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Just Got The Phone Call!


BrittLoves2Run

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BrittLoves2Run Apprentice

I just got a phone call from my doctor's office stating that I am positive for Celiac. They said my numbers were abnormally high indicative of Celiac. I almost cried when I heard this. I no longer feel crazy and i'm looking forward to feeling normal and healthy again!!!!


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revenant Enthusiast

This is wonderful news! I'm so happy for you, and the next chapter of your life

Lisa Mentor

Great news!!! Your recovery is in your hands and we are here to help guide you to feeling wonderful again :D

love2travel Mentor

Great news for you!

Many of us also went through a short period of gluten withdrawal. I did - I felt ill (not terribly) and dizzy and extremely hungry for about a week then that disappeared. Just sort of warning you in case it happens to you - it may not!

Either way, you are on your way to a whole new world. Poke around this site - there are incredibly knowledgable people around who are willing to respond to any questions. :) Lots of interesting and helpful topics.

Just focus on how awesome you will feel! Looks like you are already.

BrittLoves2Run Apprentice

Thanks everyone. I'm so happy. I went out to Common Market tonight and bought a bunch of gluten-free foods and even got a gluten-free vitamin and toothpaste. It's going to be a lot of learning and researching but i'm so glad I'm pointed in the right direction. I called my mother to tell her she should consider getting tested as well.

navigator Apprentice

Thanks everyone. I'm so happy. I went out to Common Market tonight and bought a bunch of gluten-free foods and even got a gluten-free vitamin and toothpaste. It's going to be a lot of learning and researching but i'm so glad I'm pointed in the right direction. I called my mother to tell her she should consider getting tested as well.

I hope your Mum pays more attention to you than I did to my daughter! My daughter was diagnosed in March 2009 and immediately told me I should be tested. I had been very ill at the end of 2008 and my ferritin was 4. I picked up a bit but was never 'well' (just didn't realise I was ill). I then went downhill again in summer of 2009, thought I was anaemic again but tests showed I was only borderline. My daughter kept telling me that she thought I had coeliac disease and that I should ask to get tested. Don't ask me why but I was completely convinced that I wasn't coeliac and ignored her advice. To cut a long story short, I got very ill and eventually had to give my career. I went to the G.P. my daughter attends and he immediately told me that he was 90% sure that I was coeliac and following blood tests, endescopy and biopsy I got official diagnosis. If I'd listened to my daughter in the first place I would still have my career. She loves being able to say to me 'I told you so' !!

I'm now eight months down the line and have improved greatly. I still get the odd bad days but on my really good days I feel better than I have at any point in my life. Tell your Mum my story if she's reluctant to get tested.

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      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
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      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
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