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Constantly Hungry- Never Full


Xhale1227

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Xhale1227 Newbie

I took an allergy test and it said I had gluten sensitivity. Pretty sure I don't have celiac disease. My doc said he wanted me to give up gluten for a few months and see how I feel. I am on week 4 and my digestive system is feeling much better. However I am still very bloated, which I hope improves with time. My main concern though is my hunger. I have put on 5 pounds in the last few weeks, and if I ate when I was truly hungry, it would be 10 pounds. I am starving 24/7. I'm eating MORE calories now than I did when I ate gluten, and yet still my hunger is ravenous. Before this diet change, I would have to force myself to eat.... Now I eat as if I am going into hibernation every day. It is ridiculous. I just had 2 cups of oats, a peanut butter protein bar, half an avocado, fruit, protein shake, and 2 eggs for breakfast. No joke. I am now an hour later.... starving. Why is this happening? I am tempted to just quit, I don't want to gain weight.


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Brittany85 Rookie

I took an allergy test and it said I had gluten sensitivity. Pretty sure I don't have celiac disease. My doc said he wanted me to give up gluten for a few months and see how I feel. I am on week 4 and my digestive system is feeling much better. However I am still very bloated, which I hope improves with time. My main concern though is my hunger. I have put on 5 pounds in the last few weeks, and if I ate when I was truly hungry, it would be 10 pounds. I am starving 24/7. I'm eating MORE calories now than I did when I ate gluten, and yet still my hunger is ravenous. Before this diet change, I would have to force myself to eat.... Now I eat as if I am going into hibernation every day. It is ridiculous. I just had 2 cups of oats, a peanut butter protein bar, half an avocado, fruit, protein shake, and 2 eggs for breakfast. No joke. I am now an hour later.... starving. Why is this happening? I am tempted to just quit, I don't want to gain weight.

I felt that way too when I went gluten-free. I think it has something to do with malabsorption. I'd suggest eating small meals and snacks frequently with lots of protein. I think this is part of the detox process and I'm sure it will get better.

squirmingitch Veteran

Did the allergy testing include testing for soy? Soy gives me bloat.

I am hungry all the time too. I think it is like Brittany said ~~~ it's part of the process.

adab8ca Enthusiast

i had no appetite before I was diagnosed with Celiac...Lost 30 pounds without trying. Once I stopped eating gluten, I was RAVENOUS. If it was not nailed down, I ate it. I was never, ever ever full.

It did subside but I did put on at least 10 pounds in a very short time. If you are feeling better, I would not give up the diet for fear of a little weight gain. It eventually subsided with me, although I have started working out a LOT and am having a hard time losing any weight. My body seems to want to hold on to the nutrition it gets!!!

Lori2 Contributor

I would really recommend that you stay away from oats for a while.

TeknoLen Rookie

I wonder if your breakfast had too high of a glycemic load. Two cups of oats and the fruit might be spiking your blood sugar which can cause your insulin production to spike which can then lead to a "crash" as the insulin knocks down your blood glucose. Hunger is a common result of the blood sugar crash. The fats and protein in your breakfast should have helped moderate digestion of the carbs, but perhaps the sheer glycemic load was too much...

Xhale1227 Newbie

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.


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psawyer Proficient

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

I'm sorry to hear that. Good luck.

RiceGuy Collaborator

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

As was suggested in another post, the oats might not have been such a good idea. They're basically all contaminated with gluten unless you buy gluten-free oats. And even then, there's no guarantee that you can actually have oats without suffering consequences anyway. Some can, and some cannot.

However, the symptoms you describe while on a gluten-free diet are not uncommon for those just starting out. Sounds like it could be gluten withdrawal, and many do go through it. Give it time. I think if gluten presented no problems for you, your body wouldn't be exhibiting such changes. I too had a ravenous appetite at first, and it lasted nearly a year. Ate until I thought I'd puke or explode, but couldn't satisfy the hunger. I resorted to liquefying all my meals in a blender, so as to maximize digestion and nutrient absorption. Wasn't very tasty, and got really monotonous, but it was necessary. You may not have to take such measures, but this should illustrate just how messed up a body can become, without the person even knowing it. After all, gluten was the last thing I thought bothered me. I ate tons of the stuff.

If gluten is a problem for you, be assured it is nothing to be trifled with. It will catch up to you, and like many on this board, you'll wish you'd taken action sooner. I know I sure do. But there's no going back. Today is the first day of the rest of your life. Make it count.

  • 2 months later...
Happytobefree Newbie

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

I had the same thoughts as RiceGuy ( a few posts after this quoted post). From the descrpton of what you were eating, I think you are glutenng yourself. Be aware that once you give your body a break from gluten, you basically give it a chance to stand up for itself. I think that is what you are experiencing. The oats, the protien bar, produce wax, and your old kitchen equipment are all direct or contaminated sources of gluten. You can send your body back to starvation and malnutrition mode and lessen the symptoms, but you will be doing damage overtime. I would listen to your body. If you are not feeling, it's a sign that you are still ingesting gluten. I would encourage you to try again and start yourself off with a few food items that are COMPLETELY gluten-free and have only a few things on the ingredients list to lessen the chance of cross contamination. This site is an awesome guide to gluten-free versions of common food items and, as for fresh produce, I would find frozen gluten-free veggies and try finding a local produce shop that sells uncoated and unsprayed frut and veg. It is an undertaking, I can't deny that, but I, personally have been rewarded by getting my life, mind, and health back in sound condition.

Best of luck to you,

Jessica Enevold

Razzle Dazzle Brazell Enthusiast

When i stoppedeating gluten i was taking B-12 so i think it helps tremendously. I also take gluten fre multivitamin gummies. I agree that lacking nutrients can cause that insatiable hunger. How are you coping with the diet change? Are you using alternative flours and eating a varied diet with a lot of vegetables and fruits?

squirmingitch Veteran

Please note that the OP has not posted since they said they were quitting gluten-free on 2/27/12.

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
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    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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