Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Has Anyone Had These Symptoms?


AndreaMarie

Recommended Posts

AndreaMarie Newbie

I'm hoping someone can help, I feel so sick and nothing seems to make it better.

Some of these symptoms I have had before but for the past month and a half it's increased, now it's daily. It all seemed to get worse after taking predisone and augmentum for a sinus infection, and stuffy ears... Which I've suffered from since high school. I had taken both in combination before but this time I had an allergic reaction to augmentum which included 6 days of diarhea. Then they put me on biactin. My stomach has been increasingly worse since and for the past 2 going on 3 weeks every single time I eat I get sick. Here are my symptoms:

Nauseau

Vomiting frothy white foam

Feeling like I have an air bubble stuck in my esophagus

Shooting pain in my back as soon as I eat, which stays for hours and is extremely painful. Usually in mid back, or between shoulder blades. Also ache in lower back, feels like my muscles are trying to suffocate me. Sometimes this also happens in my stomach muscles and it feels like I am being sat on. Hurts to breath and can't take deep breaths

Severe migraine like headaches as soon as I eat, it's like I can feel the pain go up my spine to my head. Nothing relieves the headaches. They are gone in the morning but as soon as I eat the return.

Pain in my stomach like cramping or burning and pressure, it's hard to tell but very uncomfortable. Radiates through to my lower abdomen. Feels like toxins are filling my entire abdominal cavity. It feels like pressure but my stomach does not look swollen.

I've lost 12 lbs in 3 weeks, I just look boney

The pain in my stomach slowly morphs into the kind of pain you get when you get really really hungry as if I haven't eaten in a week and my stomach feels like it's eating itself.

It makes me want to gorge so that pain stops but then when I eat I get a different pain.

I also often feel dizzy, shaky. And my limbs feel heavy and weak. I've lost strength


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaMarie Newbie

my bm are also unpredictable I'll go days without any than have diarhea, or have days when it's relatively normal but has mucus in it, or days when it seems pale. My abdomen is sensitive to touch too.

I went to the er last week on Tuesday. They told me I had a uti/kidney infection, though I had no obvious symptoms, they just saw the bacteria in my urine. I They put me on cipro. 2 days later the pain had only gotten worse. Went back to er. They had no clue. Said blood work was normal and only remnants of infection left. Suggested I see a GI.

The GI said they didn't have any opening till Jan but asked me my symptoms then fit me on for tomorrow. I'm scared I dont know what's wrong with me. My stomach seems to react the same no matter how mild the food is I put in it. I'm cranky and irritable and weak and frustrated.

It seems weird to have all this medical stuff go on t once. I asked an er doc if it could be all related bit he said no way. I feel like it has to be. I've never even had a uti before and now with all this I get one. Everything I eat I literally feel like I am poisoning my whole body. Can celiac do all this to you? Could that be the connection w all of this?

Booghead Contributor

Yea it could all be connected. Good Luck at the Dr. B)

mushroom Proficient

Make sure that he runs a celiac blood panel on you!

Roda Rising Star

Definately ask for the blood tests for celiac. You probably would benefit from a good probiotic to replace the good bacteria that the antibiotics killed off.

AndreaMarie Newbie

I just had my visit with the GI. I went through all my symptoms with the first doctor. Then another doctor came in and was like well most likely you have IBS because it's very common in women your age (29) and since I've had these symptoms all my life. I reminded him, though I did often vomit as a child, these symptoms have def had an acute onset (since antibiotics 6 wks ago) and have progressively gotten worse. And he said well IbS is the only thing that can cause both constipation and diarhea. I said would that also explain the headaches, knife stabbing pain on btw my shoulder blades that comes on directly after eating? He said well everyone has different symptoms. I reminded him I also had a uti/ kidney infection last week. He said probably just a coincidence. I felt like he was only focusing on the abdominal symptoms, age, and gender. And not really looking at the whole thing. I asked about gall stones he told me I was top young. I know this is not just IBS I feel like I'm poisoning myself everytime I eat. I feel like there are toxins spreading throughput my abdomen , and every skeletal muscle in my body. I don't feel like I'm being take seriously. Regardless they are running a celiac panel, thyroid screening, and h pylori. And I have an endoscopy next wk. Ibs just doesn't seem to fit all my symptoms, does ibs come on suddenly and make your whole body hurt even when you just eat something as simple as plain whole wheat bread?

