Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Introducing Myself And Thank You- Everyone!


PopcornSally

Recommended Posts

PopcornSally Newbie

I just started a gluten-free diet at the beginning of Sept. 2011. It was an act of desperation at the suggestion of a co-worker who had dramatic health benefits from going gluten-free. She said, "Just try it for a week and see what happens." My goodness, that was excellent advice. I am feeling much better than I have in probably the last 8 or 9 years. Still having the occasional semi-bad day, but overall MUCH better.

I am a 43 year old professional woman. I think I probably suffered from gluten-intolerance most of my life, most severely before puberty. No one ever thought to run tests on a kid who would be up all night with v. and d. after certain meals. We thought it was beef setting me off, or fatty foods, or broccoli, or, or, or. I somewhat outgrew the severe symptoms, but stress and one incredibly stupid crash diet brought it all crashing down around me a few years ago.

I have had "stomach problems" for so long, I pretty much accepted it as normal. I don't know how I thought having diarrhea every day, stomach pain, etc. was normal or ok, but I did. It wasn't until my arms and legs started feeling numb and achey all the time that I started to really worry. I suffered with this for, oh maybe 3-5 years off and on. My regular MD said my back and leg pain was sciatica and offered to rx a muscle relaxer. She said my concurrent diarrhea was probably just from taking ibuprofen. Sounded logical to me.

Anyway, I'm not going to go in to the whole, long history-- suffice to say I had a list of symptoms that seemed fantastical for many years. I started the gluten-free diet about 2 months ago. I found a good naturopathic doctor about a month ago. She ordered a bunch of blood tests on me, including a "celiac panel." At the time of my blood draw, I had been 99% gluten-free for 6 weeks, so I know the results are inaccurate. It still came out with the tTG antibody IgA at 17.75, where less than 20 is normal. I don't really care about a diagnosis as long as I feel better!

My naturopath had me start massive doses of sublingual vit. b12 and vit. b complex and vit. d3. Within a day or two the tingling in my arms and legs had diminished greatly. I can tell that stress makes things a LOT worse, so I'm trying to really take it easy. The other thing the blood test showed was a very low a.m. cortisol level and borderline low thyroid hormone. I'm on supplements for those, too. Let me tell you, in two months, I've gone from someone who struggled through each work day in a bad mood, alienating all my coworkers, sleeping away my days off; to someone who is not a complete crab all the time and actually have some energy to do a few things on my days off! It's great, hope my progress continues.

Just wanted to share my story in case it helps someone else. Thanks to everyone here for sharing. It makes me feel much more hopeful to hear of other people's experiences. All these years I just thought I was lazy and mean! :P

Tabitha


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



domesticactivist Collaborator

I wonder how many of the "lazy and mean" people out there are really just in poor health! I'm glad you have found your answers and can begin to heal now. Welcome!

adab8ca Enthusiast

what a great story!!!

may you continue to heal!

AVR1962 Collaborator

I am really glad you found your answers. It is wonderful you have been able to get the medical attention you need in connection with your symptoms, many of us here struggle for proper care. Feel blessed!

Tom2 Rookie

Thank God for family, friends and coworkers that care about our health and I am thankful you were wise enough to follow good advise.

T.H. Community Regular

Congratulations on feeling better! :-D It's really amazing to feel like a completely different person just after changing the diet, isn't it? I couldn't believe it myself!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - McKinleyWY replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Accuracy of testing concerns

    2. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

    4. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Healthy Gluten Free Foods low sugar that you found?

    5. - Scott Adams replied to lizzie42's topic in Traveling with Celiac Disease
      1

      Trip to Anaheim/Disney

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,245
    • Most Online (within 30 mins)
      7,748

    Christine Ranalli
    Newest Member
    Christine Ranalli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • McKinleyWY
      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those who are just beginning the journey like me. Marilyn 
    • Scott Adams
      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
    • Scott Adams
      This article is a few of years old, but my still be helpful.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.