Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ah~Ha! Finally Figured It Out!


lucky28

Recommended Posts

lucky28 Explorer

After my initial good response to going gluten-free~I had a 3~4 month bout of bad GI symptoms and had gotten really depressed and discouraged by it. Well we moved from our house the last weekend of January and at the same time I had been working more hours @ work~leaving me NO time to unpack anything but the basics. Starting about a week into living @ the new house my GI symptoms had drastically improved! In fact this whole week my Gi system has been textbook NORMAL! :-) I realized earlier this week what I was doing different~I had been using fresh garlic instead of the granulated garlic that I had been using practically EVERY night since the end of September!

I feel like such a dummy,but at the same time I am so relieved that it's not anything more serious!

btw the website for the spice company (not mcormicks) says that the spice is gluten-free so I don't know if it is maybe a cc issue or if i have some other issue with it~ all I know is that I'm so happy to have my symptoms resolved!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

After my initial good response to going gluten-free~I had a 3~4 month bout of bad GI symptoms and had gotten really depressed and discouraged by it. Well we moved from our house the last weekend of January and at the same time I had been working more hours @ work~leaving me NO time to unpack anything but the basics. Starting about a week into living @ the new house my GI symptoms had drastically improved! In fact this whole week my Gi system has been textbook NORMAL! :-) I realized earlier this week what I was doing different~I had been using fresh garlic instead of the granulated garlic that I had been using practically EVERY night since the end of September!

I feel like such a dummy,but at the same time I am so relieved that it's not anything more serious!

btw the website for the spice company (not mcormicks) says that the spice is gluten-free so I don't know if it is maybe a cc issue or if i have some other issue with it~ all I know is that I'm so happy to have my symptoms resolved!

Wow, you sure had a lot going on. Maybe settling in to you new place has relieved some stress. Stress can create havoc on your system. It kicked in my Celiac. Sometimes, outside elements can turn us upside down. Maybe it might not be the garlic. And... my philosophy, fresh is always best. Anyway, so glad you're feeling better.

Roda Rising Star

Were you using the spices before you were gluten free? Any chance that it could have been CC'd at your house? Is there anything else ingredient wise in it like an anticaking agent that you possiblly could be having trouble with? Just some ideas to toss at you. Glad your feeling better.

Takala Enthusiast

I also had a reaction to granulated dried garlic also, from a "reputable" company that claims all spices are gluten free. I noticed the country of origin for that garlic was China. I no longer use dried granulated garlic.

It was easy enough to test this. We had just purchased a new bottle, and had used it on hamburgers. We used it several times and I got sick after each time. I thought, "what is new?" and common to each incidence. And voila, left it off the next batch. No problem. I eat very plainly, meat/veg/potato a lot for dinner, so there aren't too many "exotic" ingredients.

I am so tired of this cya claims from these companies. They are not batch testing everything for gluten, and with foreign sources you really have no idea.

I just started having problems with a brand of balsamic vinegar I had successfully used for years.... checked the label and can't believe what is on the ingredient list now. "...boiled grape must, caramel color" :angry: Technically, this product should be gluten free because I have been told that American sourced caramel color is supposedly safe. But it is using Italian/European ingredients. Boiled wine dregs from the bottom of the aging caskets... dreck...yummy. <_< While this is my fault for not double checking a purchase by a family member, and assuming that a bottle labeled "Balsamic Wine Vinegar" would actually continue to be vinegar, it still shows that in an effort to cut costs, we do not really know what much of our condiments are made out of, at all.

lucky28 Explorer

Thanks for all the support! Hopefully things remain calm (if you know what I mean!) I had really gotten so upset about my relapse because my symptoms had resolved so quickly after going gluten-free then it seemed as though nothing I did was making any difference. I had moved my 6month biopsy follow-up to an earlier date, thinking that something serious was going on (refractory sprue, lymphoma, etc). Thankfully my appt was on the 9th and my symptoms had stopped by then! I discussed it with my gastro and he said as long as I remain symptom free he doesn't want to see me for a year. Hopefully I've got everything else under control, I have done alot of research, took a lot of advice from ppl on this board, and have not once intentionally cheated; except when I'm dreaming :lol:

I just hope that others with unresolved problems will find an easy solution like I did!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    2. - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    3. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

    4. - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,333
    • Most Online (within 30 mins)
      7,748

    jlcvt
    Newest Member
    jlcvt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.