Also I'm really worried about a lump that is very painful on the back outer side of my lower leg bone about two inches below tge knee. I rubbed it a little yesterday trying to feel how big it was, it was very painful to touch and now it really really hurts to walk. I did mention this to the GI just in case it might be related, but he was like Um let's focus on ur stomach. Has anyone had anything like this?

Celtic Queen Explorer
I felt like he was only focusing on the abdominal symptoms, age, and gender. And not really looking at the whole thing.

This is one thing I hate about American convential medicine. This need to focus on one thing and not take the entire body into account. I think this is also one of the reasons why Celiac and Gluten Intolerance are so hard to diagnose. They affect more than just one part of the body.

And he said well IbS is the only thing that can cause both constipation and diarhea

Well, I can tell you from my personal experience that Celiac can cause both.

I know this is not just IBS I feel like I'm poisoning myself everytime I eat. I feel like there are toxins spreading throughput my abdomen , and every skeletal muscle in my body.

Trust your instincts. You know your body better than any doctor. Unfortunately, since you're having your endo next week, you'll need to stay on gluten until that's done so you don't mess up your test results. After that, try the diet and see if it helps. After all, what do you have to lose. All you have to do is change your food for a little bit.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hurray for you, for sticking to your guns and getting the testing ordered. Major achievement :) No, I'm pretty sure it's not IBS ;)

AndreaMarie Newbie

One last thing, the GI put me on amitriptyline for the "IBS" , it's an antidepressant I guess but I guess used to treat ibs, he put me on 10mg. I reminded him I take 15mg daily of lexapro for anxiety and if I should worry about a drug interaction. He said no. But I looked it up on line and it said major drug interactions, and can cause serotonin syndrome. Any thoughts? I'm really not rusting thus guy!!!

mushroom Proficient

One last thing, the GI put me on amitriptyline for the "IBS" , it's an antidepressant I guess but I guess used to treat ibs, he put me on 10mg. I reminded him I take 15mg daily of lexapro for anxiety and if I should worry about a drug interaction. He said no. But I looked it up on line and it said major drug interactions, and can cause serotonin syndrome. Any thoughts? I'm really not rusting thus guy!!!

Again, good for you for looking it up. It is a good idea, too, to get all your prescriptions filled at the same pharmacy - that way the pharmacy can check for drug interactions too. I think I might be inclined to wait for my results and take them some place else, if he wouldn't even check for drug interactions when you raised the subject.

unknown Apprentice

I asked about gall stones he told me I was top young.

You are NOT too young for gallstones. I had my gallbladder removed in June (28 years old at the time) and had 20 gallstones. You could have gallstones and your doctor should have sent you to get an ultrasound. My GI said that no doctor is supposed to diagnose IBS until everything else is ruled out. He immediately sent me to get the ultrasound, put me on heartburn meds to see if the pain went away and set up an upper endoscope (that was canceled since I was getting surgery) before he'd say it's IBS. I must admit that he did say that it probably was IBS and he didn't think it was gallstones or anything else, but the tests are what prove things, not a doctor's thoughts. It was gallstones. I seriously can't stand doctors like this. It's so frustrating!

Good luck and I hope you find a new doctor that actually knows what he or she is talking about and doesn't just go by his or her feelings.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,980
    • Most Online (within 30 mins)
      7,748

    Susan Upchurch
    Newest Member
    Susan Upchurch
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.