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Gtt Results And Other Lab Results


SleepyBunny

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RollingAlong Explorer

oh wait - and alcohol! big variable there!


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RollingAlong Explorer

How are things coming along?

SleepyBunny Apprentice

I'm doing good :) I actually haven't tested for about a week. I know shame shame lol I went to NY on vacation and got to eat at a bunch of gluten free places. I woke up got ready and walked around the city all day. Loved it :) I've been getting sleepy at an earlier time and waking up earlier without an alarm since being back. I'm starting to think my tummy problems are work related. While I was gone I didn't even think about my stomach or being tired. As soon as I go back to work I feel tense in my tummy. Like I'm doing internal crunches without doing anything. It hasn't even really been stressful at work but it's like just being there subconciously upsets me. But now that I'm back and have been grocery shopping I will start testing again and post some results :)

How have all of you been? :)

RollingAlong Explorer

I'm doing good :) I actually haven't tested for about a week. I know shame shame lol I went to NY on vacation and got to eat at a bunch of gluten free places. I woke up got ready and walked around the city all day. Loved it :) I've been getting sleepy at an earlier time and waking up earlier without an alarm since being back. I'm starting to think my tummy problems are work related. While I was gone I didn't even think about my stomach or being tired. As soon as I go back to work I feel tense in my tummy. Like I'm doing internal crunches without doing anything. It hasn't even really been stressful at work but it's like just being there subconciously upsets me. But now that I'm back and have been grocery shopping I will start testing again and post some results :)

How have all of you been? :)

Just fine, thanks! I am so glad to hear that you've got the energy to get out and about and do the things you want to do. It is great that you were able to get away and compare how you felt with what happens at work.

Is there any possibility of gluten at work (drywall dust?) or some other environmental influence?

Skylark Collaborator

I'm doing good :) I actually haven't tested for about a week. I know shame shame lol I went to NY on vacation and got to eat at a bunch of gluten free places. I woke up got ready and walked around the city all day. Loved it :) I've been getting sleepy at an earlier time and waking up earlier without an alarm since being back. I'm starting to think my tummy problems are work related. While I was gone I didn't even think about my stomach or being tired. As soon as I go back to work I feel tense in my tummy. Like I'm doing internal crunches without doing anything. It hasn't even really been stressful at work but it's like just being there subconciously upsets me. But now that I'm back and have been grocery shopping I will start testing again and post some results :)

How have all of you been? :)

When I was a kid I had psychosomatic stomach aches on top of the undiagnosed gluten issues. I found relaxation exercises helpful. If you can close your eyes for a moment and imagine being outdoors in warm sunshine in a beautiful place you might find that your stomach feels better. :) I also was taught an exercise where you imagine you're floating in blue sky among the clouds and progressively tense and relax groups of muscles, from your feet to your head. That would be harder at work but you might be able to lie down at home in the evening and try it.

SleepyBunny Apprentice

Just fine, thanks! I am so glad to hear that you've got the energy to get out and about and do the things you want to do. It is great that you were able to get away and compare how you felt with what happens at work.

Is there any possibility of gluten at work (drywall dust?) or some other environmental influence?

Well I work around medicine so there's a huge chance of that. As soon as I get to work on most days my nose will start running and my eyes get bloodshot. :( I think most of my problems with my job are more on the emotional side than anything else.

When I was a kid I had psychosomatic stomach aches on top of the undiagnosed gluten issues. I found relaxation exercises helpful. If you can close your eyes for a moment and imagine being outdoors in warm sunshine in a beautiful place you might find that your stomach feels better. :) I also was taught an exercise where you imagine you're floating in blue sky among the clouds and progressively tense and relax groups of muscles, from your feet to your head. That would be harder at work but you might be able to lie down at home in the evening and try it.

When I was younger and would get upset about something I would get bad stomach aches. When I have mentioned my c to my dr he says stomach problems have a lot to do with emotions. I believe this but didn't really think it was the case with me. But when on the trip I didn't even think about being tense. After my first day back at work within a few hours I started feeling tense. Now after being back for about a week the tension seems to be building up. I just don't like being there. My schedule is weird and I feel like I'm missing out on so much because of it :( And I've been getting frustrated with the whole eating thing lately. So I ate something that I had a bad feeling about but ate it anyway. Within a few hours I had a horrible migraine and it got so bad at some points that I got nauseous. I had been questioning the whole gluten thing lately but I guess I have my proof. Lately I've just been feeling upset. I don't know if the glutening has something to do with it or if I'm just having one of those days. :( Thank you for letting me get some of this out. I hope you all are having a better day than me. Thanks for listening!

Lori2 Contributor

Well I work around medicine so there's a huge chance of that. As soon as I get to work on most days my nose will start running and my eyes get bloodshot. :( I think most of my problems with my job are more on the emotional side than anything else.

