Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy

Chad Sines

By Chad Sines
in Coping with Celiac Disease

Recommended Posts

Chad Sines Rising Star
Chad Sines
Posted

How many of you die a horrible death with soy? I just had some reese cups last night and felt like i was going to croak. Wondering if it was from soy content. I have felt the same way when i consumed vitamin D with soybean oil. Just recently realized that vegetable oil is often soybean oil. It seems like a bunch of little pieces may be falling in place. My issues with soy seem much different than gluten, assuming it really is a soy issue.

I am almost tempted to do a shot of soy vegetable oil one day to know for sure...prolly not a good idea.

Hmmmmm..

Very curious indeed.

I am about ready to replace my GI system. If you want to trade, just let me know. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I am about ready to replace my GI system. If you want to trade, just let me know. :)

As bad as it is, I think I will keep mine -- at least it is one I am familiar with :P

IrishHeart Veteran
IrishHeart
Posted

How many of you die a horrible death with soy? I just had some reese cups last night and felt like i was going to croak. Wondering if it was from soy content. I have felt the same way when i consumed vitamin D with soybean oil. Just recently realized that vegetable oil is often soybean oil. It seems like a bunch of little pieces may be falling in place. My issues with soy seem much different than gluten, assuming it really is a soy issue.

I am almost tempted to do a shot of soy vegetable oil one day to know for sure...prolly not a good idea.

Hmmmmm..

Very curious indeed.

I am about ready to replace my GI system. If you want to trade, just let me know. :)

oh honey, you sooooo do not want mine! :lol:

The only way to isolate a food to see if you are intolerant is to eat something plain.

A Reese's cup could mean soy lecithin or it could be the chocolate or the peanut butter or sugar, or, or, or ....and you'd just be guessing.

If you really, really want to know if soy is a problem, eat some edamame or tofu PLAIN. NOTHING else. That's how you tell.

Marilyn R Community Regular
Marilyn R
Posted

Hi Chad,

Soy hurts me hard. After several months of going soy free, I'm tolerating soy lecethin now. (That's in all chocolate I think, so that's pretty important.) :)

Hang in there!

Chad Sines Rising Star
Chad Sines
Posted
  • Author

I had not even thought about soy lecithin to be honest until just recently. I was more looking at soybean oil. D'oh.

mushroom Proficient
mushroom
Posted

I had not even thought about soy lecithin to be honest until just recently. I was more looking at soybean oil. D'oh.

Some people can handle the soy lecithin, others can't. Same for the soybean oil. I have added back soy lecithin but still avoid the oil.

sandsurfgirl Collaborator
sandsurfgirl
Posted

The lecithin doesn't bother me but soy flour or soymilk, major major pain. Soybean oil has been okay. I have no idea why.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I guess my body just cringes when I see soy or soya (unless followed by lecithin) :blink: May try oil someday, but in the meantime avoid anything that says "vegetable oil" because that includes canola, safflower and sunflower too and one never knows what one will get :rolleyes:

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

I can't handle even traces of soya. I have neuro symptoms, the worst of which is a crushing depression, emotional confusion, temptation to self-harm. Then headaches, pain, reflux. Last time I got symptoms from eating a single piece of shrimp cooked in a jambalaya with soya-containing sausages. Before that I got symptoms from washing my face with a shower soap that contained soybean oil.

I avoid soya lecithin as well, because I feel like I reacted to it once upon a time. I've chewed pieces of gum with the lecithin in it once or twice without symptoms, but I don't chance it anymore. It's actually kinda nice that this rules out so many candies for me, because I used to have a raging sweet tooth, and having to avoid soya lecithin (which is in practically anything that contains chocolate) helps me rein it in.

in the States, vegetable oil = soybean oil. Crisco and vegetable shortening is all soybean shortening. I wish they'd just label the damn vegetables in the oil rather than hide behind "vegetable", especially considering most "vegetable oil" in the US contains ONE ingredient which is SOY.

here in Europe "vegetable oil" usually = rapeseed (canola) oil or sunflower oil. which is nice. I don't have to avoid things that list veggie oil or shortening or vegetable fat in the ingredients. (soya will be listed, due to its being an allergen, if it is contained in the product)

Austin Guy Contributor
Austin Guy
Posted

You will also find soy as part of the vegetable broth in canned meats and tuna. I found out the hard way. Soy hits me almost as hard as gluten and like gluten, it seems to be everywhere.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
    3. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to...
    4. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
    5. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,831
    • Most Online (within 30 mins)
      7,748
    ATownCeliac
    Newest Member
    ATownCeliac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.