Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have Some Questions About Celiac Disease

channing28105

Recommended Posts

channing28105 Newbie
channing28105
Posted

I have some questions about Celiac Disease I am wondering if I have Celiac Disease because

1. I have Anemia

2. I have Bloating at times

3. I have Vomiting at times

4. I have Headaches at times

5. I have autism

6. I have Hypothyroidism

7. I have belching or flatulence

8. I am having off and on diarrhea

9. I am having tummy cramps

If you know the answers please message me.

I want to say thank you to anyone that responds to my question.

Channing

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SarahJimMarcy Apprentice
SarahJimMarcy
Posted

I had all of the above except for #5 and I have celiac. You should go get tested.

livelifelarge24 Enthusiast
livelifelarge24
Posted

You really can't know until you get tested. All of the things you mentioned are definitely symptoms of Celiac, however they can be symptoms of Other things as well, that is why they call Celiac disease the Great Immitator.

krystynycole Contributor
krystynycole
Posted

It's very possible you have celiac. You may also just be gluten intolerant. I teach students with autism and have a nephew with autism. Over the years I have seen many people with autism feel MUCH, MUCH better going off gluten even if they aren't celiac. If your tests are negative, it might be worth a shot to go off and see if it helps. Doctor's really can't explain the connection to autism and gluten, but I've seen it myself it can make a big difference.

TravelnVal Newbie
TravelnVal
Posted

One thing that I didn't see in any of the other post. Your test wont be 100% accurate if you go on the gluten-free diet before the endoscopy. I've been diagnosed back in October, and feel so much better since starting the diet after the diagnoses.

mushroom Proficient
mushroom
Posted

With those symptoms you definitely need to have the blood panel for celiac disease, which consists of the following tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

This panel can be ordered by your primary care physician - you don't need to go to a specialist. It is important that the last test is included, because it is a control for the other tests - if you do not make normal quantities of IgA then all other IgA testing is invalid. And do keep eating gluten until all your testing is finished, which may include an endoscopy if your blood tests are positive.

Do keep us posted and let us know if there is any other way we can help, and by the way, welcome to the board. :)

  • 2 weeks later...
fantasticalice Explorer
fantasticalice
Posted

And do keep eating gluten until all your testing is finished, which may include an endoscopy if your blood tests are positive.

No other way?? You HAVE to keep eating gluten? I so want my daughter to get tested but no way would she

eat gluten!? She would have to take a week off work to even begin that. It makes her feel so bad....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


krystynycole Contributor
krystynycole
Posted

And do keep eating gluten until all your testing is finished, which may include an endoscopy if your blood tests are positive.

No other way?? You HAVE to keep eating gluten? I so want my daughter to get tested but no way would she

eat gluten!? She would have to take a week off work to even begin that. It makes her feel so bad....

Unfortunately it's true. This is why I consider myself non-confirmed celiac because I didn't know this until a month later and didn't care to go back on gluten and all the baggage for just a label. But that's my personal feeling in my situation. Some people psychologically need the confirmation and there is nothing wrong with that. Others may need it for school accommodations under ADA (Americans with Disabilities Act).

  • 1 month later...
JustNana Apprentice
JustNana
Posted

I can't imagine going back on gluten to get a piece of paper. Going gluten-free and having some symptoms improve right away and experiencing the effects of accidentally getting glutened is proof positive for me. Is there a compelling reason to have the biopsy? A close friend was diagnosed 2 years ago from the bloodwork, which was borderline. She went gluten-free and responded very positively. About 6 or 7 mos later she had routine endoscopy for previous reflux damage to her esophagus and asked them to check her small intestine villi. There was still damage. She is in her 60s like me though and I do know it can take much longer for our guts to heal.

I guess there may be other reasons to get the biopsy even after bloodwork and symptom relief from being gluten-free, maybe insurance?

  • 2 weeks later...
mamajchis Newbie
mamajchis
Posted

I self-ddiagnosed myself as having celiac disease. Why, because I could be a text book case for Celiacs. I have almost every syptom of the disease or did have untill I quit wheat. Only been gluten free since March 19 2012, but have seen such big improvements since then. My mental capacities suffered so bad I thought I was gooing crazy. After being gluten free, all the mental confusion, mmemory loss, brain fog has gone away. Proud to be gluten free.

mamajchis Newbie
mamajchis
Posted

Most of the symptoms that you have can be symptoms of celiac. I had all those except #5 and 6. But i also had so many more than that!

Stubborn red head Apprentice
Stubborn red head
Posted

There is a high rate of False Negatives with a lot of the tests. My mother has studied and Preached the gluten-free Lifestyle to me for years on end, I have listen but didn't want to think I had the Allergy. My mother's doctor had her go off the gluten and when her health improved the dr. diagnosed her with Celiac Disease. She when from having all (with exception of #5) the symptoms you described plus more. Now she hardly has any of them, there was extensive damage done to her kidneys, liver, stomach and Small Intestine that she still has stomach issues but as long as she doesn't slip up and eat Wheat then the stomach issues are almost nonexistent.

  • 2 weeks later...
runnergirl88 Newbie
runnergirl88
Posted

I self-ddiagnosed myself as having celiac disease. Why, because I could be a text book case for Celiacs. I have almost every syptom of the disease or did have untill I quit wheat. Only been gluten free since March 19 2012, but have seen such big improvements since then. My mental capacities suffered so bad I thought I was gooing crazy. After being gluten free, all the mental confusion, mmemory loss, brain fog has gone away. Proud to be gluten free.

I know what you mean! I've been in the same place! I started the gluten free process in Jan...but gluten is in sooooooo much I really haven't been entirely gluten free for very long and keep accidentally eating it and finding out later...lol. Good job! Isn't it wonderful? Do you think you'll get tested? I've been a little frusturated lately because I am so sensitive to it I can't even have food cooked on the same pans :'( Which I thought was insane till I went and tried and now I feel 100% better! I feel like bubble girl! :'( So now I'm going to put myself through hell by eating gluten for my doc apt next wed...not excited but need to show them what happens... Thanx for sharing Im glad I'm not the only one!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748
    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.