Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constantly Hungry- Never Full

Xhale1227

Recommended Posts

Xhale1227 Newbie
Xhale1227
Posted

I took an allergy test and it said I had gluten sensitivity. Pretty sure I don't have celiac disease. My doc said he wanted me to give up gluten for a few months and see how I feel. I am on week 4 and my digestive system is feeling much better. However I am still very bloated, which I hope improves with time. My main concern though is my hunger. I have put on 5 pounds in the last few weeks, and if I ate when I was truly hungry, it would be 10 pounds. I am starving 24/7. I'm eating MORE calories now than I did when I ate gluten, and yet still my hunger is ravenous. Before this diet change, I would have to force myself to eat.... Now I eat as if I am going into hibernation every day. It is ridiculous. I just had 2 cups of oats, a peanut butter protein bar, half an avocado, fruit, protein shake, and 2 eggs for breakfast. No joke. I am now an hour later.... starving. Why is this happening? I am tempted to just quit, I don't want to gain weight.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Brittany85 Rookie
Brittany85
Posted

I took an allergy test and it said I had gluten sensitivity. Pretty sure I don't have celiac disease. My doc said he wanted me to give up gluten for a few months and see how I feel. I am on week 4 and my digestive system is feeling much better. However I am still very bloated, which I hope improves with time. My main concern though is my hunger. I have put on 5 pounds in the last few weeks, and if I ate when I was truly hungry, it would be 10 pounds. I am starving 24/7. I'm eating MORE calories now than I did when I ate gluten, and yet still my hunger is ravenous. Before this diet change, I would have to force myself to eat.... Now I eat as if I am going into hibernation every day. It is ridiculous. I just had 2 cups of oats, a peanut butter protein bar, half an avocado, fruit, protein shake, and 2 eggs for breakfast. No joke. I am now an hour later.... starving. Why is this happening? I am tempted to just quit, I don't want to gain weight.

I felt that way too when I went gluten-free. I think it has something to do with malabsorption. I'd suggest eating small meals and snacks frequently with lots of protein. I think this is part of the detox process and I'm sure it will get better.

squirmingitch Veteran
squirmingitch
Posted

Did the allergy testing include testing for soy? Soy gives me bloat.

I am hungry all the time too. I think it is like Brittany said ~~~ it's part of the process.

adab8ca Enthusiast
adab8ca
Posted

i had no appetite before I was diagnosed with Celiac...Lost 30 pounds without trying. Once I stopped eating gluten, I was RAVENOUS. If it was not nailed down, I ate it. I was never, ever ever full.

It did subside but I did put on at least 10 pounds in a very short time. If you are feeling better, I would not give up the diet for fear of a little weight gain. It eventually subsided with me, although I have started working out a LOT and am having a hard time losing any weight. My body seems to want to hold on to the nutrition it gets!!!

Lori2 Contributor
Lori2
Posted

I would really recommend that you stay away from oats for a while.

TeknoLen Rookie
TeknoLen
Posted

I wonder if your breakfast had too high of a glycemic load. Two cups of oats and the fruit might be spiking your blood sugar which can cause your insulin production to spike which can then lead to a "crash" as the insulin knocks down your blood glucose. Hunger is a common result of the blood sugar crash. The fats and protein in your breakfast should have helped moderate digestion of the carbs, but perhaps the sheer glycemic load was too much...

Xhale1227 Newbie
Xhale1227
Posted
  • Author

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

I'm sorry to hear that. Good luck.

RiceGuy Collaborator
RiceGuy
Posted

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

As was suggested in another post, the oats might not have been such a good idea. They're basically all contaminated with gluten unless you buy gluten-free oats. And even then, there's no guarantee that you can actually have oats without suffering consequences anyway. Some can, and some cannot.

However, the symptoms you describe while on a gluten-free diet are not uncommon for those just starting out. Sounds like it could be gluten withdrawal, and many do go through it. Give it time. I think if gluten presented no problems for you, your body wouldn't be exhibiting such changes. I too had a ravenous appetite at first, and it lasted nearly a year. Ate until I thought I'd puke or explode, but couldn't satisfy the hunger. I resorted to liquefying all my meals in a blender, so as to maximize digestion and nutrient absorption. Wasn't very tasty, and got really monotonous, but it was necessary. You may not have to take such measures, but this should illustrate just how messed up a body can become, without the person even knowing it. After all, gluten was the last thing I thought bothered me. I ate tons of the stuff.

If gluten is a problem for you, be assured it is nothing to be trifled with. It will catch up to you, and like many on this board, you'll wish you'd taken action sooner. I know I sure do. But there's no going back. Today is the first day of the rest of your life. Make it count.

  • 2 months later...
Happytobefree Newbie
Happytobefree
Posted

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

I had the same thoughts as RiceGuy ( a few posts after this quoted post). From the descrpton of what you were eating, I think you are glutenng yourself. Be aware that once you give your body a break from gluten, you basically give it a chance to stand up for itself. I think that is what you are experiencing. The oats, the protien bar, produce wax, and your old kitchen equipment are all direct or contaminated sources of gluten. You can send your body back to starvation and malnutrition mode and lessen the symptoms, but you will be doing damage overtime. I would listen to your body. If you are not feeling, it's a sign that you are still ingesting gluten. I would encourage you to try again and start yourself off with a few food items that are COMPLETELY gluten-free and have only a few things on the ingredients list to lessen the chance of cross contamination. This site is an awesome guide to gluten-free versions of common food items and, as for fresh produce, I would find frozen gluten-free veggies and try finding a local produce shop that sells uncoated and unsprayed frut and veg. It is an undertaking, I can't deny that, but I, personally have been rewarded by getting my life, mind, and health back in sound condition.

Best of luck to you,

Jessica Enevold

Razzle Dazzle Brazell Enthusiast
Razzle Dazzle Brazell
Posted

When i stoppedeating gluten i was taking B-12 so i think it helps tremendously. I also take gluten fre multivitamin gummies. I agree that lacking nutrients can cause that insatiable hunger. How are you coping with the diet change? Are you using alternative flours and eating a varied diet with a lot of vegetables and fruits?

squirmingitch Veteran
squirmingitch
Posted

Please note that the OP has not posted since they said they were quitting gluten-free on 2/27/12.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.