Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Symptoms After Going gluten-free


Tarantula44

Recommended Posts

Tarantula44 Apprentice

Hi, I'm new and have posted a few times...I have read there can be a great deal of discomfort at the beginning of a gluten and casein free diet. I only went off gluten one week ago (dairy as of two days ago) and have been feeling extra fatigued, have had headaches, lightheaded, and have been having pain and discomfort in my stomach and throat. I've had GERD for a while with occasional mild hiatal hernia that comes and goes for the past three years, but since I've gone off gluten the hiatal hernia is back and the GERD symptoms are pretty bad. Is this a normal reaction? Is hiatal hernia associated with gluten? Has anyone else had this happen? Thanks for any insight! t.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Eat simply.

Some of the gluten free substitutes eaten as replacements can be rough on you until you figure out which ones they are.

mushroom Proficient

Avoid processed foods, shop the edges of the supermarket for fruits, veggies, meat, fish, venture into the middle only for rice. nuts, and gluten free pasta. Don't eat soy or corn or dairy. There, that's the mantra! :lol:

Yes, GERD is a symptom of celiac. And when we go off gluten we often suffer from withdrawal which makes us feel worse than before. You have to stick it out for a couple of weeks and get through to the other side :) I would think hiatal hernia would be made worse if you were still suffering from bloating and gas from the gluten - don't know because I don't have one.

Tarantula44 Apprentice

Thanks to both of you. I am eating really simply, I haven't had any of the gluten free foods...no sugar, soy, eggs or nightshades either (I haven't eaten these in years). I have always eaten whole foods, never processed and always cook my own meals from scratch. I guess my question is do your existing symptoms from gluten get exacerbated for a little while when going off of it? That would explain this. I also have crazy anxiety. Ugh...I hope this clears up soon. I definitely will stick with it. I'm in for the long haul.

Skylark Collaborator

You may be going through a little withdrawal. Gluten and casein are processed into opiate peptides in your digestive system and if you had intestinal damage, they were getting into your bloodstream. Suddenly taking them away can be a bit of a shock to the system as you basically go through a mild narcotic withdrawal. I bet you're craving them too. Hang in there and you will feel much better in a few weeks as the peptides work themselves back out of your body.

Richie1 Rookie

After going gluten free about 8 weeks ago I had symptoms that I hadn't had before ( extreme fatigue,brain fog and breathlessness) my original symptoms had always been digestive.

As long as you stay on the gluten free it will get better just stick with it just remember how ill you felt before .You will get to know what foods cause you problems listen to your body it knows what it needs and what it doesn't ,I take a muti-vitamin supplement everyday and digestive enzymes and feel better than ever.

Hope you start to feel the benefits soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    4. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,430
    • Most Online (within 30 mins)
      7,748

    Shankel34
    Newest Member
    Shankel34
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.