Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yet Another "gluten Or Sickness?" Thread

Strawberry-Jam

Recommended Posts

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

Okay, here's the scoop. On Sunday I was at a church potluck with my boyfriend and he brought me some injera with veggies on top. He swore up and down that the injera (Ethiopian flatbread) was made from teff only, which is gluten-free. It looked like teff and the girl who made it was there, so I believe it. However, it was sitting with all the other injera, which looked like they had wheat in. So I said I couldn't eat it. Then he asked about the other injera and told me it was made from rice, so I ate the teff stuff... felt fine for the rest of that day and the next.

48 hours later, almost exactly, I come down with a fever, sore throat, aching muscles, pounding headache, throbbing eyes, chills, and the lot. No resperatory problems or excess mucus or coughing. Just a whole-body ache and very sensitive skin that feels like fever. (Unfortunately, I don't have a thermometer, so I couldn't check my temp when it was at its worst, but the important thing is it FEELS like a fever.)

I haven't gotten sick with a fever in years and years. I don't think I've been exposed to any super sick people.

Boyfriend said it was rice, but I think it's possible they said self-rising flour and he heard rice when it's actually wheat.

Please help. Could it be gluten? If so, I'm pissed because if my reaction takes 48 hours, boyfriend is not going to believe me that it's gluten. He doesn't take my celiac seriously enough as it is. He gave up drinking beer for me (if he wants to kiss me) and will wash out his mouth after eating bread or whatever, and he respects me when I say, "no, I won't eat that", but he always makes little comments like, don't be that way, as if it's just all in my head.

I feel absolutely terrible right now. my muscles are all just like ARGH. my lymph nodes are sore to the touch, swallowing hurts, I'm at work right now and I can't concentrate...

okay, rant over. infection or gluten? what do y'all think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

It sounds like you have the flu or a virus or something, you tick every box if you know what I mean? Aching, sensitive skin, fever - all at the same time. Its influenza or something or a virus I reckon!

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted
  • Author

I can't help but think it's gluten though, since one of my main gluten/casein symptoms is horrible headaches and muscle aches?

beebs Enthusiast
beebs
Posted

Give it another couple of days - either way there isn't much you can do - but if you still feel bad in the next few days- like fluey then you probably have your answer ya know?

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted
  • Author

true enough. GERD is a huge gluten symptom for me and I'm curious why it's missing and then I remember that I'm not really eating anything right now... just liquids today, very little yesterday.

I keep seeing people say that gluten makes them feel like they have the flu. I don't know what my gluten symptoms are because I strongly suspect I have a delayed reaction (even though my reaction to soya happens within hours). Why does this have to be so confusing?

UKGail Rookie
UKGail
Posted

Sorry, but I am with Strawberry Jam. This is exactly how I feel after exposure to gluten. My main, and first, symptoms are extreme fatigue, migraine and joint/muscle aches, plus my body thermometer seems to go dodgy for a day or two. However my reaction is fast, and gastro symptoms follow after 24 hrs (and are quite mild by the standards of this board).

Strawberry, I would trust your instincts, and keep observing your reactions to possible/probable ingestion or cross-contamination. This is what I am doing, as I am still quite new to this. Maybe we are both barking up the wrong tree? By the way, I haven't had a virus in 5 months since going gluten free, despite working in a school, having school-age children bringing all manner of nasty bugs home, and a husband who had a stinking cold over Christmas. I used to suffer regularly, particularly in winter.

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted
  • Author

yeah, me too. I used to get fever-sick at LEAST twice a year, if not more. I also had a chronic winter cough. After celiac, no more fevers, no more sicknesses. Until now.

I was sick with a sinus infection about a month ago, which I did not attribute to gluten, as it was pretty clear that it was some bug I caught, prolly from a coworker.

One of these days I need to just, when I'm feeling healthy, sit down and eat a wheat biscuit or something. For science.

interestingly enough, I'm not having gastro symptoms at the moment, except for extremely smelly gas yesterday and the day before.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

interestingly enough, I'm not having gastro symptoms at the moment, except for extremely smelly gas yesterday and the day before.

It may not be the case for you but for me it takes 3 to 4 days for the D to hit. Until you mentioned this I was also thinking flu but the other symptoms you are describing also hit me before the D sets in.

