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What About You? Bmi And Dh


Di2011

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Di2011 Enthusiast

I have just read this

Open Original Shared Link

and wonder what others experience has been ?

I was always overweight and bloated when on gluten. I can't remember when the bloating subsided but it was definitely an early sign that gluten wasn't for me. I could never lose weight unless I was exercising to the max and even then it was fat to muscle, not weight loss. I don't eat a lot differently now minus the bits of gluten containing products I never really liked and more often avoided - have lost weight and now wonder why I was a bloated, overweight, undereating gluten intolerant person. Hence coming across this article.

So was just curious about whether you are or aren't in the heavy/overweight range? Or not?


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lil'chefy Apprentice

I have just read this

Open Original Shared Link

and wonder what others experience has been ?

I was always overweight and bloated when on gluten. I can't remember when the bloating subsided but it was definitely an early sign that gluten wasn't for me. I could never lose weight unless I was exercising to the max and even then it was fat to muscle, not weight loss. I don't eat a lot differently now minus the bits of gluten containing products I never really liked and more often avoided - have lost weight and now wonder why I was a bloated, overweight, undereating gluten intolerant person. Hence coming across this article.

So was just curious about whether you are or aren't in the heavy/overweight range? Or not?

I very commonly have been bloated. I remember for my prom, when my date took me out to dinner, I ate a salad, b/c I was so scared of bloating up in my dress. I wake up feeling normal and unbloated, but go to sleep feeling fat and huge.

I have had a life long battle with my weight. When I was an infant the doctor instructed my mother to feed me cream of rice and ceam of wheat @ 2 months. Evidently I had colic and they concluded that I wasn't get satiated. That is officially when my life long battle started. When I was growing up I was on a perpetual diet. Geez, when I think about it it's no wonder I have such food "issues". Instead of my mom packing me chips, a pb&j, and an apple, she packed me 1/2 a pb&j, celery, and 1/2 an apple. I was still consistently 5 lbs. heavier than all my friends. MMy mom watched my diet like a HAWK! I was always hungry. My mom would make us cream of wheat (mine with sweet and low packets) everyone else's with sugar and maple syrup. My parents had me on a trampoline with hand weight for 1/2 hours at a time from the age of 7. My mom was beautiful and couldn't stand the idea of having a heavy child. She counted the calories I ingested, but still the tendency to be overweight persisted.

When I became responsible for my own diet things really spiraled out of control. As a young adult, I reached as high as 238 lbs. @ 5' tall. That's when I got serious about losing weight. I think when I started making my own choices, after so many years of restrictions, I gorged on everything imaginable (emotional eating). Since my DH was controlled with Dapsone, and my docs had placed no importance on the Gluten-Free diet, I was just eating til my hearts content. Honestly though, probably not eating anymore than anyone else my age, but for some reason, I always processed my food into fat, even gain weight differently than everyone else I know. I have to kick my A$% to llose weight; live to work out and do cardio. Now after having 2 children, one with IUGR (intrauterine growth restriction)I am only 10 lbs. over my optimum weight (135 vs. 125), but it is a constant long hard battle, that I must relentlessly fight harded than anyone I know.

I have been Gluten-Free for 4 days now.... Bloating is almost completely gone...pants fit the same in the morning as they do the night!

pricklypear1971 Community Regular

I started to gain weight right before I got pregnant...thought it was "turning 30". I had always put it on easily but could take it off easily.

After my son I just couldn't get moving (I think that was the second trigger, or nail in the coffin for me and autoimmune issues - pregnancy).

I never could get back in shape and lose the last 10-15 lbs of baby weight. Weight kept going up, I kept getting more exhausted regardless of diet. Couldn't exercise because my muscles just didn't work right - had no stamina.

Finally got on thyroid meds and most things improved except the muscle and stamina part.

Gained more weight, finally lost some, started gaining it back without cause as the Celiac worsened the last year.

I remember having a few moments of sanity when I saw pics of myself and thinking "you don't look fat, you look swollen". But that epiphany would fade....

When I got off gluten I realized how "puffy" I was. My skin literally started shrinking down on my skin. I haven't weighed, but I have lost weight. My clothes fit differently.

I really lost weight during the hypoglycemia phase. I think I gained some back since I haven't been working out and I have been able to eat a few sweets for the first time in months.

But yeah, I couldn't drop the weight and my muscle tone is terrible. That's from years of not being able to use them. I'd try to work out and literally just shake. I'd get dehydrated or something. It was terrible. And I KNOW WHAT I CAN LOOK LIKE WHEN I WORK OUT. That's what really sucks.

When my rash first broke out my ob/gyn insisted on screening me for diabetes. He said it was a diabetes rash. He was surprised when it came back undoubtedly negative.

itchy Rookie

I'm just a few pounds over my ideal weight, and have never had a weight problem.

Interesting study.

squirmingitch Veteran

I've never been overweight in my life. My mother wasn't either & I am now positive she had dh also although hers only occurred in her scalp.

eatmeat4good Enthusiast

I am 5 ft tall but have been up to 200 pounds several times in my life...always came with severe depression/anxiety and diarrhea. Later DH sores. Was 180 when I realized I had Celiac. Now 115 and eat way more than I did when I was fat. Muscle tone is still improving one year gluten free. DH was my worst symptom...and the last to go.

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    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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