Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Overreacting To All Illness?


sandsurfgirl

Recommended Posts

sandsurfgirl Collaborator

I feel like after the ordeal with celiac and taking 6 months to heal I overreact to any illness. If I get a cold I get so upset and depressed about it. I get upset and lose perspective on the severity of things. Like latey having nausea from iron supplements messing up my gut I was so down about it.

Anybody else feel this way?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

You may be being to hard on yourself expecting more from your body than it can give... Six months to heal from celiac is pretty darn good for most..

Acceptance of anything is sometimes hard to digest, you maybe telling yourself your okay with things but your sub-mind may be thinking different...causing an internal war within...

I truly believe the mind, body, spirit all have to be in sync...

Feel better soon....

Skylark Collaborator

Being ill with a virus changes my brain chemistry and I get upset and depressed. Are you that way too?

I'd definitely be upset about having my gut messed up again by a supplement after finally figuring out the celiac! That's just normal.

CR5442 Contributor

Totally with you all on this. It's taken so long to just relax and realize its just a cold or a strained limb, rather than something to do with celiac. I used to over-analyse everything! Some deep breathing is really helping. And some gardening. My little daughter and I planted over 200 bulbs today!

sandsurfgirl Collaborator

You may be being to hard on yourself expecting more from your body than it can give... Six months to heal from celiac is pretty darn good for most..

Acceptance of anything is sometimes hard to digest, you maybe telling yourself your okay with things but your sub-mind may be thinking different...causing an internal war within...

I truly believe the mind, body, spirit all have to be in sync...

Feel better soon....

I've been diagnosed for nearly 2 years now. It just took me 6 months gluten free to have one symptom free day. It's been a long process.

But you are right, even 2 years is not that much considering I was diagnosed at 40 and had celiac my whole life.

I was hospitalized the beginning of October for an adrenal problem and was in there 10 days. I have been exploring the mind body spirit connectedness thing a lot since then. How much illness I have claimed through fear and thinking sick all the time. I've realized how much negativity I took on because of being sick with celiac and I'm working hard to release that.

That all ties in with this thread too, because I'm realizing how much my perspective has been skewed by my battle with celiac. All those years of being sick and not knowing why has give me this fear of sickness so that I overreact to simple things. It's the first day of my period today (sorry to men who are reading this) and I got so down about being tired when I woke up and not feeling good.

I'm starting therapy again on Tuesday and I really want to work through this and get the right perspective.

mamaw Community Regular

Sounds like you understand the issues you face , now just to overcome them.. I know that can be difficult to say the least.. We all have different coping skills so what might be easy for some is very difficult for another....here's hoping at the end of this you will have smooth sailing....After I had my thyroid ablated I became very sad , tired& depressed..(doctors didnt give correct meds).if it doesn't stay in check with meds I have issues...

blessings

sandsurfgirl Collaborator

Mamaw, I always like to read your posts. I didn't know you had that thyroid treatment done.

I was coping really well until I was hospitalized for the adrenal stuff. Then they told me I probably had Cushings, then they said maybe not. Now I'm retesting for Cushings, but it's looking good that I don't have it.

This new health experience pushed me over the edge and coming back hasn't been easy. My dad is battling lung and brain cancer- so much worse than what I've faced and I feel guilty for having my own emotional struggles with illness.

I realized that there were still unresolved issues over celiac that were hiding under the surface.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sahm-i-am Apprentice

It sounds very much like Post Traumatic Stress Disorder. For years, decades even, you have been battling an unknown enemy. Journaling, reading, researching, testing, probing, all while you are suffering debilitating side effects; it is enough to cause PTSD-like symptoms. You have been your own health warrior, advocating and even questioning your doctors and your self. It is no wonder that you are startled at every bump in the road. Totally understandable.

I have finally relaxed a bit but it is a challenge at times. We have developed a special relationship with doctors, all doctors no matter how good they are - they have to prove themselves to us. For so long doctors have told us what they think and many times they are wrong. We have had to rely on ourselves. So, even when we find a doctor that understands or even diagnoses us, we don't trust that they know everything. We are skeptical. When someone is diagnosed with a broken leg or even the flu, you don't question the doctor. You are given a remedy/prescription and off you go. Complete trust. But celiac disease is tricky and we are finding that doctors, even the knowledgeable ones, don't know the nuances of how it affects everyone. The fact that it is an autoimmune disease makes it even harder. There is so much gray and not much black and white. All this makes us question everything about our health and our bodies. We are waiting for the next shoe to drop. Our bodies have abused us and we are waiting for the next blow. Man, I am just Little Miss Sunshine this morning, huh? :huh: Just trying to say that 'I hear ya!'

Chin up, sandsurfgirl - you are not in this alone! We totally get where you are in your journey.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.