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lucky28

Miserable ;(

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Increasingly over the last month or so my symptoms have returned worse than ever; D, cramps,gas,bloating etc. It actually seems worse than before diagnosis and going gluten-free. I am miserable. I have been gluten-free since august. I am exploring all possibilities for this; cc, other intolerances, possibly other issues. Possibly a ss? I am so tired of feeling like this! I try to have a good outlook and press on- but this is starting to get to me! I have decided that I am going back to my original gluten-free diet of rice, chicken, bananas and almond butter; the foods I had started with when I first went gluten-free and started to feel better and see how that goes. Thanks for letting me vent, I am just so uncomfortable and frustrated!


"They're my villi, and I need them NOW!"

Positive Biopsy- 08/11

Slightly positive tTG only- 06/11

Negative blood panel- 11/05

Diagnosed with IBS- 1981

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Your body may be de-toxing, or you may be sensitive& getting gluten from utensils,dining out or a product around your house....For instance pet food ???? scratched plastics,scratched pots & pans ...

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Mamaw, unfortunately it may be all of the above :( (Except the dining out) We are on a very tight budget here and it has taken me since august to get just some basic commercial gluten-free products. I guess I will go back to rice (rice cooker has remained gluten-free) and cooking my food in tin foil (no cc). Then instead of expanding my pantry, work on getting the pets gluten-free and some new tupperware for food @ work. Possibly ask for new pots and pans from santa ;) Do you think I NEED to get rid of my cast iron? I can probably count on one hand the # of times over the last 10 or so years it was used for anything glutenny. Do you think scrubbing and re-seasoning would work?


"They're my villi, and I need them NOW!"

Positive Biopsy- 08/11

Slightly positive tTG only- 06/11

Negative blood panel- 11/05

Diagnosed with IBS- 1981

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There does seem to be a lot of us that get sad/angry/depressed around the three month mark. Just seems like it is taking forever with only small if any improvement :(

I had to go back to basics. Meat, veg, fruit. Added ONE ingredient at a time and only one a day or every few days if I was having troubles. Makes it so so so much easier to find what works and what doesn't. Seems my body is quite happy now without all the chemicals/additives. I really hope this works for you too.

Make sure you find something to keep you calm ( i know.. sounds impossible). Read, walk, play with your pet, put on your favourite music. And get on here to vent or get more advice because without this place I would have been in the mental ward!

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Hugs to you Lucky28!


Diagnosed with Lymphoma March 2010. After surgery doctors said "Oops!"

Diagnosed with Celiac Disease April 2010. After endoscopy doc said "Aren't you glad?"

Uhhh.....yeah!

DD #1 ('99) tested negative on bloodwork but positive on 2 genetic markers. Went gluten free in July 2010 and has been symptom-free ever since!

DD #2 ('98) tested negative and has no symptoms. Didn't fork out money for genetic testing. Will watch and test regularly.

Husband tested positive in July 2010 and has refused to go gluten free. Uh huh, that's gonna bite him in the a** one day! (Pun intended!)

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Processed gluten-free stuff doesn't sit well with us. Staying away from it is for the best. We reseasoned our cast iron successfully, and got used stainless steel pots.


Our family is transitioning off the GAPS Intro Diet and into the Full GAPS Diet.

Gluten-Free since November 2010

GAPS Diet since January/February 2011

me - not tested for celiac - currently doing a gluten challenge since 11/26/2011

partner - not tested for celiac

ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.

dd - age 12.5, not celiac, has Tourette's syndome

both kids have now-resolved attention issues.

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