Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Some Help Please

atown159

Recommended Posts

atown159 Newbie
atown159
Posted

Hi my name is Allen and I've been sick and miserable for the last 2 1/2 half months. It all started when one morning I ate panda express and then had a Latte from a local coffee shop. The moment I started drinking that Latte I felt so sick with nausea and burning upper abdominal pain. I fought out the pain and the nausea eventually subsided to where It was manageable. I felt a little better than evening and decided to play basketball and it all came back so quick. I went home thinking I had a flu or something else and just had Saltines and drank Ginger Ale for like a week. That week was hell because I couldn't eat anything and always felt nauseated from anything. Even water didn't make me feel good and I was always left with a burning aching pain in my upper abdominal region. This is all during my first year of college and I could barely go to school some days. I was finally able to start eating again about 2 weeks after the "latte" drink that has left me sick since. But no matter what I ate, it would make me feel nauseated and dizzy. After about a month of hell I finally started getting a hold of my symptoms a little better. I started taking ginger which helped the nausea a lot. I ate a little healthier more veggies and such but I never completely felt better. I never really had a problem with my bowel movements. From about the 15th of october to the 15th of november I started feeling better and better. I ate a lot of raw veggies and fresh foods. THEN ALL OF A SUDDEN around november 16th i started getting constant lower abdominal pain and lower back pain on top of all the other symptoms after coming off of a cold. I'm at a complete loss now. I went to the er 3 times ( one was for a collapsed lung that i've suffered from before) The other two times they just ran the usual tests and said everything was normal ( CT Blood xrays etc) I also had a barium swallow test which showed I had reflux. I'm going to see a GI specialist very soon. I'm so lost :(

Here are my symptoms:

Upper abdominal burning pain (usually happens after eating certain foods)

Nausea ( On and Off but usually occurs every day)

Headaches ( One times was very severe after I ate oatmeal cookies)

Abdominal bloating

Abdominal Pain after having a bowel movement

Lower back pain

Floating Stool even if i don't eat that much fiber

Tingling feeling at tips of hands and feet

Very fatigued after eating

Sometimes i get full really quickly

Lower abdominal pain/back pain while sitting.

I just want to a normal kid again:( Can gluten REALLY CAUSE SUCH SEVERE SYMPTOMS?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wenmin Enthusiast
Wenmin
Posted

Can gluten REALLY CAUSE SUCH SEVERE SYMPTOMS?

YES!!!!!

Di2011 Enthusiast
Di2011
Posted

Hi Allen,

Sorry to hear you are feeling so lousy :(

I guess by what you have described and the fact that you are here that you suspect gluten might be a problem.

You should consider keeping a diary of what you eat/drink (including brand names) and any subsequent reaction. It will be very useful when you go your GI appointment. Also take a written list of your symptoms (like you have written here for us). If you are having a rotten day you are likely to only tell the doc about how you feel there and then and not the whole picture.

There is a lot of energetic debate here about keeping gluten in the diet until all your tests/labs are done. Keep reading topics on here about testing because it is important that you are well informed about gluten if you suspect it.

How old are you? Do you live at home?

Marilyn R Community Regular
Marilyn R
Posted

Yes, and so can soy. Either/or can make you one sick puppy. Good luck. :)

rosetapper23 Explorer
rosetapper23
Posted

Because of the tingly fingers, I'm leaning towards celiac or gluten sensitivity...but you should probably eliminate soy and dairy for a while, too (and oats, because celiacs can be sensitive to oats even if they're gluten free).

In answer to your question, YES, celiac can cause the severe symptoms you describe. Many of us here can attest to that.

atown159 Newbie
atown159
Posted
  • Author

Thank you guys so much for the support! :) Yes I live at home at the moment. I was about to move out but then i got so sick all of a sudden :(. Some other symptoms i have are that I get really tired after I eat and i get really gassy from certain foods. I'm gonna start keeping a food diary :)

Di2011 Enthusiast
Di2011
Posted

Good positive action Allen !

Stay at home until you've sorted it out. It might takes some time so be patient with it. Get to that GI ASAP!!

Don't forget to keep a track of what you are drinking, and include brands of food/drink or where you ate etc. Detail where pain is, how much etc It's all about the details and will be very useful for you and to take to appointments.

I wish you well - you are on the right track to get there

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. marlene333
      - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
    3. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    4. catsrlife
      - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,263
    • Most Online (within 30 mins)
      7,748
    Elyn Joy
    Newest Member
    Elyn Joy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      Related issues

      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.