Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Found The Culprit

Austin Guy

By Austin Guy
in Food Intolerance & Leaky Gut

Recommended Posts

Austin Guy Contributor
Austin Guy
Posted

I've been feeling unwell for a few weeks and trying to find the cause has been killing me, but I think I finally have it. I reread labels on all supplements. The Spring Valley Vitamin E I started on a little while does not list soy as an ingredient, but it is not mentioned along with the things it is free of: gluten, salt, sugar, artificial color or flavor, starch, wheat or lactose.

That got me suspicious so I went to the manufacturer

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Congratulations on the detective work. Hope that does the trrick for you. :)

eatmeat4good Enthusiast
eatmeat4good
Posted

Thank you for sharing that information. I didn't realize it either and I am very grateful. Hope you are feeling great soon.

GFinDC Veteran
GFinDC
Posted

Vitamins have got me so many times, I am very careful of them now. Good job on finding that issue!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Yep..vitamin E, also called topherol got me too! It took a while to figure out. I get violently ill from soy oil..and lethicin too. I've read that a lot of people don't react to the oil or lethicin..but I guess we are ones who do?

I'm SO glad you figured this out. I know you've been wracking your brain trying to get to the bottom of what was getting you.

Wishing you speedy healing!

Austin Guy Contributor
Austin Guy
Posted
  • Author

OK, I thought I had this figured out, but I got hit again this morning. I've been taking GNC Solotron as my multi-vitamin. The product website states clearly that it does not contain soy. BUT when looking more closely at ingredients, the E is from d-alpha Tocopheryl Succinate. Looking further into that, I found that it was derived from wheat germ, but is now derived from soybean oil. Either way, it is a problem. So are labeling laws in the States.

Hope this helps someone else out there.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,655
    • Most Online (within 30 mins)
      7,748
    mcarrigan1958
    Newest Member
    mcarrigan1958
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • kopiq
      almost a year in recovery - so many questions about to give up

      By kopiq · Posted

      thank you so much. this makes so much sense. I just started taking vitamin b complex today (https://www.amazon.ca/Absorption-Methylated-Methylcobalamin-Flush-Free-Igennus/dp/B01787EPEE?rdc=1) and will continue with it to see how I feel. I also have 1000mg vit d pills but i do not absorb fats and when i first tired them i got a severe migraine for three days. Once i no longer taste fats or foods linger in mouth and throat I will start taking the vitamin d pills.   thanks again, really appreciate the info, I have a drs appointment in a few weeks and will look into a dietician.    
    • knitty kitty
      Burning sensation when I wake up

      By knitty kitty · Posted

      Hi, @Zuma888, Hashimoto's commonly occurs with Celiac Disease.  Those HLA genes code for other autoimmune diseases along with Celiac.  Hashimoto's and Celiac overlap.  People with Hashimoto's produce anti gluten antibodies, so a gluten free diet is definitely a must.  It may be safe to assume you've got Celiac Disease as well.   People with Hashimoto's often have deficiencies in Vitamin C and Thiamine.  Vitamin deficiencies are common in Celiac Disease.  A deficiency in Thiamine can manifest as Gastrointestinal Beriberi with digestive upsets and changes in bowel habits.   Your burning sensation and extreme fatigue for days after working out may be due to a lack of Thiamine and B vitamins.  If you don't have sufficient Thiamine, lactic acid can build up in muscles causing that burning sensation.  Anybody remember Jane Fonda's workouts?  Her catch phrase was "Feel the burn" meaning work out so hard, lactic acid builds up causing the burning sensation.  Thiamine and the B vitamins are needed to clear that lactic acid and repair muscle damage. Supplementing with a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, and magnesium would be beneficial to help you feel better.  Blood tests for vitamin deficiencies are inaccurate.  Take Thiamine and B vitamins, then look for health improvements.  If not needed or absorbed, excess B vitamins are easily excreted in urine.  
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thanks so much.  🙏  I see they have them on Amazon. I'm all over it.  I'll let you know how it goes. 
    • knitty kitty
      Struggling to get into a good pattern

      By knitty kitty · Posted

      @Rejoicephd, So glad you checked your multivitamin! I like Life Extension brand.  Their BioActive Complete B Complex has active forms of the B vitamins.  Note that one serving is two capsules, so you can take one capsule at each of two meals, boosting opportunity for absorption.   Life Extension also makes Benfotiamine (100 mg).  Take one at each of two meals in addition to the B Complex.  Don't take thiamine and B vitamins close to bedtime, you may be too energized to sleep.   I like Life Extension's Neuro Mag, a form of magnesium that can get into the brain easily, which helps immensely with improving headaches and muscle tension in the neck.   I'm so glad you're enjoying the forum!  
    • Jessica H
      Help Interpreting My Lab Results? (updated)

      By Jessica H · Posted

      Hi trents, just an update to my post, I had my follow up with my gastroenterologist. Scheduled my endoscopy for July 17th and got my biopsy results back July 28th. I have my official diagnosis now and I do in fact have Celiac disease. I'm slowly starting to switch my diet over to completely gluten free. My goal is to be completely gluten free after Christmas this year. I know I should be stopping completely now, but I am have a really hard time with change so my doctor told me I could do this gradually if it was easier for me. Now I know though and can make myself better with simple steps, no medication and have peace of mind knowing what I have is not the end of the world. Thanks again for your support. I've learned a lot over the last couple of months.
×
×
  • Create New...