Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Myself By Mistake Wow My Bodies Response!


cathlaur

Recommended Posts

cathlaur Newbie

Well I had the blood test 10 days ago and then started my gluten free diet for stomach pain issues. I have done really well and am surprised at how I am feeling better 60% which is awesome. I am an avid walker and today my gluten-free and I walked up to the local Saturday market. One of the vendors has awesome home made tortilla's spelt kamut, wheat and corn. I of course can only have the 100% corn. We finished our 13k walk in the snow and I headed home. I put the fire on and made a homemade quesadilla. I thought it was weird as my mouth kind of burned and then my stomach was off, but I just went on with my day. Later on in the afternoon my 16 year old daughter said mom those tortillas you bought have wheat in them. I of course said THEY DO NOT!. I looked and I was so upset. I picked up the corn/wheat ones by mistake. OH boy NO blood test has to come back abnormal to tell me I allergic to wheat. My mouth and throat are still burning. My fingers are swollen and my stomach is gurgling and so upset.

I am mad at myself but I am a cup half full girl. SO now I know. I have learned a valuable lesson I must read and read the labels and make sure I get the right gorceries.

I must admit I am in shock and cannot believe it. I was truly skeptical this was my problem and it was my Dr who thinks this is what I have wrong. SHE IS right.

I would much rather know this is what is wrong with me than what I had my mind believing. I thought cancer or something horrible (thyroid cancer survivor) as the pain was so bad. To find out it is wheat is truly okay with me.

I enjoy all your posts and am so glad to have found you all

Katie who is withdrawing again SIGH.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

It's good you were able to pinpoint the problem. Kind of stinks but now you know how how to proceed. Hope you get to feeling better soon!

Bubba's Mom Enthusiast

Most of us make mistakes in the beginning, so don't be too hard on yourself. Those mistakes remind us to ALWAYS read the ingredient lists.

At least you get symptoms when you get glutened so you know something "got you"?

Drink a lot of water to help flush out your system.

GFinDC Veteran

@Katie,

Hi Katie,

It's nice to have a first hand confirmation eh? Your body knows what it doesn't like, and it sure let you know too. My reactions seemed more noticeable after I had been gluten-free for a while. A few crumbs seemed silly worry about for to me at first but then I found out they do matter.

Yep, label reading is an easy thing to miss at first. Or even later. It's something we get used to doing after a while. Kind of a habit. The good kind though. What's tricky is when you have used product for a while and the change the ingredients. So a safe product becomes unsafe. Then you really have to be reading labels or ouchy. :~)

cathlaur Newbie

Thanks for the responses everyone. This is totally new to me and what a learning experience. I am will definitley be more aware of packages and ingredients when I shop. Though some products do stump me!

I cannot wait to hear about my blood test. If it is negative I will know that I am indeed Gluten Intolerant.

It is nice to have a place to read and learn and to ask questions.

Have a great day

Katie

Skylark Collaborator

Thanks for the responses everyone. This is totally new to me and what a learning experience. I am will definitley be more aware of packages and ingredients when I shop. Though some products do stump me!

If you're stumped, ask on the board. We can probably help you. :)

You found the forbidden ingredient list on the main site, right?

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

There is also a safe ingredient list.

https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

bluebonnet Explorer

sounds like you inadvertently confirmed it! i noticed you said you were a thyroid cancer survivor ... celiac disease certainly attacked my thyroid. if you wouldn't mind answering ... did you have any symptoms before finding out you had thyroid cancer or was it discovered "by accident"?

glad to hear you are on the right track ... it takes a while but there's no going back once you heal! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...