Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ah~Ha! Finally Figured It Out!

lucky28

By lucky28
in Coping with Celiac Disease

Recommended Posts

lucky28 Explorer
lucky28
Posted

After my initial good response to going gluten-free~I had a 3~4 month bout of bad GI symptoms and had gotten really depressed and discouraged by it. Well we moved from our house the last weekend of January and at the same time I had been working more hours @ work~leaving me NO time to unpack anything but the basics. Starting about a week into living @ the new house my GI symptoms had drastically improved! In fact this whole week my Gi system has been textbook NORMAL! :-) I realized earlier this week what I was doing different~I had been using fresh garlic instead of the granulated garlic that I had been using practically EVERY night since the end of September!

I feel like such a dummy,but at the same time I am so relieved that it's not anything more serious!

btw the website for the spice company (not mcormicks) says that the spice is gluten-free so I don't know if it is maybe a cc issue or if i have some other issue with it~ all I know is that I'm so happy to have my symptoms resolved!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

After my initial good response to going gluten-free~I had a 3~4 month bout of bad GI symptoms and had gotten really depressed and discouraged by it. Well we moved from our house the last weekend of January and at the same time I had been working more hours @ work~leaving me NO time to unpack anything but the basics. Starting about a week into living @ the new house my GI symptoms had drastically improved! In fact this whole week my Gi system has been textbook NORMAL! :-) I realized earlier this week what I was doing different~I had been using fresh garlic instead of the granulated garlic that I had been using practically EVERY night since the end of September!

I feel like such a dummy,but at the same time I am so relieved that it's not anything more serious!

btw the website for the spice company (not mcormicks) says that the spice is gluten-free so I don't know if it is maybe a cc issue or if i have some other issue with it~ all I know is that I'm so happy to have my symptoms resolved!

Wow, you sure had a lot going on. Maybe settling in to you new place has relieved some stress. Stress can create havoc on your system. It kicked in my Celiac. Sometimes, outside elements can turn us upside down. Maybe it might not be the garlic. And... my philosophy, fresh is always best. Anyway, so glad you're feeling better.

Roda Rising Star
Roda
Posted

Were you using the spices before you were gluten free? Any chance that it could have been CC'd at your house? Is there anything else ingredient wise in it like an anticaking agent that you possiblly could be having trouble with? Just some ideas to toss at you. Glad your feeling better.

Takala Enthusiast
Takala
Posted

I also had a reaction to granulated dried garlic also, from a "reputable" company that claims all spices are gluten free. I noticed the country of origin for that garlic was China. I no longer use dried granulated garlic.

It was easy enough to test this. We had just purchased a new bottle, and had used it on hamburgers. We used it several times and I got sick after each time. I thought, "what is new?" and common to each incidence. And voila, left it off the next batch. No problem. I eat very plainly, meat/veg/potato a lot for dinner, so there aren't too many "exotic" ingredients.

I am so tired of this cya claims from these companies. They are not batch testing everything for gluten, and with foreign sources you really have no idea.

I just started having problems with a brand of balsamic vinegar I had successfully used for years.... checked the label and can't believe what is on the ingredient list now. "...boiled grape must, caramel color" :angry: Technically, this product should be gluten free because I have been told that American sourced caramel color is supposedly safe. But it is using Italian/European ingredients. Boiled wine dregs from the bottom of the aging caskets... dreck...yummy. <_< While this is my fault for not double checking a purchase by a family member, and assuming that a bottle labeled "Balsamic Wine Vinegar" would actually continue to be vinegar, it still shows that in an effort to cut costs, we do not really know what much of our condiments are made out of, at all.

lucky28 Explorer
lucky28
Posted
  • Author

Thanks for all the support! Hopefully things remain calm (if you know what I mean!) I had really gotten so upset about my relapse because my symptoms had resolved so quickly after going gluten-free then it seemed as though nothing I did was making any difference. I had moved my 6month biopsy follow-up to an earlier date, thinking that something serious was going on (refractory sprue, lymphoma, etc). Thankfully my appt was on the 9th and my symptoms had stopped by then! I discussed it with my gastro and he said as long as I remain symptom free he doesn't want to see me for a year. Hopefully I've got everything else under control, I have done alot of research, took a lot of advice from ppl on this board, and have not once intentionally cheated; except when I'm dreaming :lol:

I just hope that others with unresolved problems will find an easy solution like I did!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748
    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.