Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coeliac And The Mini Pill


nikky

Recommended Posts

nikky Contributor

Wasnt really sure where on the forum to post this, but thought this might be the best place.

Im an 18 year old (19 in a week and a day) female from the UK and since I've been 17 i've had problems with very painfull periods. Each month I find myself curled up in bed with a hot water bottle and unable to carry on with day to day activities. I've tried all manor of remidies, breathing excersizes, going for long walks, running, numerous medications and even herbal remedies, and none of it seems to help. Due to this my doctors have mentioned hormonal contraception, which, due to complications, is limited for me. The easiest of the available options is the mini-pill(progesterone only pill) which the doctors seem to think is safe for me. However, when I went to a drop in clinic for under 25s at a health centre yesterday, the nurse told me that she would be very reluctant to perscribe it to me due to the low absorbption associated with coeliac. I explained to her that my coeliac is well under control, I was diagnosed 4 years ago and that appart from a few accidents with being CC'd at the start, i havent had any flare ups since.

Despite this, she said that she would still be uncomfortable as she wouldnt know if the coating on the tablets would cause a flare up, but surely if i made sure there was no gluten in the brand i was perscribed before taking it, it should be fine?

I really need to get this under control as I'm starting a nursing degree next year and really cant afford to miss the time off Uni.

Would be grateful for any thoughts on this or anything you can tell me from your own experience?

THANKYOU :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Yes, I think if you can contact the lab that makes the pill to find out if it contains gluten, you should be fine. You'll just need to assure the nurse that you're aware that you might not be "protected" enough to have sex and that you'll use another form of birth control when necessary. That might be the real reason for her concerns. I didn't know until I was 47 that I had celiac, and I had been on birth control pills since the age of 15 because of pain and excessive bleeding (except for when I wanted to have children). I can attest to getting pregnant three times while on the Pill, but I miscarried each time. Malabsorption can be a real problem; however, I really don't think the nurse should have any concerns as long as the pill doesn't contain gluten.

lemontree1 Rookie

I can't give any advice concerning the pill, but still wanted to put in my 2 cents. I used to have very painful periods every month. Curled up in pain kind of stuff. I missed a lot of school and work from it. It wasn't until I started messing with my diet that I figured out the cause of my pain. I'm lactose intolerant, and my only symptom is painful periods. I don't know if your pain has the same cause, but I really think we do more harm by throwing drugs at our problems rather than trying to find the source of the problem and fixing that.

HappyHuman Newbie

Hi Nikki,

I took the mini pill for years before finding out my health problems were caused by Celiac and going gluten free. Despite that, I never got pregnant while on the pill and it was the method of bc on which I relied. I of course had no idea at the time that there could be a problem with malabsorption but for me, apparently, I absorbed it okay.

One thing my doctors stressed about the mini pill is that due to the low dosage it is vital to take it at the exact same time every day. Even a few hours delay, she said, can leave one with the possibility of not being protected. So I was extremeley careful about that and if your doctors didn't mention that - maybe you should be careful about taking it at the same time every day too. Figure out what time you can be consistent with. For me, I kept the pills with my toothbrush so I'd see them each morning when I brushed my teeth. I think more people use bedtime as their cue to take their pill, but my bedtimes vary so much I didn't think that would work.

As with any medication that you take - it is important that you find out for certain that there is no gluten contained in the pills. It can be difficult to determine with generic so I always get name brand medicines. You can call the company to find out whether there is gluten in the coating or the filler of the pill. If there is, just get a different type. Don't accept any medication with gluten in it. It is odd that your doctor is worried about the coating. Perhaps she doesn't understand that you can find out whether a pill contains gluten. Perhaps she also doesn't understand that now that you've been gluten free for so long, you don't have absorption problems. Stress to her that you are careful not to be glutened and you might also find some articles to show her which would support the fact that absorption gets better as you heal. You might also find out the brand of pill and do some homework finding out whether it is gluten free or not so that you can present her with the correct information.

Hope this helps :-)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,169
    • Most Online (within 30 mins)
      7,748

    Annette Hill
    Newest Member
    Annette Hill
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.