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Does It Annoy You?

Googles

By Googles
in Coping with Celiac Disease

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Googles Community Regular
Googles
Posted

Need to Rant:

I am feeling really irritated lately. I have been glutened from CC four times in the last month and a half. I'm not sure exactly where it is coming from, but I think it might be my nannying job. So lately I've been really sensitive.

I just need to rant about this as when this came up I was talking about having had a nightmare where I was back staying with my abusive parents (who I will never stay with again) and they refused to have any food that I could eat in the house. Yes in real life I could go and get food, but in the dream I could not and they literally had nothing.

When I was talking about my nightmare someone who compared my celiac to their CHOICE of being vegetarian. I understand that some people have very strong feelings about their need to be vegetarian. Whether it be spiritual, or ethical. However, it is not the same as being vegitarian, where at least in the US you can pretty much be guaranteed in most, if not all places, these days (though may be somewhat limited in fast food restaurants) being able to get something. And not having to worry about the consequences of becoming sick if someone doesn't switch their gloves. I know after a long time some people have trouble digesting meat, but I've never heard of someone getting sick because of cross contamination with meat.

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mushroom Proficient
mushroom
Posted

Somehow or other it is much more acceptable to be a choice vegetarian diner than a necessary celiac diner :blink::rolleyes:

AVR1962 Collaborator
AVR1962
Posted

You are right on the money with this one!!!

beebs Enthusiast
beebs
Posted

Yeah - that would really. really annoy me too. And I was a vego for 10 years! It is nowhere near the same at all in any way shape or form!

kareng Grand Master
kareng
Posted

If a veg or a vegan accidentally got some chicken broth in the rice, it would not make them sick. If the kitchen made a salad and put chicken on it and the waitress took it off, they would never know and be fine. Restaurants don't have to be as careful. They can cook a veggie burger right where they just toasted a bun.

That said, a lot of veggie restaurants do gluten-free well.

RacerX35 Rookie
RacerX35
Posted

I have a vegetarian mother-in-law. I give the same response to her in that she has a choice whether or not to eat gluten products or stay vegetarian or whatever. She can be a bit oblivious of what she is doing or saying at times. Most of the time for me is when there has been some good looking cinamon rolls, or cookies or something. She will be standing right infront of me telling me how delicious the item is. I just look back at her and tell her how happy I am that she can enjoy it. From time to time she has eaten meat at family events, like Thanksgiving or Christmas dinner and it does not seem to bother her. The fnniest thing is that now she tries to say that she feels that she should go gluten free beacause the wheat sometimes makes her feel sick. I've never noticed that to be the case. I have told her as I have told others, that they are doing these things out of choice, while I am doing this out of neccesity. If I eat any gluten, I will end up having at least one seizure at any time following that. I drive 35 miles each way to get to work and home. My mother tries to be vegetarian from time to time, but I get the best of her when I cook steaks and chicken or other meats. She is always very concious of my diet restrictions though.

See ya!

Ray

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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