Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Protecting Yourself From Cc At Other's Houses


salexander421

Recommended Posts

salexander421 Enthusiast

So, for you super SUPER celiacs :P How do you keep yourself from getting cross contaminated while at friend's and families houses or at a function like a wedding etc.? How do you keep from going crazy when away from your house!?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I act like a crazy person, refusing to shake hands and hug if someone has been eating. I also jump up and leave if there is too much gluten around.

Last event I went to was a wedding. I was sure I looked absolutely crazy. When I next communicated with the bride she apologized for not being more sensitive about the gluten crumbs, that she hadn't realized that they would be a problem. I guess I didn't look as crazy as I had thought. I just looked like I was trying not to get sick. I told her that she had no way to know and not to worry about it. It was a beautiful wedding.

T.H. Community Regular

At this point, I've stopped eating when those around me are, if they are eating gluten. I'll usually eat food on my own before a meal, use the meal time to socialize if I feel like I can do it safely, and then make myself food afterward, as well. But crumbs, and flecks of food, and hands that are touching food and then nudging my plate out of the way or moving my glass or whatever else - they are just too difficult eat around and stay safe. Made me sick too frequently.

When I eat at family houses where there's gluten, I wash my hands like crazy and treat every surface like it's potentially contaminated. If I touch ANYTHING (including the back of the chair to pull it out), then I wash my hands before they touch my food, my cup, my silverware, my mouth (the latter has been the hardest one to change my behavior on). I bring my own food. I have a mat, or paper towels, that I lay down under my plate and cup. I use my own plate and silverware that I bring with me. I now try to only eat with silverware when I'm out of the house, not my hands, because the silverware is easier to ensure cleanliness with. I bring my own dish soap and scrubby to clean off my dishes. I only bring glass or stainless steel with me so nothing can get cc'd that I can't scrub off.

I know there's a few other things we do that I'm forgetting right now, too. ^_^

It sometimes DOES kind of feel a little like I"m going crazy, but every thing I do now, I do for one of two reasons.

1. Not doing it has made me sick, a lot, in the past.

2. It makes things easier in the long run.

For the things that have made me sick, it usually took a while for me to really believe what the problem was. The hand washing, for example. I used to go to a hotel room with a microwave and I'd get my safe soap and water and wash the microwave down, wash down the countertops briefly, and then try to just use that area like I would at home. Where the microwave would be 'safe,' the countertops were safe, and I wouldn't have to wash my hands after touching them.

Didn't work. I always try a bit of whatever I'm cooking to take with me on the trip, now, so I know it will be safe for me when I'm away from home. And eating food I took with me from home, that I ate safely at home, I would get sick SO frequently, still. I wouldn't make it through a single DAY of a trip without getting ill until I started washing my hands every time I touched a surface, so that's what I do now...even though it's annoying as all get out!

Many of the things I bring with me, or utilize, are more convenience issues. I bring my own plate not because I can't get someone else's plate clean, but I would have to take out their plate and scrub the crud out of it with a scrubby and safe soap, every time I wanted to eat. Easier to bring my own where at least I only have to wash it.

When I didn't put a paper towel under my plate, if my fork fell off the plate, then I had to get up and go wash it off. With a paper towel underneath, it's still safe and I can just pick it up and use it. Things like that have become more commonplace.

It's still a lot of work. I don't like it (I'm a BIG fan of not working hard. :D). And I hope someday maybe I can think of better ways to do it...maybe where gloves more often, or have a routine that touches the least stuff so I have to do the least amount of handwashing. Even saw one of those little plate-sized tents people use to cover their food at an outdoor picnic and was thinking of how convenient that might be to keep gluten-free food safe around meal-times, possibly. At the moment, though, this is about as good as I've managed to get it.

I'm looking forward to hearing what everyone else does and getting some ideas!

Michelle1234 Contributor

I've stopped eating at people's houses. Even if they mean well they still get me sick. And they tend to get annoyed when they've specially served cut up fruit just for me and I won't eat it as the knife could have been used to cut bread just before or the cutting surface had crumbs etc. (I did get sick from cut up fruit one time and that ended my eating at someone else's house even if they try hard.) So instead I go out for a big meal just before going to anyone's house. If it is pot luck I bring one item that I can have and then I dive into it before anyone else can so there is no cross contamination with the serving spoon from touching a gluten item on someone else's plate.

Everyone looks a little confused when I say I just ate but it works better for me than getting sick. I make sure to eat a really big meal before going so that I'm convincing when I say I'm full and I'm not tempted when they are urging me to try just a bit of this or that as they know it is gluten free since they prepared it.

In terms of a wedding I did eat successfully at one but the caterer was very knowledgeable about gluten free food. If your going to something like that talk to the caterer and see how knowledgeable they are. If they aren't I would bring my own food and not eat theirs. In my case they served the food themselves, it wasn't self serve. Caters are much better about cleanliness than the general population. The non-gluten items were first in the food line so they were added to plates prior to any gluten items going on them and they had my gluten free bread wrapped up in plastic and set aside. I had a great meal and didn't get sick.

Michelle

salexander421 Enthusiast

Thank you everyone for all your ideas! I think the hardest part for me is not keeping myself safe but keeping my girls safe. I told my husband today that I'm just going to stick them in a bubble! Kidding of course :P We went to a wedding this past weekend and brought all our own food and we, all 3 of us, got sick. It's so frustrating! I'm taking this advice though and will just have to be a little more crazy than I already am...I think the nearing holiday season has me a little extra stressed about it all as well. Anyways, thanks everyone!

dilettantesteph Collaborator

Sometimes it is just better to feign illness and stay home. If you go you will get sick, so it's not really all that made up.

Strawberry-Jam Enthusiast

I don't know if I am super sensitive or not, but I noticed today that all the checkout lines at the grocery store, even the self-checkout ones, are covered in gluten crumbs because the grocery sells fresh-baked bread.

suffice to say I washed my jar of peanut butter and squash that I bought with soap and water when I got home. I also re-cleaned my cabinets recently and wiped down all the food that was already in 'em.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



salexander421 Enthusiast

I don't know if I am super sensitive or not, but I noticed today that all the checkout lines at the grocery store, even the self-checkout ones, are covered in gluten crumbs because the grocery sells fresh-baked bread.

suffice to say I washed my jar of peanut butter and squash that I bought with soap and water when I got home. I also re-cleaned my cabinets recently and wiped down all the food that was already in 'em.

I know! Last time we were at the store I let my girls ride on one of the little toy car shopping carts, I wiped it out really good because there were crumbs in it. Probably won't do that again! The stuff is everywhere!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,912
    • Most Online (within 30 mins)
      7,748

    westman3d
    Newest Member
    westman3d
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.