Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Real?

egallag

Recommended Posts

egallag Rookie
egallag
Posted

I was diagnosed about a week ago and have been gluten free since. Is it odd that I was happy to get the diagnosis? I mean it has been years of suffering, to finally have an answer and an answer that is something I can control, was such a relief I did not even think about what it would take to change my life (well not right away anyway).

So I am working on changing my life, went out immediately after my appointment and bought some Gluten free to get started. I started researching before getting my results, just in case. I ordered a couple of Gluten free cookbooks and a shopping guide (I should get them today!).

Here is the "Is it real?" part. I feel like a new person already, it is amazing! I addition to Gluten free, I have started taking Lactaid for my Lactose intolerance (I could not bear not having gluten or dairy, so I figure stop one and put up a defense for the other for now). I have also added a daily dose of DanActive.

I have not had an "episode" in 3 days. It is such an odd sensation to not feel dread when I eat that I keep waiting to feel awful and when I don't I am inclined to want to dance :). And since I am not totally exhausted all of the time, I just might dance.

Don't get me wrong, I am completely freaked out by the whole thing and found myself day dreaming about Perogies and Pizza. But when I eat something and that inevitable pain and discomfort does not follow, it is great.

That's all for now, I just had to get that out there. Thanks for listening, I am happy to have a place to come to talk about things and ask the questions that I am sure will come.

Beth

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeNewB Rookie
GlutenFreeNewB
Posted

Congratulations on feeling better already! It is an awesome feeling to finally figure out what helps. Be very careful eating "gluten free" processed foods at first. Sometimes it takes a while before your body is ready for anything processed. Try eating meat, vegetables and rice at first; foods that you prepare yourself. Try adding in new foods slowly - one at a time while checking for a reaction to each one. After a couple of months, it gets much easier and you start to feel like a "normal" person again. Keep on dancing!

Skylark Collaborator
Skylark
Posted

Yes, you can stop pinching yourself. It's real. :)

Nicolevh Newbie
Nicolevh
Posted

;Oh you are not alone! I was diagnosed about a month ago. My switching to totally gluten-free has been slow (I went on a trip just a couple of days after my dx and I did not adhere to a strictly gluten-free diet). But, I have been gluten-free for about a week now, and I do notice a huge difference. I'm not running for the bathroom or the couch immediately after eating. Tonight I tried Tinkayada's (sp?) penne with mozzarella, tomato, and basil and it was amazing. I was prepared for it to taste different but I thought it tasted exactly the same (and I'm Italian and grew up with the homemade stuff so that's a pretty high review). A slightly different texture but It was way better than I ever thought it could be. In it's defense I used olive oil so it just made the pasta a little slippery and hard to get it to stay on the fork- flavor wise I thought it was spot on. With the exception of just a few items I found everything I needed/wanted at my local Safeway so that makes it even better. I did have some frustrating moments on my first major shopping trip and had to bypass some items to wait until I could come home and research if they were gluten-free but that's just part of the learning curve. My tip: take a printout of what isn't gluten-free AND what is. I had the "what isn't" sheet but then when something wasn't on it I got confused. Was it not on there because it is gluten-free or because the list was from a few years ago? Ex: soy lecithin wasn't on my 'do not eat list' but was on the gluten-free one. I wish I had both with me. Overall, like you, I am so happy to have a dx that is something I can control and that I am already feeling the results from!

  • 4 weeks later...
Simona19 Collaborator
Simona19
Posted

I

Don't get me wrong, I am completely freaked out by the whole thing and found myself day dreaming about Perogies and Pizza.

I can help with this part: https://www.celiac.com/forums/topic/89355-gluten-free-potato-pierogi-with-sour-cream-and-roasted-onion/page__pid__769296#entry769296

Aly1 Contributor
Aly1
Posted

Oh man, why did someone say pierogies. I love pierogies. I am now having a major craving!

Skylark Collaborator
Skylark
Posted

Oh man, why did someone say pierogies. I love pierogies. I am now having a major craving!

Yeah, and my chance of pulling off that recipe is slim. I had enough trouble making stuff like that with gluten dough! I can just picture dough sticking to my rolling pin and the uneven dough and the tears and all the filling coming out in the pot while I boil them. :lol: :lol: :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BrittLoves2Run Apprentice
BrittLoves2Run
Posted

I am on day 7 of Gluten free and I haven't had ONE joint ache, almost zero nausea, or a headache in almost a week. I can hardly believe it. If i feel this decent already, I can't wait to see how I feel in a few months.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.