Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Only Allergic To Rye?


azuroo

Recommended Posts

azuroo Newbie

I've been trying to narrow down my food allergies for several years now. I am now 100% the main part of my digestive issues have been caused by lactose intolerance, since Lactaid and avoidance of dairy as much as possible has really helped.

The other day I had skin prick testing for food allergies. I've spent forever reading about the different methods, and all seem to have positives and negatives, so I just decided to do whatever the allergist recommended to start with. They tested me for a whole huge list of allergens. I've been having a severe reaction to something--my lips and tongue swell, my head stuffs up, I feel nauseated for hours after. I haven't been able to narrow down what was causing it. The skin tests showed that I am severely allergic to only two things: rye and pistachios!

I've been trying to research this a bit and can't seem to find any info about being solely allergic to rye. I didn't react to wheat, oats, corn, or rice...at least the reactions weren't larger than the histamine reaction by however they grade the sizes. I think it had to be 3mm larger or something. I am also not allergic to any other tree nuts.

I realize now that a couple of the a major reactions I've had were after eating a loaf of rye bread, and after eating something from the Whole Foods bakery case where rye bread is on the shelf! So I believe I have a true allergy to it, the skin test was correct.

My kids also eat a lot of pistachios, which I crack open for them. I was probably eating it second hand off of my fingers.

While googling I can't seem to find anything about being only allergic to rye. It's always linked to gluten. Is it possible to just react to rye? Should I pursue some further testing? If so, what tests should I do? The allergist seemed to think that rye was it and I have nothing else to worry about.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

While the autoimmune reaction in celiac disease is caused by a group of similar proteins, allergies are usually specific. It is quite possible to be allergic to one of the gluten grains, while having no difficulty with the others (as long as you don't also have celiac disease).

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.