Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Do For The Pain?


TTNOGluten

Recommended Posts

TTNOGluten Explorer

I have recently seen a number of posts about many pain related issues with celiac. Seems like many folks including myself experience rib cage pain, and back pain, as well as abdominal pain. I don't know if this ever improves, but I sure hope so, as it is debilitating at times. It is truly hard to imagine that an intestinal process can cause all of this, but it certainly seems to be a recurring theme for a lot of us?

Was wondering what most folks do to get relief of the pain, most of the docs I have seen seem to be very unfamiliar with the pain portion of this disease, be it abdominal pain or more widespread muscular/bone pain??

Looking for some advice I guess. I have a very hard time working with this pain every day, I have to take breaks and lay down, and get a lot of brain fog feeling especially in the morning, like I am out of my head, I guess like an out of body experience, or drunk feeling kind of??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Reba32 Rookie

I guess it would depend on which country you live in as to which off the shelf or over the counter pain relievers are available to you. For me though, an anti-inflammatory like ibuprofen or naproxin (advil or aleve) works, along with a heating pad on my gut and on my back.

In Canada there's also Robax Platinum, which has the anti-flammatory plus a muscle relaxant and that helps if you can get it.

As for the brain fog, unfortunately there's not much to do about that, you just have to wait it out. The effects can last anywhere from a week to a month.

TeknoLen Rookie

I used to take plain aspirin but stopped when I learned that aspirin could be partly responsible for weakening my gut ecosystem. Now my "painkiller" is an Epsom salts bath and sleep...

YoloGx Rookie

I am starting to use acupressure. There are a number of books online that look very helpful. I got a couple myself just recently. I am finding it is really helping both me and my boyfriend who also has severe gluten intolerance!! Exercise also helps, once I am over the worst of it. I also find that taking detox herbs really helps since usually the liver, kidneys and lymphatic system are stressed as well as the intestines--which then usually affects my back, neck and joints. Thus dandelion root, marshmallow root really help take away the inflammation and thus the pain. If I am really under it I might also take either Oregon grape root for a while or Barberry root (I usually just take these last two herbs for at most 5 days--then go off them for say 3 or 4 days). Nettle tea can help too. Parsley, celery and lettuce blended in the blender into smoothies also is a great pick me up that helps with the detoxing process.

IrishHeart Veteran

I see you are still battling the brain fog, huh? Sorry hon.

You are SURE there's no gluten getting in???

You started the probiotics, right? They will start to calm the inflammation down.

Okay, the pain is from inflammation and be careful using too many OTC anti-inflammatories as they are gut-irritants.

You can try warm epsom baths as TeknoLen suggests.

White willow bark is a natural anti-inflammatory and less rough on the gut.

St. Joseph's baby aspirin.

Use warm compresses --or a heating pad or hot water bottle--or the gut and ribs ---but I use ICE on my spine/back pain. Knocks down the inflammation.

The rib cage and abdomen pain diminished for me by about month 5. The spine pain lingers, but I have other issues going on from the celiac.

Plus, you are getting over the gall bladder surgery.

Hope you get relief soon.

GFinDC Veteran

H. Pylori also pain on left side under rib cage

I use Altoids peppermints some. When I have gas in my stomach it makes the pain worse. So I take the Altoids to help get it out. I used to get very foggy when gassy with gi inflammation issues going on. It may help quite a bit to get the gas out. I used to do stretches and bends to get it out.

Pepto Bismol may help also as it can coat and soothe the gut. Be aware Pepto Bismol will turn your stool black due to the pink coloring in it. Black stool is a sign of internal bleeding usually, but pepto causes it also.

I am pretty sure I have an H.Pylori infection going on so I plan to get some mastic gum for that. See linked thread for more info.

I take aspirin also, and marshmallow root, and l.gutamine, DPP-4 and okra.

Ginger tea may help some. It tastes good anyway.

A little rum seems to help at night too. :D And some melatonin for sleep.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    2. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    4. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,085
    • Most Online (within 30 mins)
      7,748

    kk007
    Newest Member
    kk007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      I agree.  If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication).  I have two friends with this.  The PPI it does have side effects but they still have to take it.  
    • knitty kitty
      Do talk to your doctor about making changes to your medication.    I'm not a medical doctor.   I'm a microbiologist.  I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.   
    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.