Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Again?

elonwy

By elonwy
in Coping with Celiac Disease

Recommended Posts

elonwy Enthusiast
elonwy
Posted

Had Amy's Rice Mac & cheese ( microwave) with black pepper and red rooster hot sauce. Within about ten minutes I was naseous and had stomach pain, then was throwing up in the bathroom and had terrible gas. Still have bad cramping, and am really tired, but the barfing is done thankfully.

So what made me sick?

I had the same dish two weeks ago and was fine, and had the hot sauce in some chili last wednesday and was fine as well. The only thing I drank was water. I wiped down the microwave with a moist paper towel before cooking my food ( its the only one you cook uncovered) as I was kinda paranoid about that, but my bf cooked his food after mine, and we had no contact after that point.

My gluten reaction isn't usually that violent either.

What gives? It was date night tonight too.

Grrrrrr

Elonwy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

Did you have anything else to eat that day? My gluten reactions come within several hours to a day after eating something with gluten in it. If you have had all those food before without getting sick than it may be something you had earlier in the day or the day before.

jenvan Collaborator
jenvan
Posted

Elonwy-

That stinks girl... I have one of those Amy's dinners in my freezer right now :unsure: I've never had issues with Amy's so far. In the past that creamy/heavy dairy type of meal would have made me sick. But maybe dairy doesn't bother you. Maybe the combo of food got you? Its so hard to tell at times... Hope you feel better soon!

Guest nini
Guest nini
Posted

we don't have any problems with the Amy's foods... even though they have a cya warning on the box that it's produced in a facility with wheat and other allergens... Amy's is usually very good about keeping contamination to a minimum.

I agree that it could have been something else you had earlier in the day or the day before. Sometimes my gluten reactions are instantaneous, but a lot of times I get a delayed reaction and am not sure exactly what I had.

More likely culprits are if you had anything to eat that day or day before from any fast food or other restaurant. If that isn't the case then just keep looking.

There are so many hidden glutens in so many commercial products. Even though the ingredient list may appear safe, if it's not one of the big companies like Kraft, General Mills, or ConAgra that you can trust, you could be accidentally glutening yourself.

Keep in mind too that previously gluten free products (mainstream) can change ingredients, so even if there is a product you have trusted before, Always read the labels.

I'm so sorry you got glutened on date nite. That sux. I got glutened last week and my poor hubby is still fuming over missing date nite!

SueC Explorer
SueC
Posted

I'm sorry you feel so bad :(

There is a nasty stomach virus going aroud. My 3 year old had it.It lasts for about 24 hours and caused her to throw up alot!!! Her doc said it is going around. Maybe that is what you have and it is completely unrelated to celiac.

Rachel--24 Collaborator
Rachel--24
Posted

I don't know about anyone else and I'm still trying to figure all this "gluten" stuff out. Sometimes it seems like I don't get an immediate rection from gluten but then the next time I eat...no matter what it is...I'll start getting sick from it. It could be just plain organic chicken or a salad and all of a sudden I'm getting a reaction. I think the gluten just messes me up and before the *actual* gluten reaction hits I start getting sick from *anything* I eat. Is that possible? Sometimes I feel like I'm allergic to everything but then it will calm down after a few days. Could it be that something you ate earlier had gluten which made you react badly to the Amy's?

elonwy Enthusiast
elonwy
Posted
  • Author

I'm not sure what I could have had. I've been being so careful. I went out thurs night, and had a baked potato with sour cream and some steamed veggies. I didn't even have the butter. Other than that I had kinikkinick English muffins for breakfast and an Amy's indian meal for lunch. There was a party at work with cake, but I just ate my lunch right before and had a coke. I did sniff the cake, but not really close. ( I like to stand in the bakery at the grocery store and sniff, then move on, but I don't touch stuff). The kids that work for me know to wash thier hands when they are done eating and stuff too, so I'm keeping the workpalce really clean.

