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Glutened Myself By Mistake Wow My Bodies Response!

cathlaur

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cathlaur Newbie
cathlaur
Posted

Well I had the blood test 10 days ago and then started my gluten free diet for stomach pain issues. I have done really well and am surprised at how I am feeling better 60% which is awesome. I am an avid walker and today my gluten-free and I walked up to the local Saturday market. One of the vendors has awesome home made tortilla's spelt kamut, wheat and corn. I of course can only have the 100% corn. We finished our 13k walk in the snow and I headed home. I put the fire on and made a homemade quesadilla. I thought it was weird as my mouth kind of burned and then my stomach was off, but I just went on with my day. Later on in the afternoon my 16 year old daughter said mom those tortillas you bought have wheat in them. I of course said THEY DO NOT!. I looked and I was so upset. I picked up the corn/wheat ones by mistake. OH boy NO blood test has to come back abnormal to tell me I allergic to wheat. My mouth and throat are still burning. My fingers are swollen and my stomach is gurgling and so upset.

I am mad at myself but I am a cup half full girl. SO now I know. I have learned a valuable lesson I must read and read the labels and make sure I get the right gorceries.

I must admit I am in shock and cannot believe it. I was truly skeptical this was my problem and it was my Dr who thinks this is what I have wrong. SHE IS right.

I would much rather know this is what is wrong with me than what I had my mind believing. I thought cancer or something horrible (thyroid cancer survivor) as the pain was so bad. To find out it is wheat is truly okay with me.

I enjoy all your posts and am so glad to have found you all

Katie who is withdrawing again SIGH.

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AVR1962 Collaborator
AVR1962
Posted

It's good you were able to pinpoint the problem. Kind of stinks but now you know how how to proceed. Hope you get to feeling better soon!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Most of us make mistakes in the beginning, so don't be too hard on yourself. Those mistakes remind us to ALWAYS read the ingredient lists.

At least you get symptoms when you get glutened so you know something "got you"?

Drink a lot of water to help flush out your system.

GFinDC Veteran
GFinDC
Posted

@Katie,

Hi Katie,

It's nice to have a first hand confirmation eh? Your body knows what it doesn't like, and it sure let you know too. My reactions seemed more noticeable after I had been gluten-free for a while. A few crumbs seemed silly worry about for to me at first but then I found out they do matter.

Yep, label reading is an easy thing to miss at first. Or even later. It's something we get used to doing after a while. Kind of a habit. The good kind though. What's tricky is when you have used product for a while and the change the ingredients. So a safe product becomes unsafe. Then you really have to be reading labels or ouchy. :~)

cathlaur Newbie
cathlaur
Posted
  • Author

Thanks for the responses everyone. This is totally new to me and what a learning experience. I am will definitley be more aware of packages and ingredients when I shop. Though some products do stump me!

I cannot wait to hear about my blood test. If it is negative I will know that I am indeed Gluten Intolerant.

It is nice to have a place to read and learn and to ask questions.

Have a great day

Katie

Skylark Collaborator
Skylark
Posted

Thanks for the responses everyone. This is totally new to me and what a learning experience. I am will definitley be more aware of packages and ingredients when I shop. Though some products do stump me!

If you're stumped, ask on the board. We can probably help you. :)

You found the forbidden ingredient list on the main site, right?

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

There is also a safe ingredient list.

https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

bluebonnet Explorer
bluebonnet
Posted

sounds like you inadvertently confirmed it! i noticed you said you were a thyroid cancer survivor ... celiac disease certainly attacked my thyroid. if you wouldn't mind answering ... did you have any symptoms before finding out you had thyroid cancer or was it discovered "by accident"?

glad to hear you are on the right track ... it takes a while but there's no going back once you heal! :)

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      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
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      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
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      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
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