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We Need A New Drug

ncdave

By ncdave
in Coping with Celiac Disease

Recommended Posts

ncdave Apprentice
ncdave
Posted

What we need is a drug to counter react being glutened. I"d give 100 bucks for one pill or a shot right now! That would be a bargin not to have these flu like symptoms for two days, not even mentioning everything that comes after that.

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Chad Sines Rising Star
Chad Sines
Posted

They would probably use some kind of bonding agent that contained gluten as well as soy. :)

kareng Grand Master
kareng
Posted

They would probably use some kind of bonding agent that contained gluten as well as soy. :)

:lol: OMG! I'm laughing so hard! That is soooo true!

I'm holding out for a Titanium digestive system transplant. I have one in his first year of mechanical engineering with a friend in bio-engineering. I'm hoping to get them working on this soon.

lynnelise Apprentice
lynnelise
Posted

:lol: OMG! I'm laughing so hard! That is soooo true!

I'm holding out for a Titanium digestive system transplant. I have one in his first year of mechanical engineering with a friend in bio-engineering. I'm hoping to get them working on this soon.

That titanium digestive systems sounds like a dream come true! I want one too! :P

YoloGx Rookie
YoloGx
Posted

Ho ho!

Actually today I could use it.

Do try activated charcoal next time, assuming you don't have salicylate sensitivity like I do--I need to come up with a low salicylate alternative. The charcoal absorbs the gluten --as well as everything else--so don't do it all the time. I hear it lessens the cross contamination effect from gluten often down to 1 day. Its a hell of a lot better than 3 days or more...

Meanwhile L-glutamine helps, as does acidophilus, nattokinase, bromelain and papain. And having lots of green veggie drinks. I make mine in a blender: Parsely, lettuce, celery with a bit of water. Its a good pick me up any time actually.

Chad Sines Rising Star
Chad Sines
Posted

Can u really tell a difference with the glutamine? i have it and always wondered if it was worth the mild nausea.

YoloGx Rookie
YoloGx
Posted

Can u really tell a difference with the glutamine? i have it and always wondered if it was worth the mild nausea.

I would not take it if it made me feel nauseous. I'd use something else if it did cause that effect. Just shows we are all different.

Bea

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Booghead Contributor
Booghead
Posted

I take a gluten blocker that my mom got for me when I don't know if something has any CC on it. It seems to work but I've never tried it with a piece of cake or a big ole cookie.

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  • Posts

    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      I agree.  If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication).  I have two friends with this.  The PPI it does have side effects but they still have to take it.  
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      Do talk to your doctor about making changes to your medication.    I'm not a medical doctor.   I'm a microbiologist.  I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.   
    • knitty kitty
      New issue

      By knitty kitty · Posted

      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      Blood Test for Celiac wheat type matters?

      By knitty kitty · Posted

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    • trents
      Severe severe mouth pain

      By trents · Posted

      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
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