Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dermatitis Herpetiformis

snowy

Recommended Posts

snowy Newbie
snowy
Posted

Is a dignosis of dermatitis herpetiformis enough to clinch a celiac diagnosis? Would an endoscopic biopsy and blood testing really be necessary if the skin biopsy was positive? I feel much much better off gluten, but would like a "real" diagnosis for the benefit of my siblings and my children in regards to their medical history. Thanks in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

That is a " real" diagnosis of Celiac. It only occurs in Celiac as far as I know.

Open Original Shared Link

"A skin biopsy is sufficient to confirm the diagnosis of DH. DH is the skin manifestation of celiac disease."

Also:

Open Original Shared Link

mushroom Proficient
mushroom
Posted

You already have a real diagnosis - celiac disease :rolleyes:

hspichke Apprentice
hspichke
Posted

Is a dignosis of dermatitis herpetiformis enough to clinch a celiac diagnosis? Would an endoscopic biopsy and blood testing really be necessary if the skin biopsy was positive? I feel much much better off gluten, but would like a "real" diagnosis for the benefit of my siblings and my children in regards to their medical history. Thanks in advance!

I have a question about this. I will post a picture of my hands but I have this painful itchy blistery looking rash...does it look similar to yours? I am in the process of being diagnosed right now but don't see my Derm until Jan 6th. I'm afraid my rash will be gone by then because it usually comes for a wk or two then goes away for a month or two.. Did they do your biopsy when you had a rash or do you know if they can do it when it is not there.. If you don't know the answers that is fine just curious! Thanks :)

w1bf4p.webp

s13tk0.webp

pricklypear1971 Community Regular
pricklypear1971
Posted

I have a question about this. I will post a picture of my hands but I have this painful itchy blistery looking rash...does it look similar to yours? I am in the process of being diagnosed right now but don't see my Derm until Jan 6th. I'm afraid my rash will be gone by then because it usually comes for a wk or two then goes away for a month or two.. Did they do your biopsy when you had a rash or do you know if they can do it when it is not there.. If you don't know the answers that is fine just curious! Thanks :)

w1bf4p.webp

s13tk0.webp

Ouch!

hspichke Apprentice
hspichke
Posted

Sorry about that disgustingly large photo lol. I didn't know it would show up so big!

Di2011 Enthusiast
Di2011
Posted

Hspichke (what is that user name ???)

I have similar looking hands at the moment. Have you been on the DH thread on this forum?

If you haven't please take the time to read. If you have then it would be worth you

reposting to the DH thread.

Have you been officially diagnosed? Others as well as myself will be interested.

I started at the ankles and my (undiagnosed) DH has worked itself up - ankles up to now chest / upper arm

and lately my wrists and hands. I am hoping that it has worked itself out so to speak.

All of the regular DH tread members would be interested in your history.

Apology if you have posted and I missed it.

Diana

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lemontree1 Rookie
lemontree1
Posted

I get a similar looking rash on my elbows and knees. It comes and goes, and while I've found a few things that seem to trigger it (vitamin supplements), I don't know for sure what it is or what causes it.

lovegrov Collaborator
lovegrov
Posted

That looks a lot like my DH looked, but it's pretty hard to diagnose from a picture.

richard

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they...
    2. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      Was the card itself lost or just the record or both?
    3. Francis M
      - Francis M posted a topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally...
    4. trents
      - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Do you or anyone know alot about ibuprofen I wasn't sure if I was eating too much apple sauce. Something is making my pain so much worse I'm referring to the intense pins and needles in my feet and lower legs. Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,850
    • Most Online (within 30 mins)
      7,748
    TonyP27
    Newest Member
    TonyP27
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Francis M
      The Happy Tart review

      By Francis M · Posted

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they had a systems problem around that time.
    • trents
      The Happy Tart review

      By trents · Posted

      Was the card itself lost or just the record or both?
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Ibuprofen

      By trents · Posted

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.