awful my pain is. In my travel journal from the last trip on the first night I wrote, "DO NOT EVER EVEN CONSIDER DOING THIS AGAIN. SO NOT WORTH IT. THE PAIN IS TOO GREAT. IT WAS LIKE BEING IN A TORTURE CHAMBER." However, after massage treatments and lots of drugs on the fourth day I wrote, "This is SO worth it. Do this again." My pain comes from accident injuries (multiple) and fibromyalgia and herniated discs. I am not kidding when I say I cannot sit longer than 30 minutes - literally. So, when we had lots of turbulence last time I begged the flight attendant to let me lie down in the aisle. I was desperate and crying and rocking back and forth in agony. I will never, ever forget that.

I tell myself that pain really sucks but I would rather be in pain in Europe than here. It is just GETTING there that is soooooooo rough.

The best of luck on your trip. Friends of ours were in Greece this year and traveled with a friend who has celiac. She was absolutely fine. (They spent several days in Athens.) Do you have travel cards printed for restaurants? I have them in several languages - they outline what we can/cannot have and describes preparation of food. They can be very helpful.

love2travel Mentor

Enjoy your trip, and be sure to tell us about all your great gluten- free finds when you get back!!

Thanks! I will be taking along some Genius bread as the gluten-free bread there (Schar brand) is very, very bad. It is like a cross between cardboard, drywall and crazy glue. However, I did read that recently they came out with fresh bread that you heat. Will have to try that. Will be going to a certified gluten-free gelato place in Venice as well as a gluten-free pizzeria. Now THEY know pizza! :D

jswog Contributor

Do you have travel cards printed for restaurants? I have them in several languages - they outline what we can/cannot have and describes preparation of food. They can be very helpful.

Can one purchase these somewhere? Or did you have someone make them for you?

Jen

love2travel Mentor

Can one purchase these somewhere? Or did you have someone make them for you?

Jen

I used a combination of www.CeliacTravel.com cards (free but a donation is happily accepted) and added a bit extra on preparation (i.e. a blurb on checking stocks in risotto for example). I had my husband laminate them and carry them to each country.

jswog Contributor

I used a combination of www.CeliacTravel.com cards (free but a donation is happily accepted) and added a bit extra on preparation (i.e. a blurb on checking stocks in risotto for example). I had my husband laminate them and carry them to each country.

Thank you!

love2travel Mentor

Thank you!

You are welcome! They are a great aid.

BabsV Enthusiast

Thanks so much! The weather forecast looks pretty perfect. We have not yet been to Athens but really want to. Where else are you headed? I honestly think that Celiac is pretty much a non-issue for travel. It is not even on my radar because it was so easy last trip. But then we have a house there so purchase groceries to cook at home. However, we did go out often, too, and were so impressed with their awareness. So, you have nothing to worry about celiac wise EXCEPT I would highly recommend taking lots of snacks with you as gluten-free airplane food is absolutely deplorable in my opinion. Makes me gag.

We're renting an apartment in Athens -- it was recommended by a friend and will allow me to cook. It is less than a 15 minute walk from the Acropolis with a view of the Parthenon from the balcony! I cannot wait...even better, there is a large supermarket right nearby so shopping won't be a hassle. As long as the air traffic controllers don't go on strike we should be ok! We will probably try a couple day trips, one to Delphi at least.

I have my travel cards for Greece (and Germany since we fly through Munich) and from what I've read eating gluten-free shouldn't be a big problem.

I figure I am far from 100% but not bad enough to miss out on this chance to see Athens (due to work and school schedules, etc. it was now or never!). If I have a bad day my husband and daughter can head off without me. At the very least I can sit on the balcony and look at the Parthenon!

I'll report back on the travel forum once I'm back.

Oh, that Schar bread is pretty bad isn't it?!?! Schar is one of the big gluten-free options here in Poland and while my family does ok with the pasta and some of the crackers the bread is a no go. Scarily enough, it is better than some of the local gluten-free bread products we taste tested before I went on an elimination diet. Those were ghastly.

love2travel Mentor

We're renting an apartment in Athens -- it was recommended by a friend and will allow me to cook. It is less than a 15 minute walk from the Acropolis with a view of the Parthenon from the balcony! I cannot wait...even better, there is a large supermarket right nearby so shopping won't be a hassle. As long as the air traffic controllers don't go on strike we should be ok! We will probably try a couple day trips, one to Delphi at least.

I have my travel cards for Greece (and Germany since we fly through Munich) and from what I've read eating gluten-free shouldn't be a big problem.

I figure I am far from 100% but not bad enough to miss out on this chance to see Athens (due to work and school schedules, etc. it was now or never!). If I have a bad day my husband and daughter can head off without me. At the very least I can sit on the balcony and look at the Parthenon!

I'll report back on the travel forum once I'm back.

Oh, that Schar bread is pretty bad isn't it?!?! Schar is one of the big gluten-free options here in Poland and while my family does ok with the pasta and some of the crackers the bread is a no go. Scarily enough, it is better than some of the local gluten-free bread products we taste tested before I went on an elimination diet. Those were ghastly.

How wonderful to have an apartment so close to the Acropolis and Parthenon! Wow. I cannot wait to hear all about the trip - I am a travel fiend.

I know what you mean about bad days - they do happen too frequently. But I am also amazed at how distractions can enable one to forget about pain for a moment.

Schar is an interesting company - some things (i.e. the dry breadsticks) are decent but the breads are horrid! I would love to see them come out with new products.

I, too, will report on my trip on the Travel forum. Have a glorious time! :)

lucia Enthusiast

Wonderful news! How delightful for your sister that you are taking her to Venice! Have a great trip!!!

(P.S.: I can't imagine you'd enjoy airline meals, whether they were gluten-free or not. ; )

mushroom Proficient

Thanks! I will be taking along some Genius bread as the gluten-free bread there (Schar brand) is very, very bad. It is like a cross between cardboard, drywall and crazy glue. However, I did read that recently they came out with fresh bread that you heat. Will have to try that. Will be going to a certified gluten-free gelato place in Venice as well as a gluten-free pizzeria. Now THEY know pizza! :D

Aaaah, I will be thinking of your enjoyment. Have a great time and beat the pain back!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.