Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Or Ibs


scottyg354

Recommended Posts

scottyg354 Enthusiast

Ok guys, this is going to be a little straight forward and gross but I am going to post anyways. I can't seem to get an answer anywhere and I know you guys are always great and helpful.First off I want to start by saying I am hypothyroid. I have recently been feeling decent compared to how I have been. Maybe because I started back up on an AD until all this crap is over. Fatigue hasn't been bad recently, but my stomach problems are still consistent. I have always been under the suspicion I have underlying Celiac. I had the whole blood panel done and the only thing that was mildly elevated was my Giladin/Gluten IgG. Anyways, some of my symptoms are Upper Left Abdominal Pain, Burning Nausea in stomach, constipation (with occasional diarrhea), stool come out tan to very light tan almost skin tone (the gross part lol) I'm not sure if that is whats considered clay color or not, very rank flatulence, I also have white spots on my front teeth. Does this sound like Celiac or something else, I had a colonoscopy and everything there was good except for one polyp. I am feeling decent, except for these digestive issues, and an IBS diagnosis is the final one I am will to take.

When I initially had the panel done I was pretty much on a gluten free diet for about a week or two. I wasn't being too careful about cross contamination or anything, but I wasn't eating any gluten containing foods, which I now understand can screw up the panel results. Anyways, I brought this up to the doc and he wants to wait and see if things clear up after my thyroid is totally adjusted. He said he would like to try the Gluten Free Diet if things persist. I have been back on gluten for a while now and was wondering if you guys think it would be worth it for me to ask for another panel before going gluten free again?

One other thing. I have been having foamy urine lately. No protein in my urine, BUN and Creatinine are perfect. Only thing that was elevated besides my Thyroid was my ALT and Blood Protein, ALT elevated by 20, I think it was at 92 and my blood protein by .8 it was at 9. Any of this sound familiar?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scottyg354 Enthusiast

I could really use some ideas here guys? I'm really at my wits end.

adab8ca Enthusiast

I cannot imagine going gluten-free for a week is going to screw up the test results. That being said, did you feel better not eating gluten? Get the panel re-done (and note that many people here get negatives but still get better eating the gluten-free diet, either false negatives or a non celiac gluten intolerance). Regardless of the result, I would give gluten-free a really good try. The gliadin antibodies do indicate some intolerance to wheat, although I believe the test is not THAT specific.

My ALT was also raised and I believe this is a liver enzyme that can increase in Celiacs (but of course, can probably increase with a ton of other things).

Good Luck!

Ada

researchmomma Contributor

I agree with Ada. I would eat gluten and get tested. Good luck.

cahill Collaborator

You are hypo but have you been tested for Hashimoto's??

Do you need a "official" celiac diagnoses??

scottyg354 Enthusiast

You are hypo but have you been tested for Hashimoto's??

Do you need a "official" celiac diagnoses??

Haven't been tested for Hashi's doc said he is pretty sure thats what it is as I'm not converting T4 well. Anyhow if I said a week I apologize I was off for about 2 or 3 weeks. I would just like to get a diagnosis either way for peace of mind. And I'm not going to lie, I do enjoy a good craft beer and if I find out its not wheat then I won't have to worry about it, but I don't want to be doing damage to my body.

cahill Collaborator

Haven't been tested for Hashi's doc said he is pretty sure thats what it is as I'm not converting T4 well. Anyhow if I said a week I apologize I was off for about 2 or 3 weeks. I would just like to get a diagnosis either way for peace of mind. And I'm not going to lie, I do enjoy a good craft beer and if I find out its not wheat then I won't have to worry about it, but I don't want to be doing damage to my body.

Being off gluten for two to three weeks will effect your blood test.

If your want to be tested again stay on gluten for at least three months before retesting.

Has your doc mentioned doing an endoscopy ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scottyg354 Enthusiast

Being off gluten for two to three weeks will effect your blood test.

If your want to be tested again stay on gluten for at least three months before retesting.

Has your doc mentioned doing an endoscopy ?

No note yet. He is really pushing for me to try the diet and see results which I will probably end up doing. But I have been back on Gluten for a while. The thing that got me thinking was a few months ago I went low carb. I felt great physically for the couple weeks I was on it, but I felt that I needed the carbs for energy,the minute I added carbs back in all this crap started again. I figured I would stay on the carbs for a while and push to get another test. I do understand that people with thyroid disease also don't do well with gluten, so maybe it would be beneficial if I do the diet regardless of diagnosis.

cahill Collaborator

No note yet. He is really pushing for me to try the diet and see results which I will probably end up doing. But I have been back on Gluten for a while. The thing that got me thinking was a few months ago I went low carb. I felt great physically for the couple weeks I was on it, but I felt that I needed the carbs for energy,the minute I added carbs back in all this crap started again. I figured I would stay on the carbs for a while and push to get another test. I do understand that people with thyroid disease also don't do well with gluten, so maybe it would be beneficial if I do the diet regardless of diagnosis.

There are plenty of gluten free carbs.

I do better on a mod to high carb diet.I find I have much more energy then when I am low carb.

And yes,since IBS,Hashimoto's and of course celiac all respond to a gluten free diet,it would be beneficial to do the diet regardless of diagnosis

scottyg354 Enthusiast

I appreciate your responses. Hopefully I figure something out soon. Had a colonoscopy so I am assuming that could rule out chrons and UC.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.