Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Palpitations...


Elizabeth5220

Recommended Posts

Elizabeth5220 Apprentice

I've been gluten-free--essentially with a few potential CC incidents--for almost 5 weeks. The first 10 days or so I felt better--overall, but this past week has been awful; heart palpitations, fatigue, chills, brain fog, depression.

Anyone feel worse before they felt better?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

I'm so sorry you're going through all of that Elizabeth, and welcome to the forum.

My experience could be totally different than your's, but I had many similar reactions. It turned out that I couldn't tolerate some "safe" grains (quinoa, certified gluten-free oats), dairy or soy on top of gluten. Then corn hurt me. It took awhile for me to figure that out, and I went through surgery (parathyroid) that I'm pretty sure wouldn't have been necessary, but the doctors told me it would stop the heart palpitations (aka tacycardia) and high calcium levels.

My recommendation is to go very basic with your diet, like root vegatables (especially ones you've never eaten before), meat and fresh fruits or vegetables. Avoid gluten-free processed food for now. I had a problem with nitrates for awhile, avoided wines and preserved meats for several months.

I promise it get's better. For awhile it seemed like all I could eat was certain vegetables and meat and fruit, but there's a world of recipes to whip them up in different ways. Good luck to you, please let us know how it goes.

Macbre Explorer

I can relate to the heart palpations, however I did start taking a multi-vitamin about 3 weeks ago and I have to say that I haven't had any heart related issues. It took me a full 10 months to start having more good days than bad days. It takes a while to heal and you will find that there are going to be foods that you can't tolerate for a while that will give you the same symptoms as gluten foods. I had an issue with nightshades early on, but can tolerate them now. I've been gluten-free 1 year.

I did find I was getting cc by my perfume, spray in hair conditioner, hand sanitizer and pet food. Most people don't think about these things, but they can make you just as sick as eating food with gluten.

I'm feeling much better now and I know you will to. It takes time and patience. You might have to cut other things out in the beginning so your insides can heal and then slowly add them back in.

Good luck!

AVR1962 Collaborator

Elizabeth, have you had all your vit levels checked? It took awhile for my high blood pressure to go back into normal range and for my heart palpitations to go away. My calcium went back to normal almost immediately as soon as I took gluten out of my diet. It wasn't until I got my vits straightened out that the rest followed. Did your calcium levels go down? I tried to send you the info linking hypercalcemia and celiac but wasn't sure it went thru. I put a post in this section, "Coping" if you were still interested, you'd have to scroll down a bit.

momofmadeleine Newbie

It's very likely a magnesium deficiency. Some 88% of the US population is magnesium deficient; it's worse in Celiacs because we don't absorb magnesium as well. Buy any kind of magnesium that ends with "-ate" (chelate, citrate, aspartate, etc.). Do not buy magnesium oxide because it absorbs poorly -- it's best used for treating constipation. Also do not buy a combination of calcium and magnesium because calcium blocks the absorption of magnesium (they combine them because magnesium assists the absorption of calcium). Start by taking one. If it doesn't give you diarrhea, take two the next day. If two don't give you D, take three the next day. Take the highest dose that does not give you D. You don't need to worry about overdosing because your body will just expel what it doesn't need; it's not toxic.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    2. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    3. - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

    4. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,808
    • Most Online (within 30 mins)
      7,748

    mhendy123
    Newest Member
    mhendy123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • nanny marley
      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.