Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Supplement


Tigercat17

Recommended Posts

Tigercat17 Enthusiast

HI everyone,

I've been doing really good on the gluten free diet and ever since I stopped all my vitamins seven months ago.

Just some past information- I got extremely sick for vitamins that were supposed to be gluten free last year.

I feel really good now, but I just got my blood work back and I'm a little low on vitamin D. It was 23. So now my doctor wants me to take a vitamin D supplement, but I'm really scared to take any vitamins even if they say gluten free.

Does anyone take a vitamins D supplement that they trust and are super sensitive?

My endo doctor suggested taking a 5,000 prescribed dose once a month that he was going to prescribe for me , but I'm not sure about that either.

Thanks everyone! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Have you checked into Bluebonnet vitamins? I'm taking their chewable Vitamin D3 (2000 IU) that I buy at my local health food store. Open Original Shared Link

Free of milk, egg, fish, crustacean shellfish, tree nuts, peanuts, wheat and soybeans.

Also free of yeast, gluten, barley, rice and sodium.

Hope this helps...

rosetapper23 Explorer

I agree--Bluebonnet is a good supplement manufacturer, and I've used a number of their products. Currently, I take a Vitamin D supplement (50,000 iu) from a compounding company, and it also has never given me any cc trouble.

By the way, 5,000 iu on a monthly basis is an extremely low dose. Many of us take 10,000 iu daily....and now I'm forced to take 50,000 iu several times a week during the winter months.

domesticactivist Collaborator

Fermented cod liver oil is a good way to get vitamin d and a. Green pastures tests for mercury and has good practices. They are having a really good sale right now so it might be a good time to try it out.

dilettantesteph Collaborator

Hi, I am another who felt much better when I stopped taking vitamins and supplements. Then, I too tested low for vitamin D. I looked into liquid vitamin D. I thought that with the most concentrated form possible, the little bit that I would have to take would be unlikely to cause a reaction. I got one for which my daily dose is a fraction of a drop. I diluted it with a bit of safe oil so that I need one drop a day. It is labelled gluten etc. free. It's LifeExtension Vitamin D3 2,000 IU Liquid Emulsion.

In the summer I don't take it since I spend enough time outdoors.

Tigercat17 Enthusiast

HI everyone! Thank you for taking the time to reply. I really appreciate all the advice. :)

My doctor just called me and he's going to put me on 50,000 vitamin D once a week for 6 weeks and then recheck my vitamin D counts. I'll have to call the pharmacy to find out if it's gluten free.

No wonder I'm getting colds more often... in the last two months I got three colds. When I was gluten free and taking vitamins I never got sick, but I know I was still getting CC from a lot of the gluten free vitamins. And then all of the sudden I got extremely sick from them. I would really love to find a multi that I could take. Even though I eat pretty healthy, I'm sure I'm not getting all the vitamins I need. I'll have to start another post just for multi's. :D

Hugs to you all! Thank-you! :)

TeknoLen Rookie

Sounds like you are all set going forward. I have had good luck so far with Xymogen brand D3 drops, 5000 IU per day...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tigercat17 Enthusiast

By the way, 5,000 iu on a monthly basis is an extremely low dose. Many of us take 10,000 iu daily....and now I'm forced to take 50,000 iu several times a week during the winter months.

Sorry -I meant to say 50,000 iu. :D

AndrewNYC Explorer
Open Original Shared Link
  • 3 weeks later...
Scotslass Newbie

Hey..:)

I'm in Scotland and I get calcium and vitamin D3 chewable on prescription so its free.. I have to take it because my bone density test showed I had a degree of osteopenia.. :(

So like living with coeliacs I just have to get used to taking that for the rest of my life.

  • 3 weeks later...
abaker521 Rookie

I am discovering I'm a "super sensitive" celiac too and got sick off several vitamins that were organic and labeled "naturally gluten free." I too just discovered I was low on vitamin D (my level was at 19 when normal is around 30-40). My doctor recommended 400IU daily.. which seems very minimal compared to other dosages I'm reading here. I went to Walgreens and got D3 in the "Finest Natural" brand. I have been fine using it so far. It makes me laugh because I used to buy the most expensive, organic vitamins and they all made me sick.. but a $3.00 brand from Walgreens works best for me. My body is silly. :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.