One thing you may want to do is pick up a cheap thermometer. I will feel like I have a fever, hot one minute, cold the next but when I take my temp it will be normal. Don't know if that will be the case for you.

We all seem to have a symptom progression that may be different from the symptom progression of others but it does take some time and a few accidental glutenings to figure out what our progression may be.

Whether it is the flu or a glutening I hope you are feeling better soon.

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted
  • Author

I'll drop by a chemist and get a thermometer on my way home today.

I only ever have had this sensitive skin when I have a fever of 99 + (my normal temp is around 97).

if I do not have a fever, then it must be gluten. if I do have a fever, then it could be either way.

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted
  • Author

update: boyfriend still swears up and down that it was made from rice. they told him in Amharic and not English like I thought so it's unlikely he misheard. There is a possibility they used some other flour as well, but I really don't know, and boyfriend says they didn't. There was other bread on the table too though. the CC risk is still considerable, but not as clear-cut as I thought it was is all.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Well..you don't know if the kitchen where the bread was made had gluten cc? It's possible the bread wasn't made with gluten ingredients..but could have had a bit of contamination from the counter where it was made..or the pans?

It could also be a bug? If you were with a big group of people..there's always a chance that you could have been exposed to something?

I've had sweats and alternating chills, and I'm sure I have a fever. When I take my temp it's usually around 97*, which is normal for me. Get yourself a thermometer. They aren't too expensive and a good thing to have.

I hope this passes quickly and you feel better.

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted
  • Author

temp is 99.8.

Katrala Contributor
Katrala
Posted

Fever and sore throat?

And you were at a party with other people who could have touched food?

Strep throat?

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted
  • Author

Temperature is now 101.8.

It's definitely not gluten. I have some kind of sickness, like the flu. dang my body hurts right now...

beebs Enthusiast
beebs
Posted

No good. I hope you feel better soon. Flu sucks! :(

UKGail Rookie
UKGail
Posted

Get well soon. I guess at least you know now!

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted
  • Author

thanks for all your well-wishes. boyfriend brought me some tylenol and vitamin C, and I have a chicken boiling right now so I can have some chicken stock to drink (maybe I'll put rice noodles in). I had to call in to work this morning and I HATE that... hopefully the tylenol will allow me to go to work tomorrow (I only have to work for 4 hours) and then I'll have a nice weekend to recuperate.

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted
  • Author

haha, my fever went to 102.5 this morning. doctor said I need one week of bed rest.

I have one more question. the doc gave me antibiotics. usually when they give them to me, I don't take them, since they're over-prescribed, but in this case it is to prevent pneumonia, which I've had 3-5 times as a youngster (I forget) and DO NOT want again. So I'm taking them.

Should I take probiotics at the same time with the antibiotics, or should I wait until after the full course and then take them??

lynnelise Apprentice
lynnelise
Posted

haha, my fever went to 102.5 this morning. doctor said I need one week of bed rest.

I have one more question. the doc gave me antibiotics. usually when they give them to me, I don't take them, since they're over-prescribed, but in this case it is to prevent pneumonia, which I've had 3-5 times as a youngster (I forget) and DO NOT want again. So I'm taking them.

Should I take probiotics at the same time with the antibiotics, or should I wait until after the full course and then take them??

My doctor always advises I take it with the antibiotic!

alex11602 Collaborator
alex11602
Posted

haha, my fever went to 102.5 this morning. doctor said I need one week of bed rest.

I have one more question. the doc gave me antibiotics. usually when they give them to me, I don't take them, since they're over-prescribed, but in this case it is to prevent pneumonia, which I've had 3-5 times as a youngster (I forget) and DO NOT want again. So I'm taking them.

Should I take probiotics at the same time with the antibiotics, or should I wait until after the full course and then take them??

With since the antibiotic will be killing off all the bacteria, you need to add back in good bacteria. Feel better!

Roda Rising Star
Roda
Posted

Make sure you don't take the probiotic at the same time as the antibiotic otherwise it will just kill it off too. Try to take it at least 4 hrs before or after you take the antibiotic if you can.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. dixonpete
      0

      Hookworm load planner

    2. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    5. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,090
    • Most Online (within 30 mins)
      7,748
    Jamie B
    Newest Member
    Jamie B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.