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Vent.

Metoo

By Metoo
in Coping with Celiac Disease

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Metoo Enthusiast
Metoo
Posted

Ugh. I am just having a rotten day. It is mostly my fault too.

I quit drinking milk a few weeks ago. And it stopped all the residual symptoms I was having, after going gluten free. My stomach was decreasing in size, no more rumbling in my stomach!

So..what did I do last night, I was starving and the almond milk I had just bought wasn't cold yet...so I had a bowl of ceral with regular milk.

Ugh...(smacks forhead)...

Now I am in discomfort, my stomach is HUGE, and all day my belly has been rumbling. I guess I will never make that mistake again!

To top it off my dermatologist... After I described to him what happens to my skin after eating gluten, talking to him about DH and a biopsy just writes in my chart, 'avoids gluten' and that was that...clearly he is not versed in celiac. I guess I was hoping via magic he would be willing and knowlegeable about biopsies.

So...I will never have a diagnosis, I can't do a gluten challenge I am afraid of doing one. I am okay with that, I just wish Doctors knew more. Ugh. I need to meet a medical professor so I can sway him to include the topic more heavily during school.

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IrishHeart Veteran
IrishHeart
Posted

Sorry you're not having a good day, hon (hug)

Me, too, Metoo :) I mean, I am too. (okay,that was confusing :lol: )

What happens if you use lactase enzymes--do you feel any better?

I wonder if they would help. Have you been gluten-free for a while?

I have learned that as long as the intestinal wall is still healing, seemingly any food is going to be a problem if those enzymes are not being produced to digest it.

I do not know how long you have been recovering, but if it makes you feel better to have company :) today, I am a year post- DX and still have some lingering issues. My most recent discovery? All legumes now--not just soy --and anything with high histamines (aged cheese, wine, vinegar, pickles, tomato, strawberries...blah blah blah)

I just put milk products back in--for the 3rd time :rolleyes: ...we'll see if I feel like you in a day. :rolleyes:

The answer? Avoidance and then try it again.... Yeah, thanks, Doc I get that part <_< duh.

As for a DX? It is frustrating but if you KNOW this is what it is, then you are already DXed.

Someday, we can only hope that the medical community will embrace the fact that many more people are afflicted by this disease than they think and stop jerking people around. The sad fact that it takes the average person nearly 11 years to be DXed speaks volumes about what they do NOT know.

Hang in there! I hope you feel better ASAP!

Cheers,

IH

llama3 Apprentice
llama3
Posted

Now I am in discomfort, my stomach is HUGE, and all day my belly has been rumbling. I guess I will never make that mistake again!

I know what it's like, I've been conducting lab experiments on my body for three months now and every experiment involves at least a day of misery. Fortunately, the pain will pass, but the knowledge will remain! In the meantime, hang in there.

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