Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Supplement


Tigercat17

Recommended Posts

Tigercat17 Enthusiast

HI everyone,

I've been doing really good on the gluten free diet and ever since I stopped all my vitamins seven months ago.

Just some past information- I got extremely sick for vitamins that were supposed to be gluten free last year.

I feel really good now, but I just got my blood work back and I'm a little low on vitamin D. It was 23. So now my doctor wants me to take a vitamin D supplement, but I'm really scared to take any vitamins even if they say gluten free.

Does anyone take a vitamins D supplement that they trust and are super sensitive?

My endo doctor suggested taking a 5,000 prescribed dose once a month that he was going to prescribe for me , but I'm not sure about that either.

Thanks everyone! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Have you checked into Bluebonnet vitamins? I'm taking their chewable Vitamin D3 (2000 IU) that I buy at my local health food store. Open Original Shared Link

Free of milk, egg, fish, crustacean shellfish, tree nuts, peanuts, wheat and soybeans.

Also free of yeast, gluten, barley, rice and sodium.

Hope this helps...

rosetapper23 Explorer

I agree--Bluebonnet is a good supplement manufacturer, and I've used a number of their products. Currently, I take a Vitamin D supplement (50,000 iu) from a compounding company, and it also has never given me any cc trouble.

By the way, 5,000 iu on a monthly basis is an extremely low dose. Many of us take 10,000 iu daily....and now I'm forced to take 50,000 iu several times a week during the winter months.

domesticactivist Collaborator

Fermented cod liver oil is a good way to get vitamin d and a. Green pastures tests for mercury and has good practices. They are having a really good sale right now so it might be a good time to try it out.

dilettantesteph Collaborator

Hi, I am another who felt much better when I stopped taking vitamins and supplements. Then, I too tested low for vitamin D. I looked into liquid vitamin D. I thought that with the most concentrated form possible, the little bit that I would have to take would be unlikely to cause a reaction. I got one for which my daily dose is a fraction of a drop. I diluted it with a bit of safe oil so that I need one drop a day. It is labelled gluten etc. free. It's LifeExtension Vitamin D3 2,000 IU Liquid Emulsion.

In the summer I don't take it since I spend enough time outdoors.

Tigercat17 Enthusiast

HI everyone! Thank you for taking the time to reply. I really appreciate all the advice. :)

My doctor just called me and he's going to put me on 50,000 vitamin D once a week for 6 weeks and then recheck my vitamin D counts. I'll have to call the pharmacy to find out if it's gluten free.

No wonder I'm getting colds more often... in the last two months I got three colds. When I was gluten free and taking vitamins I never got sick, but I know I was still getting CC from a lot of the gluten free vitamins. And then all of the sudden I got extremely sick from them. I would really love to find a multi that I could take. Even though I eat pretty healthy, I'm sure I'm not getting all the vitamins I need. I'll have to start another post just for multi's. :D

Hugs to you all! Thank-you! :)

TeknoLen Rookie

Sounds like you are all set going forward. I have had good luck so far with Xymogen brand D3 drops, 5000 IU per day...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tigercat17 Enthusiast

By the way, 5,000 iu on a monthly basis is an extremely low dose. Many of us take 10,000 iu daily....and now I'm forced to take 50,000 iu several times a week during the winter months.

Sorry -I meant to say 50,000 iu. :D

AndrewNYC Explorer
Open Original Shared Link
  • 3 weeks later...
Scotslass Newbie

Hey..:)

I'm in Scotland and I get calcium and vitamin D3 chewable on prescription so its free.. I have to take it because my bone density test showed I had a degree of osteopenia.. :(

So like living with coeliacs I just have to get used to taking that for the rest of my life.

  • 3 weeks later...
abaker521 Rookie

I am discovering I'm a "super sensitive" celiac too and got sick off several vitamins that were organic and labeled "naturally gluten free." I too just discovered I was low on vitamin D (my level was at 19 when normal is around 30-40). My doctor recommended 400IU daily.. which seems very minimal compared to other dosages I'm reading here. I went to Walgreens and got D3 in the "Finest Natural" brand. I have been fine using it so far. It makes me laugh because I used to buy the most expensive, organic vitamins and they all made me sick.. but a $3.00 brand from Walgreens works best for me. My body is silly. :rolleyes:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.