Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel So Bad, Was Careless

stanleymonkey

Recommended Posts

stanleymonkey Explorer
stanleymonkey
Posted

feeling so bad, made spaghetti for dinner last night, made normal noodles for me (trying to use them up, on a tight budget, can't afford to throw out food!), and made her own, in her an pan,own dish etc. Pug her plate down on table where she was sitting put mine on the other side, theorem baby woke up, told her repeatable I went to get her sister. Sensations and started wait g mine, she stepson much. Within 2 hours her "eczema" that had disappeared came back with vengeance, she is so miserable, was restless last night, and has barely eaten, wouldn't even eat things she normally begs for, I feel so bad, going to doctor tomorrow, as G I insists she has no bourgeoisie, and doctor wants a record of every thing that could be gluten related to pass on book g this doctor might pull his head out of his ass and get us the reversal to the people we need to see to make sure she is healthy and keep her thatway

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

feeling so bad, made spaghetti for dinner last night, made normal noodles for me (trying to use them up, on a tight budget, can't afford to throw out food!), and made her own, in her an pan,own dish etc. Pug her plate down on table where she was sitting put mine on the other side, theorem baby woke up, told her repeatable I went to get her sister. Sensations and started wait g mine, she stepson much. Within 2 hours her "eczema" that had disappeared came back with vengeance, she is so miserable, was restless last night, and has barely eaten, wouldn't even eat things she normally begs for, I feel so bad, going to doctor tomorrow, as G I insists she has no bourgeoisie, and doctor wants a record of every thing that could be gluten related to pass on book g this doctor might pull his head out of his ass and get us the reversal to the people we need to see to make sure she is healthy and keep her thatway

???? Spell- check having its way with you?

Might want to hit " edit"

domesticactivist Collaborator
domesticactivist
Posted

Damn you, autocorrect!

I think I got the gist, though. It's a horrible feeling when we gluten our kids :( Hopefully she'll recover quickly, and now you know one more thing to be extra careful about.

I've gotten my son a few times. Most recently I used his toothbrush when I was in the middle of a gluten challenge. How terrible is that??!?!?!?!!!

Another time I served him food I brought to our friend's house on a dish that she had washed with a glutened sponge and air dried where she bakes.

We have our stupid moments, and sometimes it costs our kids. It's hard to forgive ourselves when it happens, but we have to. I am so vigilant in general that I hope at least that helps the mistakes take less of a toll in the long run.

stanleymonkey Explorer
stanleymonkey
Posted
  • Author

auto correct on the HP touchpad is nasty!

Darn210 Enthusiast
Darn210
Posted

auto correct on the HP touchpad is nasty!

Makes you really have to read between the lines, eh? ;)

I think every mom of a gluten free kid has been there, done that. We learn our lessons (no one wants to be the reason why their kid is suffering) and become more diligent. Hopefully the kids will learn one, too. I know it may be hard to do, but you need to point out to her that it was the gluten that made her feel so bad. Even though this event was accidental, use the experience to drive home the fact that she can't eat that stuff. You will not always be in control of what she is eating. If she learns this lesson now, hopefully down the road she won't do it to herself at a friend's or at school.

  • 2 weeks later...
GFSAHmom Rookie
GFSAHmom
Posted

Before my son was diagnosed with Celiac, I was trying to get him to eat ANYTHING! So i found the "healthy" packets of CREAM OF WHEAT... Poor kid :( It was Poison! We've all been there!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd replied to Rejoicephd's topic in Coping with Celiac Disease
      8

      Draft gluten-free ciders… can they be trusted ?

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos. I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, ...
    2. Wends
      - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    3. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to...
    4. Gigi2025
      - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      64

      How Come Gluten Didnt Bother Me In Italy

      Hi Christiana, Many thanks for your response. Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless). I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his...
    5. Wends
      - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed?...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,710
    • Most Online (within 30 mins)
      7,748
    new journey
    Newest Member
    new journey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Inconclusive results

      By Wends · Posted

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.