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I Had Hoped To Never Return To This Place


zus888

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IrishHeart Veteran

So did he do a scraping?

It's only necessary when the doc cannot distinguish it from other rashes.

If both docs say it's shingles, it's probably shingles. :(

We could speculate all day long whether or not resuming the gluten was the catalyst for it, the point is, it's here now.

SUZANNA---With the addition of antivirals--- and I believe you said antibiotics as well??-- into your system--I hope you take some probiotics as well to help out your gut.

Autoimmune diseases run in packs....this thing may have erupted from chronic stress and a compromised system. Reintroducing gluten has not done you any favors, IMHO.

Having to wait a few weeks before procedures is a very good idea. Again, IMHO. Your body is run down apparently and an active virus needs to be treated.

I still do not understand why you are doing this gluten-challenge right now, after being gluten-free for so many months, but like everything else you do in your life, it's your decision.

Rest up & Good luck.


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zus888 Contributor

Nope. He was sure of it based on looking at it and hearing my history. I did explain that I have celiac and have been eating gluten and that perhaps that the rash is DH. But he was adamant and completely confident that it is shingles.

On another note, my thyroid is watched closely - every 6 weeks I am tested. I was hyPERthyroid for a little bit, but none of my symptoms were relieved (constantly cold, forgetful to the point of being unable to remember to take my meds which is unusual for me, fatigued).

pricklypear1971 Community Regular

Nope. He was sure of it based on looking at it and hearing my history. I did explain that I have celiac and have been eating gluten and that perhaps that the rash is DH. But he was adamant and completely confident that it is shingles.

On another note, my thyroid is watched closely - every 6 weeks I am tested. I was hyPERthyroid for a little bit, but none of my symptoms were relieved (constantly cold, forgetful to the point of being unable to remember to take my meds which is unusual for me, fatigued).

If you are satisfied with a dx without a scraping, that's up to you.

I would have forced the scraping since so much hinges on the dx (scheduled surgery )and you want further proof of Celiac if applicable.

Gemini Experienced

If you are satisfied with a dx without a scraping, that's up to you.

I would have forced the scraping since so much hinges on the dx (scheduled surgery )and you want further proof of Celiac if applicable.

You do not need a smear or scraping for the diagnosis of shingles...only if, like IrishHeart said, it's hard to distinguish from other rashes. Shingles only ever appears on one side of the body...not on both sides at once so that's a huge clue. You can also run fevers with it since it is a virus. Other rashes do not usually come with fevers. You cannot have surgery if you have an active rash on your body. It needs to heal. I know it can be annoying to have to wait but you cannot heal well from surgery with a possible virus or something else going on.

domesticactivist Collaborator

This is VERY interesting. I HAVE decided to get back on the diet, but just not yet. And I am probably going to try to focus on whole foods in general, as opposed to the processed foods. I figure, if I'm going to diet for my health, I might as well go all the way. Processed foods can be something I eat as a treat or on rare occasions, but not as a regular thing. It might be a good time for a life-change. I just have to get to the point where I'm ready to do it.

YES!!! <3

IrishHeart Veteran

from herpes zoster clinic.

"It is not clear what prompts the virus to reactivate or "awaken" in healthy people. A temporary weakness in immunity (the body's ability to fight infection) may allow the virus to multiply and move along nerve fibers toward the skin. Although children can get shingles, it is more common in people over the age 50. Illness, trauma and stress may also trigger a shingles attack.

People with a weakened immunity for any reason are more prone to develop shingles. They are also more likely to have a serious form of it.

How is Shingles diagnosed?

The diagnosis is based on the way the blisters look and a history of pain before the rash on one side of the body. The dermatologist may scrape skin cells from a blister onto a glass slide for examination. The glass slide is then examined under a microscope for changes characteristic of zoster. If there is any doubt, blister fluid containing virus can be sent to the laboratory for special testing."

Just FYI :)

Marilyn R Community Regular

Interesting. I have been plagued by the herpes virus since I was 16 years old. I've always wondered if it was from sharing lipstick with a friend (still rememeber her name) or my Aunt Crystal (she had it too). For the first time in well over three years I felt like I was getting a herpes sore on my lip. I applied ice twice, then took am anti-anxiety medication. The sore never appeared, and I slept like a log. The silver lining in the sow's ear appears too be that we never get sick from common illnessess. Our defense system is up to British Standards. I think the anti-anxiety medication simmered my system down, don't use it often but was happy with the outcome this time.


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    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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