I'm thinking, possibly it wasnt even a gluten reaction, and it was just bad food. My gluten reactiosn usually don't involved throwing up. It was actually almost identical to my egg reaction, I've been avoiding egg for a few years now. Maybe I just got a bad dinner, or something. Whatever it was it moved through me at speed, lol.

I ate, was sick inside of ten minutes, threw up, had horrible stomach cramps for two hours, then the terrible D, then felt fine, if exhausted.

I told my bf last night that next date night I just wouldn't eat any food.

Elonwy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CaliGirl Newbie
CaliGirl
Posted

Maybe it was your coke? Carmel-colored beverages usually get their color from malt. After I got glutened from root beer, I haven't had any dark colored colas since.

Also, I just got the 24 hour flu a few days ago, but at first I thought it was from ingesting gluten (I've been eating out alot lately). After other people at work started getting sick, too, I felt so much better! I may have been hugging the toilet for a day, but at least it wasn't because I was damaging my body with gluten--I was damaging my body with a stomach virus! What a relief!

(This is what happens to my thinking after being gluten-free for a year!)

Anyway, I would wait to see if anyone else around you gets sick before you start eliminating foods.

Rachel

elonwy Enthusiast
elonwy
Posted
  • Author

Coke is gluten free, but you never know with some of the fountain drinks here. I feel pretty crappy today too, no throwing up but I'm tired and don't want any food. Feels like someone punched me in the stomach. It's possible it's just a little flu bug. A couple people I talked to today don't feel well either, and I've seen them recently, so who knows. It was such an immediate reaction though, that it really felt like it was the mac & cheese. And sometimes you just get bad food.

If I'm getting glutened while being this careful this is just gonna suck.

Elonwy

Guest nini
Guest nini
Posted

I've been gluten-free over 2 years and I am overly careful and extremely paranoid about getting glutened, yet despite my best efforts, accidents have still happened, and recently too... I'm hopeful that eventually the rest of the world will catch on that gluten isn't good for anybody and they'll get rid of it entirely!!! :P:P:P

Rachel--24 Collaborator
Rachel--24
Posted
I'm hopeful that eventually the rest of the world will catch on that gluten isn't good for anybody and they'll get rid of it entirely!!! :P  :P  :P

<{POST_SNAPBACK}>

:lol: Yeah....and if we lived in a gluten-free world...we'd be able to buy loaves of bread for 99 cents again and our food wouldn't show up in our mailboxes! That would be awesome :D

elonwy Enthusiast
elonwy
Posted
  • Author

I think it's the microwave. When I use the toaster oven I'm fine, but I nuked a tortilla uncovered in the microwave and felt queasy for a few hours. We're talking plain corn torilla -gluten-free., nothing on it. I thought I had cleaned it well enough, but bf doesn't understand the whole - cover your food it explodes thing. I'll scrub it to death again and then cover everything I cook with a paper towel. Hopefully that should take care of it.

Slowly but surely.

Elonwy

sspitzer5 Apprentice
sspitzer5
Posted
Had Amy's Rice Mac & cheese ( microwave) with black pepper and red rooster hot sauce. Within about ten minutes I was naseous and had stomach pain, then was throwing up in the bathroom and had terrible gas. Still have bad cramping, and am really tired, but the barfing is done thankfully.

So what made me sick?

I had the same dish two weeks ago and was fine, and had the hot sauce in some chili last wednesday and was fine as well. The only thing I drank was water. I wiped down the microwave with a moist paper towel before cooking my food ( its the only one you cook uncovered) as I was kinda paranoid about that, but my bf cooked his food after mine, and we had no contact after that point.

My gluten reaction isn't usually that violent either.

What gives? It was date night tonight too.

Grrrrrr

Elonwy

<{POST_SNAPBACK}>

Hi Elonwy, I've had a reaction after eating the Amy's mac and cheese a few times. I'm not sure why. Perhaps it was something else, but it did happen more than once. I hope it isn't the mac and cheese, it's yummy!

Susan

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748
    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.