Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi I Am New To This Forum


natgirl

Recommended Posts

natgirl Newbie

HI my Name is Natalie i was diagnosed with coeliac disease 6 yrs ago and so was my eldest son i was 32 at the time, i was diagnosed after a life threatening bout of pneumonia, and asked to be tested as my eldest sister had been diagnosed because of her diabetes, all i knew is i had been sick my whole life and if I had it wanted to start diet and finally get better and that I did. I was then later diagnosed with lactose intolerance and fructose malabsorption. and I am sure i am not the only one out there with all three.

cheers Nat


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hi Nat, and welcome.

You are quite correct that a lot of diseases/problems seem to be co-riders with celiac(coeliac). One most of us can count on is lactose intolerance until we can heal our guts and start making the lactase enzyme again. And Yes, there are many on here with fructose malabsorption, although I don't believe I am one of them. I have problems dealing with lectins in my diet. It is often a difficult task figuring out what our other problems are, and that is why many of us have gravitated here, to bounce questions off others with similar problems. And then hang around to be bounced off of too :)

Hang around and make yourself at home.

natgirl Newbie

Hi Nat, and welcome.

You are quite correct that a lot of diseases/problems seem to be co-riders with celiac(coeliac). One most of us can count on is lactose intolerance until we can heal our guts and start making the lactase enzyme again. And Yes, there are many on here with fructose malabsorption, although I don't believe I am one of them. I have problems dealing with lectins in my diet. It is often a difficult task figuring out what our other problems are, and that is why many of us have gravitated here, to bounce questions off others with similar problems. And then hang around to be bounced off of too :)

Hang around and make yourself at home.

thanks i will do that I like learning from others as well as people hopefully learning off me, will be great being able to bounce things off others people that have similar problems

ciamarie Rookie

Hi Nat,

I'll second what mushroom said and wanted to add my welcome. I've learned a ton already in the short time I've been here, so I'm sure you will too.

xjrosie Apprentice

Welcome.

I'm a newbie too, for my daughter who is diabetic/celiac.

This place is great for resources, in my few days here I've learned so much more.

jeanzdyn Apprentice

I was diagnosed with "possible" Celiac disease back in November (2011).

That is what they said to me "possible Celiac disease", however I was not surprised to hear that, and I know that I do indeed have Celiac disease. I know because so many of the symptoms fit and because if I observe a gluten-free diet I feel so much better. I struggled for too many years with symptoms that doctors seemed to find puzzling, and then I finally talked to a gastroenterologist because I wanted to have colonoscopy. After spending 4/5's of my life trying to figure out how my myriad of symptoms fit together it is a relief to know that I actually have a medical condition and it is not "all in my head". On my own I had tracked my symptom-ology down to Sjogren's Syndrome and now to learn that it can be related to Celiac Disease --at least I was not far off in tracking down this thing that has made me so sick for so long!

I had experimented with taking wheat, in the form of breads and pastas, out of my diet and that helped with some of my symptoms. Anyway, it has been a very long journey, and while no one is happy to have Celiac Disease, I am happy to know what on earth is wrong with my body!

Scotslass Newbie

Hello Nat girl..I'm a newbie too.. Welcome..

I've had coeliacs for 9 years but I suspect I have had it since childhood after spending 4 months in hospital grossly underweight and vomiting after eating as a 5 year old ..However it was not picked up and I was discharged as ' failure to thrive'

However I did thrive despite that and was diagnosed after a DVT in my arm landed me in hospital and blood tests showed anaemia..So an endoscopy confirmed coeliacs..

And teh rest is history


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



navigator Apprentice

Welcome to the forum, natgirl. This forum is not only great for information but also a haven when things are not going so well. You know that you can come on here and that there are friends waiting to give you advice, assistance, understanding and a good giggle! I discovered it the day after my diagnosis and in those first few months when I was struggling to get my head round being coeliac it was a wonderful support.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,015
    • Most Online (within 30 mins)
      7,748

    CravingADonut
    Newest Member
    CravingADonut
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.