Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About My Baby


LabyrinthRunner13

Recommended Posts

LabyrinthRunner13 Rookie

Ok, so, my baby so far, has shown no signs or symptoms of having celiac. She is growing normally, has normal stools and no skin condition.

I know that celiac can crop up at any point in a persons life, and that there is no point in worrying about what MIGHT happen, but, I was just wondering, are there statistics as to how likely it is that she will develop it? She seems to have inherited my immune system. Her allergist tested her positive for allergies to dogs, peanuts and walnuts.

I know that celiac doesnt usually show up on the skin prick test, but that's how we actually caught on to mine in the first place. My skin prick test was radically positive for wheat and oats. Her's was negative. So...I guess what I want to know is, what are her chances? And if I wasnt diagnosed till I was 24, will she wait just as long?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

According to the Celiac Disease Center at the University of Chicago, she has a 1 in 22 chance of getting it. You might find this Open Original Shared Link interesting. That doesn't necessarily mean she will get it or if she does, I don't think any statistics are available as to when.

Aly1 Contributor

I personally am having my daughter go gluten-free for the first few years of her life, just to be safe. The only childhood symptom I had was "growing pains" in my legs that were pretty bad. Gluten has all but ruined my adult life - I am in a wheelchair thanks to it - and I see my daughter who takes after me in so many ways... I am already gluten-free and I think until she's 5 or so we'll keep her mostly gluten-free till then. I say mostly because I don't want her to miss out on holiday treats etc without being sure there's a reason to. I figure by that age she'll be better able to verbalize what's happening to her. I guess I just don't want to theoretically gluten her for years so I'm not taking any chances. We are getting testing done first (she's not gluten-free just yet) and then just soon it regardless of test results. Mine were negative, but in my case that's irrelevant!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.