Don't be so quick to dismiss these symptoms as emotional. You're beginning to sound like a doctor.


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Skylark Collaborator

Well I work around medicine so there's a huge chance of that. As soon as I get to work on most days my nose will start running and my eyes get bloodshot. :( I think most of my problems with my job are more on the emotional side than anything else.

That's not emotional! That sounds like an allergy to something in the air. You may be reacting to the medicine, or possibly to mold in the building. If you tolerate it, you could try a little of a non-drowsy antihistamine. If it helps you know for sure it's allergy.

SleepyBunny Apprentice

Don't be so quick to dismiss these symptoms as emotional. You're beginning to sound like a doctor.

Take that back! lol :P

missy'smom Collaborator

Yes, don't dismiss these symptoms.

Forgive me if I've already mentioned this in previous conversation, but if you work in an environment where latex gloves are used, especially powdered, your symptoms could be latex allergy. I have one and I can get immediate runny nose and red eyes etc. just from walking in the room. I still easily ignore the runny nose as it is such a common thing but for me, that runny nose can change to a cough, which can lead to respiratory distress and lungs filling with mucus, bronchitis and anaphylaxis. That runny nose for me is an immediate, systemic reaction.

The gloves have powder in them which absorbs the latex proteins and spreads them airborn, where we breathe them in. For those who are sensitized, it can pose problems anywhere in food service, medical, and cleaning/housekeeping, school science labs and other settings. Latex ballons are the same.

I was in the hospital for a testing proceedure recently and they had rubber mats next to the bed and I started in with a runny nose and congestion and cough. As soon as they removed the mats, it stopped. I didn't need to touch them and they don't have that latex soaked powder, just needed to be around them to trigger a reaction.

You could be reacting to something else, but when I read your ststement, I thought that's a reaction to something for sure and your other feelings of generally not feeling good can also be part of the reaction/symptom.

SleepyBunny Apprentice

Yes, don't dismiss these symptoms.

Forgive me if I've already mentioned this in previous conversation, but if you work in an environment where latex gloves are used, especially powdered, your symptoms could be latex allergy. I have one and I can get immediate runny nose and red eyes etc. just from walking in the room. I still easily ignore the runny nose as it is such a common thing but for me, that runny nose can change to a cough, which can lead to respiratory distress and lungs filling with mucus, bronchitis and anaphylaxis. That runny nose for me is an immediate, systemic reaction.

The gloves have powder in them which absorbs the latex proteins and spreads them airborn, where we breathe them in. For those who are sensitized, it can pose problems anywhere in food service, medical, and cleaning/housekeeping, school science labs and other settings. Latex ballons are the same.

I was in the hospital for a testing proceedure recently and they had rubber mats next to the bed and I started in with a runny nose and congestion and cough. As soon as they removed the mats, it stopped. I didn't need to touch them and they don't have that latex soaked powder, just needed to be around them to trigger a reaction.

You could be reacting to something else, but when I read your ststement, I thought that's a reaction to something for sure and your other feelings of generally not feeling good can also be part of the reaction/symptom.

I don't think I have a latex allergy. Any gloves I've seen at work say latex free. But I know there is medication dust in the air all the time and our shelves have dust all over them. Once when I was going through some of the meds I kept sneezing from all the dust :blink: It seems like ever since I've worked in these environments I've had these bloodshot eyes. People always joke and say I need to be drug tested lol We moved to a different area and that seems to be when the runny nose started. I thought ok it's winter (if you can call it that lol) but when I'm not there my nose hardly runs if at all.

If me being upset is part of the reaction I hope it goes away soon. I hate getting upset so easily. :(

How are you doing? :)

Skylark Collaborator

I'm into migraines. Ugh. Shifting my diet around yet again from GAPS to a low food chemical diet called Failsafe.

Getting upset easily is part of allergic reactions. If I were you I'd try some Zyrtec or Claritin. Both name-brand pills are gluten-free. :)

SleepyBunny Apprentice

I'm into migraines. Ugh. Shifting my diet around yet again from GAPS to a low food chemical diet called Failsafe.

Getting upset easily is part of allergic reactions. If I were you I'd try some Zyrtec or Claritin. Both name-brand pills are gluten-free. :)

I'm sorry you're having migraines :( Those are not fun. Especially when you take something and it doesn't even help. Eating should not have to be this difficult lol What kind of stuff do you eat with the failsafe diet?

Skylark Collaborator

Eating should definitely not be this difficult. :lol: Here are the allowed foods. It's a pretty easy list to stick to for a few weeks.

Open Original Shared Link

I'm expecting it to help the migraines because they used to be MSG sensitive. I was on GAPS and unknowingly eating a lot of natural MSG and salicylate.

Did an antihistamine help you at all? :)

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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