Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Adding Foods Back In The Diet


Michelle L

Recommended Posts

Michelle L Apprentice

Hey...I know that with a gluten free diet you are supposed to be 100% or nothing at all. Right now I have been eating gluten free after I went to an allergist / nutritionist. Gluten and wheat both came up on the list of stuff I was allergic to in addition to dairy.

But, after following a strict clean diet for 1 month, I was retested and only "wheat" came up as an allergen. Gluten did not appear on the list.

So...I still am sticking to a gluten free diet for a long time, so all the damage can heal. But, since gluten did not reappear on the list...do you think that means I am not really gluten intolerant?..just wheat intolerant? I still have a feeling I am allergic to gluten, as of now, even thought it did not come up on the list.

And, I don't know if I am extremely allergic to wheat and/or how much of it I can tolerate? All I know is that it came up on the list a second time. So my question is..has anyone, after eating gluten free for a substantial time, been able to add a normal food in once in a while and felt fine?

Also, so then I am guessing I am just wheat intolerant? Is that largely different than gluten intolerant? I just was wondering about maybe having regular piece of food here and there..sometime in the future? Does anyone do that?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

Hey...I know that with a gluten free diet you are supposed to be 100% or nothing at all. Right now I have been eating gluten free after I went to an allergist / nutritionist. Gluten and wheat both came up on the list of stuff I was allergic to in addition to dairy.

But, after following a strict clean diet for 1 month, I was retested and only "wheat" came up as an allergen. Gluten did not appear on the list.

So...I still am sticking to a gluten free diet for a long time, so all the damage can heal. But, since gluten did not reappear on the list...do you think that means I am not really gluten intolerant?..just wheat intolerant? I still have a feeling I am allergic to gluten, as of now, even thought it did not come up on the list.

And, I don't know if I am extremely allergic to wheat and/or how much of it I can tolerate? All I know is that it came up on the list a second time. So my question is..has anyone, after eating gluten free for a substantial time, been able to add a normal food in once in a while and felt fine?

Also, so then I am guessing I am just wheat intolerant? Is that largely different than gluten intolerant? I just was wondering about maybe having regular piece of food here and there..sometime in the future? Does anyone do that?

Which test did your allergist use for gluten and wheat? If you weren't consuming gluten for a month, you probably didn't have antibodies in your blood to react to the test. That's good news, which means your gut can heal, not rationale to return to eating gluten.

Michelle L Apprentice

Which test did your allergist use for gluten and wheat? If you weren't consuming gluten for a month, you probably didn't have antibodies in your blood to react to the test. That's good news, which means your gut can heal, not rationale to return to eating gluten.

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

Before all of this started, I was eating wheat bread and bagels everyday..so I think that's where the problem started from. I was consuming a very high percentage of gluten. Especially because of the wheat bread....

I know I cannot go back to eating those things everyday, but I just didn't know if it would be possible to have a normal snack once in a while...

Metoo Enthusiast

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

Before all of this started, I was eating wheat bread and bagels everyday..so I think that's where the problem started from. I was consuming a very high percentage of gluten. Especially because of the wheat bread....

I know I cannot go back to eating those things everyday, but I just didn't know if it would be possible to have a normal snack once in a while...

I don't think you should eat gluten.

I tested positive for a gluten allergy IgE, and my family doctor said that that can be indicative of celiac, (I tested negative for the celiac blood test though). She basically said you can test positive as an allergy when you actually have celiac.

If you tested positive for gluten, then removed gluten and the test is now negative you could have celiac disease and not just an allergy, according to my family doctor.

burdee Enthusiast

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

Before all of this started, I was eating wheat bread and bagels everyday..so I think that's where the problem started from. I was consuming a very high percentage of gluten. Especially because of the wheat bread....

I know I cannot go back to eating those things everyday, but I just didn't know if it would be possible to have a normal snack once in a while...

Of oourse, you can do anything want, but you will pay the consequences. Most people who abstain from gluten for awhile, react with even stronger reactions when they eat gluten once in a while. Your body will react with even more gluten antibodies after a period of abstinence. If you had mild symptoms, you may have stronger symptoms after not eating gluten for awhile. If you just keep eating gluten, your body will be damaged enough that eventually you will get stronger symptoms or different symptoms indicative of additional autoimmune diseases.

Skylark Collaborator

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

And you believed it? I think to answer your question you need to eat a full-gluten diet for three months and have proper celiac testing done. If you're not celiac you may be able to eat gluten occasionally if you tolerate it. If you're celiac avoidance needs to be 100%.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      EMA Result

    2. - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      EMA Result

    3. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Have I got coeliac disease

    4. - mike101020 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      EMA Result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,162
    • Most Online (within 30 mins)
      7,748

    Greymo
    Newest Member
    Greymo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
    • trents
      Welcome to the celiac.com community, @mike101020! First, what was the reference range for the ttg-iga blood test? Can't tell much from the raw score you gave because different labs use different reference ranges. Second, there are some non celiac medical conditions, some medications and even some non-gluten food proteins that can cause elevated celiac blood antibodies in some individuals. The most likely explanation is celiac disease but it is not quite a slam dunk. The endoscopy/biopsy is considered the gold standard for celiac disease diagnosis and serves as confirmation of elevated blood antibody levels from the blood testing.
    • Wheatwacked
      Vitamin D status in the UK is even worse than the US.  vitamin D is essential for fighting bone loss and dental health and resistance to infection.  Mental health and depression can also be affected by vitamin D deficiency.  Perhaps low D is the reason that some suffer from multiple autoimmune diseases.  In studies, low D is a factor in almost all of the autoimmune diseases that it has been studied in. Even while searching for your diagnosis, testing your 25(OH)D status and improving it my help your general wellness. Vitamin D Deficiency Affects 60% in Britain: How to Fix It?    
    • mike101020
      Hi, I recently was informed by my doctor that I had scored 9.8 on my ttgl blood test and a follow up EMA test was positive.   I am no waiting for a biopsy but have read online that if your EMA is positive then that pretty much confirms celiac. However is this actually true because if it it is what is the point of the biopsy?   Thanks for any help 
    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.