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Traveling With Celiac


looking for info

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looking for info Rookie

So I'm pretty new to Celiac and I'm finding what I'm reading on here very helpful so I'm looking for some more advice.

I'm planning a trip not too soon but I've learned that I always have to be ready for that what if situation. I don't want to be stuck feeling horrible for myself or having that feeling of what do i do now

Im going to las vegas and looking for any tips on places to go for places to eat or any advice people can give about traveling and having to deal with Celiac.. :)


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anabananakins Explorer

Research, research, research! I can't help with Vegas but one thing I found really helpful when travelling to the states ( meeting up with friends etc) was to have a bunch of options in mind, for suggestions. People generally don't care where they eat, it helps if someone can make the decision. If you've already worked out all the options (and I keep notes because I know I'll forget) then it's much easier to go somewhere safe for you.

Plus carry snacks. Google map your hotel, nearby supermarkets, whole foods, safe restaurants etc. Keep notes (I have a little notebook). It's great if you can get a hotel room with a fridge. Hotels can often put one in your room (if it doesn't come standard) and if they know it's for a medical reason, they often waive the charge.

Hope this helps

Lisa Mentor

Vegas is easy - Google Las Vegas - gluten friendly restaurants/hotels.

elfie Newbie

Vegas can be hit or miss. I was there this past June and had done my research ahead of time and thought I had everything under control. The restaurants near where I was staying that I found online that had gluten-free menus were no longer in existence when I got there---other than the $$$ expensive ones.

Are you staying on the strip? Will you have transportation? Do you have to watch your money? Can you eat shellfish?

The high end restaurants on the strip like Mesa Grill have gluten-free selections but they are $$$ expensive and many of the choices are shellfish. The whole foods store is not far from the strip if you have transportation. The In-N-Out Burger has a double protein burger served with a lettuce wrap and a dedicated fryer for the fries---supposed to be a really great option for those with transportation or used to using public transit. There's supposed to be a couple little grocery stores, one on the south end of the strip near the ABC liquor but I never found it.

Caesar's was nice enough to provide a refrigerator for me at no charge because of the celiac, but they don't have microwaves in the rooms or provide them.

Serendipity 3, in front of Caesar's had a grilled chicken salad that was awesome. I wouldn't trust the food courts in the casinos. I tried to find something safe and paid for it. Also, it didn't seem like many of the restaurants in walking distance that weren't the expensive ones had no clue about gluten free, in my experience.

I'd pack some protein and crunchies in your checked baggage for those days you might not be up for the search for safe food, unless you have transportation or are comfortable using public transit in unfamiliar cities.

Some say they've had good luck with some of the buffets, but I wouldn't be willing to risk a buffet, especially on a trip.

Hope this helps! Have a great trip!

dandt Newbie

I'm actually going to vegas in january. I've found out that there is a bakery that is gluten free and newly opened (Open Original Shared Link). Apart from that I haven't done too much research. I haven't really travelled either and this will be a big challenge as it's an overseas trip for me. I read somewhere that the bigger places seem to be pretty good, and here in Australia I often manage to do okay just by asking for a steak or chicken/fish done in oil because I have an allergy if nothing else is available. I've actually eaten out quite a bit and haven't really been let down, so hopefully this continues! I figure that I should be fine. Just as a precaution I'm planning to bring food with me, mainly things like trail mix etc. I'm also going to pick up gluten free things from a supermarket while over there. I try to stay away from dairy but, if the need arises and being gluten and dairy free is too difficult, I'll try to be low dairy.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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